u/Hayfah

Edit: r/MECFSAustralia has been created. Head over :)

Been challenging to navigate this condition, particularly in a country with out-of-date guidelines (e.g. GPs still recommend GET) and seemingly not many practitioners that stay up to date with the latest and greatest research.

Please direct me to the subreddit if it already exists, but was thinking it might be useful to have a centralised place to visit to keep track of things like:
- current/future clinical trials in Australia.
- latest research findings.
- doctor recommendations.
- recovery stories.
- more.

Edit: If there’s enough interest, I will get this going soon, and do a call out for moderators. Please feel free to get in touch prior with any ideas/suggestions.

Edit: r/MECFSAustralia has been created. Head over :)

Been challenging to navigate this condition, particularly in a country with out-of-date guidelines (e.g. GPs still recommend GET) and seemingly not many practitioners that stay up to date with the latest and greatest research.

Please direct me to the subreddit if it already exists, but was thinking it might be useful to have a centralised place to visit to keep track of things like:
- current/future clinical trials in Australia.
- latest research findings.
- doctor recommendations.
- recovery stories.
- more.

Edit: If there’s enough interest, I will get this going soon, and do a call out for moderators. Please feel free to get in touch prior with any ideas/suggestions.

Been challenging to navigate this condition, particularly in a country with out-of-date guidelines (e.g. GPs still recommend GET) and seemingly not many practitioners that stay up to date with the latest and greatest research.

Please direct me to the subreddit if it already exists, but was thinking it might be useful to have a centralised place to visit to keep track of things like:
- current/future clinical trials in Australia.
- latest research findings.
- doctor recommendations.
- recovery stories.
- more.

Edit: If there’s enough interest, I will get this going soon, and do a call out for moderators. Please feel free to get in touch prior with any ideas/suggestions.

Sharing (your germs) is not caring. Yes, it is winter, and yes, bugs are always more prevalent at this time of year. However, that doesn’t mean we can’t help mitigate some of the spread.

If you are actively infectious (not someone suffering with chronic allergies etc.), and MUST leave your home, please, please, please, do the bare minimum to be considerate of others.

Some ideas/options below (please suggest more in comments). Please, pick literally ANY of these actions, which would be an improvement on what I have been seeing out in public.

- wear an N95/equivalent mask
- wear any mask/face covering
- cough into elbow
- if blowing nose, chuck tissue out straight away (do not wave it around…)
- consider if there is a practical alternative to you leaving your home

You are not enjoying being sick. Please do not potentially inflict that on someone else.

You may or may not know someone in your life with a dodgy immune system. What might be minor to you could be major to them.

There are plenty of people out there at higher risk: grandparents, chronic health issues, chemo treatment etc. Please do not risk making their condition and/or life more challenging and/or give them unnecessary anxiety because today they were around Sally at the supermarket coughing on the produce or Gary at the GP sniffing and sneezing (both without masks).

Rant, over.

Can anyone please recommend a GP or appropriate specialist in Melbourne that is well versed in how to treat Chronic Fatigue Syndrome?

Saw a GP a few weeks ago who recommended Graded Exercise Therapy (GET) but I have since learned that this is not the first-line treatment in other countries and can actually be harmful/counterproductive.

I also left the appointment with more questions than answers, and with a bleak outlook. Ideally, want to find a specialist in this area that knows exactly what to do to manage the condition, based on the latest and greatest research.