I’m over this dialysis bs
I (22F) have been on dialysis for 4 years now I do hemodialysis and I have a fistula in my left arm, and I don’t really talk about how much it’s affected me, but lately it’s been weighing on me a lot. I feel like it’s changed the way I see myself in ways I don’t always know how to explain. It’s always just something yk? Either the treatments or the schedule or how my hair falls out all the time no matter what I do, or that I’m always in pain no matter what I do or where I go and I can never just fully be present and enjoy myself without something hurting, or how for 3 years straight I couldn’t bathe properly because I had a CVC and it lowkey changed my perception about myself and how I view lot of things, I never feel comfortable in my body anymore because my weight is always fluctuating and my hair falls out like crazy that shit makes me so insecure just because I before Dialysis my hair was so thick and nice and then I started Dialysis and it just it was so bad in the beginning I was going fucking bald, and it’s definitely going better overtime but it’s just like anytime I brush my hair or I run my fingers through it. There’s gonna be like Hella hair falling out like I feel like a cat. I feel like I’m shedding all the time. And TMI as fuck, but you know what when you’re in this type of situation in this medical situation there is no TMI. I can’t shit like I’m always constipated as fuck. I can never do anything about it like no matter what I do and it hurts every single time MiraLAX is my best damn friend but half the time she don’t even work either, and none of my friends understand because all of them are just regular normal people with regular working kidneys so they could never possibly understand what I go through and I tried to talk to them about it, but it doesn’t matter nobody gets it, nobody understands. I can’t seriously have a sit down conversation with someone and them understand what I’m going through. I’m asleep all the fucking time when I go out places with my boyfriend or even if I do go someplace with my friend, I wanna leave 10 minutes after “wanna go on a walk?” “Fuck that I’m staying in the damn car” like I can’t do anything I feel so stunted I feel like my growth is stunted I’m 22. I should be driving. I should have a car and I can’t because I have had too many seizures that the DMV said I’m unfit to drive so I can’t drive. I can’t have a car I had to drop out of high school when my medical situation and everything first started flaring up and my kidney transplant was failing and then I later started Dialysis so I had to drop out of high school (though I did get my GED and I am actually super proud of myself) like I’m tired as fuck all the time I feel like a failure all the time like I just feel like a fucking failure. I want to start college, but I just don’t have enough mental health and energy, I just feel like I’m always sleeping or I’m at Dialysis or high as fuck. I have to smoke Hella fucking weed. I’m like a major pothead just to get some fucking energy so I’m high as fuck all the damn time and that’s bad on its own with that too, but I just don’t know like I just don’t know what to do, like I need friends that are on dialysis and in my age range or something like do. I know I’m being Hella blunt yall but I’m sorry I have to be and I guess I just needed a place to put that into words