Sometimes I wanna runaway
Hi, I’m not really the type of person who posts things like this, but today I feel like if I don’t let this out somehow, I’m going to explode.
I’m 23 years old and I live with my parents (F40/M43), my grandmother (65), and my younger brother (14). Last year, in August, on my exact birthday, my brother started feeling intense pain and had to be hospitalized. A few days later, we got the diagnosis: cancer (high-risk B-ALL). Since then, our lives have been completely turned upside down.
I quit my job and stayed home with my mom (who also quit everything) to take care of him. My dad has missed many days of work over the past few months, and all of us are just trying our absolute best. But it’s simply exhausting.
Living with the fear of losing someone you love, feeling the pressure of knowing that the life of someone you care about so deeply depends on you… and realizing that everything can matter. Food can matter, the floor he walks on can matter, whether or not he drinks soda can matter, stress can matter. Especially hygiene and care.
One of the things people least understand about living with cancer is how much it destroys your immune system. How a simple flu can become pneumonia. How an insect bite can turn into skin necrosis. How every meal has to be freshly prepared because storing food can allow bacteria to grow. Life really is fragile.
And during treatment, you end up connecting with other families who also have children going through similar things. Week after week, you sit beside the same child in the chemotherapy room… until one week they just don’t show up anymore. Then the news comes that they didn’t make it.
In these past months, that has already happened more times than I can count on one hand. Every single time, it feels like another piece of me dies too.
And on top of all of that, I feel like I’m slowly losing the essence of who I am. I feel lost inside my own head. Nothing I do during the day is for me anymore. My mom and I live entirely for this family now.
I carry so much weight. And during the very few times I leave the house to spend time with friends, I try to take at least one hour for myself — even if it’s just to cry — but at the same time, I feel guilty because I know I’m putting even more pressure on my mom.
My brother suffers a lot from the chemotherapy side effects, as well as anxiety and panic attacks. So even when he’s not throwing up or in physical pain, sometimes he’s struggling to breathe and terrified of being alone.
I simply can’t talk about these things with anyone, because it feels like nobody knows what to say once the word “cancer” is involved.
I feel alone. I already struggled with depression during my teenage years, and there are days when I feel a thousand times worse than I did back then. But even back then, when I couldn’t get out of bed because I had no energy, now I have to get up. I have to do my best for my brother — and I do.
You have no idea: every time he smiles, part of me is terrified that it might be the last time I ever see that smile. And when I lie down in bed at night, I honestly feel like I can’t take it anymore.
To add some context:
- We are brazilian
- My grandmother has some health issues so we can’t really rely on her help for certain things.
- My dad works for a farm seven days a week and is almost never home except late at night.
- My mom worked and studied Dentistry for four years, and it was incredibly hard on her. So at the beginning of last year, we all agreed to help support her financially so she could quit her job during her final year and focus entirely on finishing school.