I failed going off my PPI - extremely disappointed.
Background - have had GERD for 5 years and been on 40mg omeprazole for 4 of it. My first endoscopy showed grade A esophagitis. That's when I got on the omeprazole. I managed on that or nexium (they stop working eventually?) for the past 4 years and had 2 successful pregnancies. Never been able to come off the drugs everytime it gets so miserable I have to get back on. My second endoscopy last year showed only minor signs of reflux. Doctor said continue meds. I decided a month ago it was time to fully commit to getting off this medicine. It's made me severely iron deficient and the infusions for iron don't last. I also am at great risk of osteoporosis since my mom and her mom have it. The PPI long term is not safe for me. tapered to 20mg for a week and then did 10mg for one more week. Then I went to 60mg Pepcid and tums daily. It was going well until 2 weeks off hit and the acid got so bad my esophagitis was reforming. I could tell because of the severe burning and pain when eating certain foods. I couldn't control the reflux. I said screw it and started back up my PPI yesterday. I cannot risk esophagitis reforming. Who knows if it was still rebound 2 weeks of the medicine or if that is my baseline. I'm so discouraged and feel so trapped. Honestly, the PPIs don't even fully cover my GERD. No hiatal hernia or structural abnormalities were found. My doctor said she just believes my LES could be relaxing inappropriately. I'm at wits end. Anyone who's on these drugs lifelong would love to hear from you. I'm so worried for my bones and overall health being on it. And it barely even covers it. Thanks everyone