u/General_Surround3366

I was diagnosed in December last year and I’ve gradually realized more and more things aren’t just me being lazy or imagining things (like I’ve been told by several medical professionals…), so here are a list of some of those things!

1. My crazy posture!!! Seems obvious now because of course I can’t just slot in to the correct position when my spine is straight up spagetti!!! When your spine is spaghetti there is no obvious “correct” posture for your spine!! A specialist dentist blamed my daily debilitating headaches and jaw pain solely on my posture🥴
2. Along the same lines as the last one but, my feet being in pain after just minutes of standing up or walking also isn’t me being lazy or crazy!
3. Okay this one isn’t as serious as the other ones lol but the fact that nail polish refuses to stay on my nails isn’t because i suck at painting them. It’s because my nails are

ridiculously soft and nail polish only sticks properly on hard surfaces.

6. The fatigue I can feel at the end of the day regardless of how much I’ve done once again isn’t me being lazy!!!! It genuinely takes a lot of energy to try and hold up a body made of spaghetti all day.

7. Very random but recently realized not everyone can reach their entire back apparently 🤷 never realized why people needed help with putting sunscreen on their backs before.

8. Apparently people stopped being able to put both legs behind their head in like second grade. I can still do that no problem. But I have stopped doing it since I realized why I’m still able to do it and that it definitely isn’t good for me to do in hehe

This list could probably be infinite but those are the ones I’ve been thinking about most the past couple weeks. Also I’m curious what other people have on their list like this so please feel free to contribute!

Edit: here are a couple more I remembered after posting and things some people in the comments were talking about. Also thank you all for being so incredible and sweet in the comments🫶

9. Hair dye just slipping right off, even if it’s permanent.

10. While all our joints are basically weak, the most affected ones for a lot of us are usually knees, wrists and ankles. For me this especially means I have sprained my ankles like a ridiculous amount of times.

11. Tension headaches!! I have gotten the somewhat ridiculous diagnosis called “unspecified treatment resistant pain” due to my basically constant headaches.

12. Things CONSTANLY going down the wrong pipe/choking on food and drinks.

13. Having a hard time regulating body temperature.