r/DementiaHelp

Keeping my dad with dementia busy

Hello community,
I’m looking for some ideas to keep my dad busy throughout the day while keeping him safe. He has Lewy Bodies with Dementia so he is not very mobile. He loves sports and would always be reading the newspaper. He cannot use a pen very well and has trouble holding it. Any tips and ideas are appreciated.

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▲ 6 r/DementiaHelp+1 crossposts

It still feels surreal

Im 15 years old I have taken care of my great-grandma for the last 5 years(since my great grandpa died). She has been the main focus of my life that entire time and as of 3AM on Monday May 18th I sat there and held her hand and watched her take her last breath. It feel like my family has moved on today we made the funeral arrangements they elected for me to be the one and only person other then the pastor to speak at it and they let me make the final decision on decorative stuff as well as her wish to be cremated and buried with her husband however while we were doing all of that they kept joking around laughing and acting like it was this hilarious thing whilst I sat there shaking. It still doesn't feel real I still cant imagine life without her...I dont know what to do anymore.

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u/Opposite_Respect7558 — 2 days ago

my mother was just diagnosed (fairly young) at 60 years old with vascular dementia. everything I read makes it sound very very bad. so, i've come here to ask: how truly bad is it?

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u/Soft_Water_3579 — 3 days ago
▲ 7 r/DementiaHelp+1 crossposts

What do I do?

Hi friends, I’ve posted in a dementia group before. Short run down of my fam, I 24F am the youngest of 5 children. My mom and dad got divorced back in 2022 and my mom has been showing signs of dementia. She can’t remember the month or day, keeps getting lost while driving, and hit my garage with her car the other day. She is currently living at my home because none of my other siblings will take her in and I travel full time for work. She can’t work her phone very well and doesn’t remember my dogs genders or names even though she’s lived with them for 3 months. I know it’s time to get power of attorney, and I asked her but she’s kind of stubborn saying she’s “totally healthy” and “only 62”.
I know she needs to be evaluated. I can’t have the conversation with her that she is forgetting things because she will get depressed and shut me down. She absolutely needs help. Do I get POA and make a neurologist appointment for her myself? Not tell her what it’s for as to not upset her and just has a family friend go with her? Also, she is supposed to be getting a 60,000 inheritance when my grandma passes.
My father is bipolar and abusive, they have been on and off the past couple years and he’s currently with another woman. She mentioned to a family friend the other day that “he will come running back when she gets her inheritance” I’m absolutely terrified because that is all the money she will have, and that needs to go to her care in the future. If this money does not go to her care, I will be the one paying the bill. As my 4 older siblings and barely getting by financially themselves. As the POA can I have that money put into a seperate account that she cannot give to him? Last time they were together(only lasted 9 days) he bought her a 8,000 car, 1500 at a grocery store and the list goes on. Again he is bipolar so he has very irresponsible behavior with money.
If she gets this money and he comes waltzing back in and spends this 60,000 in one month I do not know what will happen to my mom. Do I take financial and medical control and let her hate me and say I’m stealing her money? Or do I leave her to her own devices and not worry about what will happen to her? She is stubborn and unwilling to admit there’s an issue. I have no idea what to do. I know I need to get her tested, but have no idea how to do so without the POA.

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u/Spiritual_Traffic242 — 5 days ago
▲ 4 r/DementiaHelp+2 crossposts

concerned for my grandma and don’t know when to intervene

I (23f) live about 2 hours from my grandma (78f), we are planning a trip to see my dad (my grandma and dad have had a bad relationship in the past but we just saw him 3 months ago and everything was fine). Anyways she can’t remember that we saw him 3 months ago and is insisting that we don’t stay with him even though I asked him and he said it was ok. I’m really worried that she is starting to decline and I don’t know when or how to make sure she’s ok. She comes down to see me every 2 weeks or so and I worry so much about her driving. She also will ask you the same questions over and over again like ask me about my friend several times in one conversation. She lives with her boyfriend of 15 or so years and he seems to be fine just immobile for the most part.

When should I start to intervene and when should I be very concerned about her driving? She seems to remember events very well and have a good long term memory so she’s really good at remembering where she is and where she is going as long as she frequented those places for a long time otherwise she gets lost. I’m extremely concerned but I also never dealt with this before and don’t know what steps I can take to make things easier for her. Please help me out.

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u/planetaryconsumtion — 4 days ago

Should I put cameras up for parents with dementia?

Hey, what are everyone’s thoughts about putting up cameras in your parents house who struggle with dementia. I’m constantly wondering if they’ve eaten, have they fell, taken meds, are they ok, etc.

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u/Lopsided_Cup9844 — 6 days ago
▲ 15 r/DementiaHelp+1 crossposts

Dementia or Normative Aging?

My Mother is 63, I love her dearly. Over the last 3 years or so, I’ve noticed some changes in her cognition and memory.

She has a career, lives alone, and is completely self sufficient. Obviously, I know minor decline is normal, and I have been trying to brush it off as standard aging but I had a concerning conversation with her today.

I just landed at the airport, and I was waiting for my ride to pick me up. She says she went on “street view” to check which friend was coming to get me. She says she assumed it was my friend Jada because she “saw a grey car on street view”.

My mom is a well educated woman, she has a masters, and is good with technology. Why would she think that street view would show a live view of my location? This makes no sense and concerns me.

No one else in my family has brought up any concerns to me, and she hasn’t herself acknowledged any changes to me.

Her mother had dementia but that didn’t begin until she was in her 80s.

Any advice/tips/reflections would be so appreciated!

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u/Few-Performance4499 — 12 days ago
▲ 4 r/DementiaHelp+1 crossposts

Hi everyone, in the last month my mom has had 2 hospitalizations. 1st seemed stroke-ish. 2nd seemed seizure-ish. All testing hes been done. MRI revealed lesions on her brain. The neurologist speculates that those 2 incidents were mini strokes. But no evidence of that. (Keep i mind, i am all the away across the country and relying on my dad for info). Well, the effects of the 1st really messed with her memory. The 2nd, she has turned evil towards my dad. Texting him evil things, literally kicking and punching him and he says everytime she looks at him he sees hate all over her face. She is set to be discharged tomorrow and go home with my dad. Doctor's said there is no medicine to help. Wtf, is he supposed to do? What options as far as help are there. They say, good luck answer send him out the door with a woman that hates him? The last few days have really wrecked him; just pure evil towards him. He sounds beaten the phone. I dont know what my question is; I guess I am just looking for advice/tips I can pass on to him. TIA.

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u/neckcore — 14 days ago

So I’m at a loss here. I’m 45 and an only child, luckily enough to have both parents alive. This past week though, it’s been a struggle. My Mom (69) is pretty dependent and takes care of my Dad (77), who has onset dementia, which has been getting worse and worse since he had a stroke a few years ago. My Mom told me that she needed to have a small procedure done and have a valve replaced on her heart, and that she would be in the hospital for 2-3 days and then back home to recover. I took off 2 weeks unpaid FMLA at work to watch my Dad and their dog for the first week and then help my Mom recover along with helping with my Dad and their dog for the second week. What I underestimated was how bad my Dad’s dementia has become. My Mom told me my Dad would be okay if I didn’t watch him for 1 day this past Wednesday, so I didn’t. I tried calling and texting my Dad on Wednesday and again this morning to see how he was, and he didn’t pick up the phone. This morning when I went over to my parents’ house, I found the dog placed in my Mom’s car, scared as hell, and my Dad in his underwear roaming the house. Then when I asked him, “Are you ready to go visit Mom?”  He replied back, “She’s here, but she hasn’t been talking to me.” I had to spend the next 15 minutes explaining it to him again that she’s in the hospital and we need to go visit her. I then asked him what he did on Wednesday because he didn’t answer the phone, and he said that he went somewhere with my Mom’s friend — no one came to visit him yesterday. I’m trying not to burden my Mom with all this information because she just got out of ICU and into a regular hospital room from having the heart surgery. I wanted to see what she thought because she’s more coherent than my Dad at this point, and she isn’t just like, “Well, that’s your father, he’s impossible!” Also, today I learned that the hospital wants to put her in a rehab center when they release her from the hospital, which I think would be good for her, but it seems like every day my Mom is not there, my Dad is getting worse. When I brought him home tonight from the hospital, I made my dad dinner, fed their dog, and took the dog outside. After dinner, my dad wandered the house saying that there was a man and a woman in the house and that he’s trying to kick them out. There was no one in the house but me, him, and the dog. I was only able to stay at their house till 8 p.m. before I had to go home myself back to my apartment. I’m afraid of what I’m going to walk into when I get there in the morning. I feel bad for leaving him there, but I have my own life and dog to take care of back at my place. I was with him all day.

I told my mom months before she had this surgery that she really needed to sell her house and move into a senior living facility with my dad because if something happens to her, I’m not prepared to take on that responsibility. I honestly struggle to take care of myself sometimes, and I can’t take care of both of them.  My mom didn’t want to hear anything about it.  So now we’re in this situation, and I have no clue how to go about this.  Should I tell someone at the hospital behind my mom’s back about this situation?  Is there someone there that can help?  I have no idea. I’m literally clueless in all this.  

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u/JayVegas80 — 14 days ago