Advice for residential treatment centers?

A family member (being deliberately vague for privacy) is a 16yo girl, diagnosed with level 1 autism, OCD, and ARFID.

She's always struggled with sensory issues but the amount of food she's willing to eat has been shrinking over the last few years. She's currently in the hospital for the third time due to malnourishment/dehydration. Last stay they sent her home with an NG feeding tube, but she refused feedings after a few times at home.

We're at our wits end and trying to figure out next steps. She has a loving relationship with her parents and siblings but (probably due to depression) doesn't seem motivated to seek any solutions for getting better. She refuses all medication, won't talk to therapists, isn't willing to do outpatient care. She spent a few weeks a year ago in an eating disorder RTC but it wasn't helpful (not targeted towards autistic patients).

We're exploring options for inpatient care (she is open to the idea) but haven't had much luck -- clinics keep rejecting her because they're not equipped to deal with an eating disorder and autism and meltdowns. Her IQ is too high for at least one of the places we called (she's very articulate + intelligent, very charming when she's not having a meltdown, loved dance/drama before autistic burnout roughly two years ago).

Any recommendations? We just need some new paths we can explore. Feels like we've tried everything at this point and the staff at the hospital seem at a loss too. She still has the NG tube.

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u/FutureIncrease — 6 days ago
▲ 2 r/ARFID

Advice for residential treatment centers?

A family member (being deliberately vague for privacy) is a 16yo girl, diagnosed with level 1 autism, OCD, and ARFID.

She's always struggled with sensory issues but the amount of food she's willing to eat has been shrinking over the last few years. She's currently in the hospital for the third time due to malnourishment/dehydration. Last stay they sent her home with an NG feeding tube, but she refused feedings after a few times at home.

We're at our wits end and trying to figure out next steps. She has a loving relationship with her parents and siblings but (probably due to depression) doesn't seem motivated to seek any solutions for getting better. She refuses all medication, won't talk to therapists, isn't willing to do outpatient care. She spent a few weeks a year ago in an eating disorder RTC but it wasn't helpful (not targeted towards autistic patients).

We're exploring options for inpatient care (she is open to the idea) but haven't had much luck -- clinics keep rejecting her because they're not equipped to deal with an eating disorder and autism and meltdowns. Her IQ is too high for at least one of the places we called (she's very articulate + intelligent, very charming when she's not having a meltdown, loved dance/drama before autistic burnout roughly two years ago).

Any recommendations? We just need some new paths we can explore. Feels like we've tried everything at this point and the staff at the hospital seem at a loss too. She still has the NG tube.

reddit.com
u/FutureIncrease — 6 days ago

WGS - Nucleus vs. Sequencing vs. Tellmegen vs. All of Us

I'm in the US and looking to get WGS that offers full data download. I know this question gets asked a lot, but the recent posts I found were for Europeans + commenters said the best option changes month-to-month.

I have heard bad things about every DNA sequencing option, so I'm torn haha. Please share your experiences + recommendations!

I'm in the SF area, so I'm also interested in volunteer options where you donate your data to science in exchange for sequencing. Seems like All of Us doesn't allow data download anymore though?

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u/FutureIncrease — 8 days ago
▲ 10 r/osdev

Request for reviews - Jikei microkernel

Hi all! I took an OS dev class this last semester and built a Rust microkernel for RISC-V called Jikei. It takes inspiration from xv6 (the source material for my class) and seL4 (sync IPC endpoints, but I'm only partway through implementing them).

Would anybody be willing to take a look to see if you find any obvious bugs or architectural oversights? I'd appreciate any feedback or critiques. Repo is https://github.com/bgub/jikei

I'm also experimenting with using AI to build a multi-chapter tutorial based on the code. If anybody wants to look at that, check out https://jikei.bgub.dev

Thanks in advance!

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u/FutureIncrease — 1 month ago