r/DementiaHelp

Mom is in memory care with fairly advanced dementia. 87 years old. She has had back problems she refused to address for 30+ years. Now its so bad shes in agony and needs surgery but, she prob wouldnt survive recovery. We tried epidural injections with zero relief. We tried a mild pain med and she fell twice. Im her poa and there is no other family. It all falls on me and its really taking its toll.

If the roles were reversed, I would just take the pills and let whatever happens happen but Im really struggling with the decision. Made an appointment today with a counselor for myself.

Any thoughts appreciated.

Hello!

I'm trying to help my parents continue to live independently (mom has mild dementia)

They just moved into a new house to be closer to me for more support, and my mom is having a hard time remembering where everything is in her new environment.

I've done a search online but haven't had much luck finding high quality labels for rooms / drawers / etc. Does anyone have any advice outside of making myself? Would love the conveneince of purchasing and having them ready to go. And I need them to have pictures of the items, not just the text

Looking for reusable (can be moved) labels for bedrooms / bathrooms / closets. As well as kitchen(cutlery, plates/glasses, etc). And bathroom items stored in drawers / vanity

Thanks in advance for your help!

Hey everyone,

My dad is in the later stages of FTD and was diagnosed in his mid-60s. He recently had genetic testing/a dementia panel done, which came back negative all tested variants.

However, we have some reason to suspect there may be a genetics/familial component since his mother developed very similar symptoms at around a similar age.

Unfortunately, my dad likely has only months to live, so we're trying to figure out what we should do now, while we still can, to preserve as much useful genetic/biological information as possible.

Some options we're considering:

1. DNA banking
2. Ambry Genetics Patient for Life
3. Whole-genome sequencing (WGS)
4. Blood banking - is this a thing?
5. A second independent genetic panel

In particular for people who have gone through similar situations:

• What did you preserve/test?
• Which services/institutions did you use?
• Was there anything you wish you'd done before your family member passed?

Any advice here is appreciated!