u/Illustrious_Elk_5692

Neuro doubts relapse on Ocrevus

I have MRIs tomorrow, so time will tell if I’m having my first relapse since diagnosis, but my neurologist keeps saying it’s super rare for people ti have relapses while on Ocrevus.

I have RRMS, and have been on b cell assassins since 2017. I’m 51. I feel 85%sure my symptoms are a relapse, but her doubt makes me question.

It’ll be apparent one way or another tomorrow, but I’m thrown ofd by her doubt. I feel like plenty if people in this sub. Have “failed” Ocrevus. I know it’s a stronger one, but it happens, right? Like, it’s not crazy that a relapse is what’s happening? Having those old self doubt feelings like prediagnosis—“Am I really feeling what I think I am?!?”

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u/Illustrious_Elk_5692 — 2 days ago

ER for MRIs if doc ordered them but they’ll take weeks?

I’m fairly sure I’m having an attack. I’ve been in contact with my neuro who has ruled out other stuff and now agrees I should have MRIs to confirm. First MRI appts aren’t until end of month.

I have a message in to her today and am waiting on reply, but of course I’m worried about damage done.

Can I just go to the ER and tell them I need an MRI because I think I’m having MS attack? Is it insurance dependent? Neuro is pretty responsive, but I hate this waiting. Thanks for whatever experience you have!

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u/Illustrious_Elk_5692 — 15 days ago

Crowdsourcing: How long for others for attack to be known

For the past two weeks, I’ve had a worsening symptom (hug) that my neuro isn’t worried about because “hugs aren’t as painful as I’m reporting and I just had infusion.” My memory of my last attack is that it took like three weeks for it to clearly be an attack because my legs went numb.

So I’m curious: How long was it between “huh wtf is this” to “ oh shit” for you?

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u/Illustrious_Elk_5692 — 18 days ago

Lower left back pain what in the Sam Hill

So I’m not ruling out that I’m just 51 and I janked my lower back, but nothing happened to start this spasm. It kinda built over a day and has lasted for days. No fever or infection-y stuff. But my MS hugs are usually around my ribcage and this is lower, in the back.

Of course, I looked it up and it’s a symptom for some. But it’s new to me (if it’s MS). Anyone had specifically lower back MS pain?

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u/Illustrious_Elk_5692 — 1 month ago

Searched for body acceptance help for midlife weight gain, and only found weight loss advice.

I know, Mayo Clinic: Belly fat = bad. I get it. Oh, chronic stress can make it worse, you say?! Tell me more!!! Also, fuck right off!

I eat a mostly healthy diet. I exercise. I have fucking MS and a full time job and a teenager. I am on HRT. I’ve had therapy. I am gaining weight.

I don’t want to go through hating my body and beating myself up for it. I do not want to go fight disordered eating or over exercising again (plus, MS kinda prevents it for me).

Has anyone with a history of body image issues reached a content plateau with their softer, perhaps bigger, body? I feel like I’m 19 again, avoiding mirrors and shit. I’m fucking 51 and over this nonsense already. I just want to enjoy life, including food, and also stay reasonably healthy (other than MS 😅) and feel OK about how I look. Geeezzzz. Any wise mavens who can school me?

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u/Illustrious_Elk_5692 — 3 months ago