u/HorseInLounge

Hi Everyone, I've been taking mestinon now for 2 months and have my thymectomy booked (provisionally) for September. I've noticed my symptoms getting worse the past couple of weeks and since my neurologist is practically uncontactable, I was wondering if anyone here has any insight as to how much mestinon is too much?

I currently take 60mg every 4hrs, so 4 times a day. Previously, when I accidentally took a pill after 3hrs not 4, I had to practically live on the toilet haha. But would it be okay for me to try taking 90mg instead of 60mg? I'm not aware of any major issues with taking too much mestinon other than encouraging the negative symptoms to persist. Thanks

Hi Everyone, I've been interested in deepening my connection with Christianity for a while, and recently have been listening to a lot of podcasts and am looking to buy my first Bible :)

I'm struggling personally with lust. As embarrassing as it is to write out. I have somewhat overcome an addiction to pornography and am struggling with lust when I'm just out and about. How do you guys avoid seeing people that are objectively attractive and not thinking of anything sexual or hedonistic? Thanks :)

Hi everyone, I've been told I'll be having a thymectomy in the next month or two. Timescales are still somewhat in the air due to the NHS (I'm UK based).

I had my initial cheat CT scan a couple of weeks ago for my thymus gland. I've now been told I need a CT scan of my abdomen and pelvis. I was wondering if this is common practice or if it could mean the chest CT showed something they want to look at more? My consultant is uncontactable hence why I'm asking here lol. Thanks :)

Hi everyone, I recently got diagnosed with MG and a week later with Eusinophilic Esophagitis. Apparently these are two completely unrelated issues, I can't help but feel, however, that it's a big coincidence for someone like me who's never had any health issues up until now.

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Has anyone else experienced this, or had an increase in eusinophilic count since their diagnosis? Thanks :)

Hi Redditors, I've never had any problems with my swallowing and never had any issues of food getting stuck in my system. For context I'm 26 now.

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I recently had an issue where a piece of chicken got stuck in my oesophagus and I required an endoscopy to get it removed, in doing so, the doctors took swabs and diagnosed me with EoE. I found this very surprising since I've never had any issues relating to this, and the bit of chicken was very big so it's not immediately evident that the issue was due to EoE.

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I've been advised to cut dairy out of my diet, which I have now done so for the past week or so, and I'm taking Budesonide as prescribed. I'm not sure what to look out for with my current dairy free diet to help determine if dairy is an issue for me. Any help or advice would be much appreciated! Thanks Guys :))

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Hi, in the past couple of months I've noticed that I have real difficulty smiling after having spent a few minutes talking. It's as if my upper lip has no strength in it whatsoever.

Also when I eat, my upper lip is so weak that I have to physically close it with my finger to avoid being an 'open-mouth chewer'. I'm really wondering what could be causing this, I've been referred to a neurologist by my GP but that isn't for another 4 months and it's going to be fairly debilitating living like this for the foreseeable future.

Has anyone come across this or know what these symptoms could be? Thanks

I recently had a blood test that confirmed my ferritin level was at 11, which I understand is very low. I would guess this is due to my diet not containing sufficient iron for the past 6 months or so. Leading up to my blood test I've experienced the following symptoms:

Unable to sprint - weakness in legs

Extended recovery time after gym sessions

Extreme weakness in my upper lip leading to difficulty eating, drinking and smiling

General weakness in facial muscles

Please could the good people of reddit let me know if these sound typical of anaemia? I'm somewhat worried that this may be the start of some sort of degenerative muscular disease like MD, but I don't want to overreact. Thanks in advance