I have a 2022 SE and this is the second time this sound has happened. I’ve turned the AC off when it happened the first time and always turn off the music and that does nothing. And funny thing is, it started in the same exact street as last time and stopped on my street just like last time.
He blew my current neuro out of the water. I was able to get free genetic testing in his office so I can officially learn what type of CMT I have (mom had to pay $2000 and had CMT1A). He sent me referrals to Physiatry doctor, a podiatrist, and a much needed MRI on my lower back. He did more for met on this first visit than my previous neuro did for years. And he upped my gabapentin.
He also put my mind at ease for my worry about epilepsy, my mother had it and she died from it and I was concerned it could be CMT related but he told me it wasn’t. He took his time with me and spoke so highly of my mother.
And he also gave me hope, saying there’s clinical trials for CMT that are looking promising. I haven’t had hope in a long time.
I’m just so happy and wanted to share it with others who understand since I no longer have my mother who understood our troubles. I don’t post a lot but I just had to share. I’ve not been well after losing my mom so unexpectedly in December.