Anyone else stage 2/3, type IV?
Diagnosed just this week. It's all a bit fresh, overwhelming and upsetting. However I'm also glad I have an answer.
The endocrinologist dismissed my progressive weight gain, since all other health markers were fine and diet globally fine “You just need to accept that this is your weight.”
The first cardiovascular specialist (woman) that I saw gaslit me. (“You don’t have lipedema, and even if you do it’s incurable anyway. Your struggle to lose weight is due to your negative mindset”)
The second specialist was fantastic, but I had to waitlist 6 months to get in to see him (France).
If you're at the same stage as me, I'd love to hear what's working for you in terms of conservative treatments and exercises?
I have a prescription for grade II and III leg compression. I have been told to stick to an anti-inflammatory diet, do lymphatic drainage massage, try some anti-fluid retention pills and start aquabiking and swimming laps.
Separately, I've already been on Wegovy for 6-7 months since I was struggling to lose weight (now I understand why!), and I have lost 12kgs.
I have fibrosis on the legs and cuffing at the wrist.
I've never felt anything like rice or peas under the skin.
I don't have sensitive legs, nor have I ever felt that they're especially heavy or painful after exercise.
They and my glutes have always been dense and tight however, which is not just muscle, or related to my chronic lower back pain, as I've always just assumed 🙃