Spiro has really helped!
Was diagnosed officially in January although I have had symptoms for about five years.
Last September had the worst flare of my life, so bad I was in tears every day and was bed / sofa bound and unable to wear any underwear for about two weeks.
I was put on Spiro in February, that same month had one single (but enormous) flare that ended up unexpectedly draining during the first week of my new job.
And since then ... nothing. Maybe a few tiny ones every other month.
My only regret is by the time I actually got to see a real dermatologist (it was a long wait on the NHS) I only had scars and pictures so show him because when my appointment rolled round I wasn't flaring at all. I really wanted to show how bad it could get to an actual dermatologist but only ever got to show dubious and doubtful GPs that would suggest STDs and eczema lol.