u/Interesting-Till7143

Do i go in with low expectations? Im worried about how much could go wrong and if they don’t collect nearly anything after everything I’ve done the past 10+ days.

I’m so anxious I could throw up.

Age: 28
Amh: .47
AFC: 4

Starting embryo freezing this weekend. Feeling hopeful but scared. I feel like i have so much information but not enough at all.

Everything I’m trying to read and understand on dosing for what worked and what didn’t work I know is largely to the individual- but are there KNOWN protocols that DOR patients (or anyone with similar numbers to me) should not use or SHOULD use?

For example, I read that estrogen priming is good in some cases but not others. And certain medications worked better than those recommended by the clinic. I want to advocate for myself but i don’t know where to start, and i hate the idea of treating my first cycle as a trial round to “learn” what to do for next time.

Any last minute tips or advice, open to your experience as well. Starting with RMA this week.

Other notes: been taking coq10, prenatal, vitamin d, stopped alc a month ago, and eat VERY very healthy, workout regularly

This Reddit has given me so much helpful advice.

I had all my consultations and am ready to start treatment on Oct 3. I’ve had no priming whatsoever, and the process seems very fast.

My insurance will cover 3 rounds of retrieval. I just found out Jeffrey wang at Neway is covered and he’s got great reviews for DOR patients.

I am set to go to the RMA in New Jersey next week. No bad experience so far, but feel like the reviews in this group are mixed.

Has anyone had experiences with Dr Wang at Neway? Any advice on what to do?

In my head I’ll do 1 round with RMA and if goes poorly I’ll switch to Neway?

I unfortunately got diagnosed with DOR which means I have less eggs than people my age.

I am prepping for my first round of IVF/ embryo freezing.

Can anyone shed light on any part of the process? Recovering your cycle after works, the effect HA has on cycles etc….

Hi. I know google could very well answer this…. But it’s still better to hear human to human.

Since i have a very low AMH, my fear is going through IVF there is a risk of something going wrong and them damaging something while retrieving the eggs, or worse if they start taking eggs out I’ll be left with nothing or have less and less each cycle?

Google says “this is not how it works” but HOW DOES IT THEN?! They are literally removing the little eggs I have left.

I’m 28 with AMH between .5-.8 afc 5

I think my best bet is freezing embroys now and trying naturally after I’ve frozen some?

I haven’t started the process yet so most people in here from what I’m reading are going to think to themselves “goodluck” I’m sure. Please let me know :(

I don’t smoke, i eat 95% Whole Foods, exercise regularly and live a pretty healthy lifestyle.

I got diagnosed 2 months ago and did not think my social drinking in the weekends could / would affect anything.

I’m now planning on moving forward with IVF and reading people are giving up everything like caffeine, sugar, alcohol etc. did it help or change your results?

I’m only 28 so my friends are still going out and having fun every weekend. Do i need to completely cut out alcohol? Planning on retrieval next month. I have a very low AMH so i feel like i should be doing everything and anything to protect that, but I also don’t want to miss out on everything and look back thinking it’s not changing anything

Has anyone been diagnosed with this and DOR at the same time?

Hysterically cried at my diagnosis 2 months ago. Just got it rechecked and now I’m even lower. How is this possible?

I also have HA for 6+ months from underfueling and overexercising? don’t know if this would affect my numbers, but if anyone has went through both simultaneously, please let me know what you did.

This means I’m not getting a period or ovulating. My FSH is normal right now so they aren’t concerned it’s anything but an HA diagnosis.

I’m making the decision to go through IVF to bank embyros for the future. I want a big family one day and this feels like the only way to preserve my future. After that, my plan is to try naturally with the medication that will make me ovulate. I’m just so terrified of going through one retrieval and not getting promising results. I’m terrified of needles and this entire process of hormones and medications that will further worsen my screwed up situation with HA recovery 😭

Thoughts on my plan? I’m devastated and could cry writing this

Hi, I’m 28 and have low AMH and HA currently. I tend to overthink and spiral a lot and right now I’m convincing myself I’m not going to get my period back and or I’m in the midst of early menopause. Has anyone had both of these diagnosis at the same time? Can you give me insight to if you recovered and what you did?

I know my doctor will say no, but I find it hard to believe a synthetic estrogen patch is not delaying my natural cycle from coming back or throwing it off more for that matter….

Has anyone actually gotten their natural cycle back out of the blue while on the estrogen patch?

Hi

I’m on HRT (estradiol patch for 3 weeks now).

I had nothing happen for two weeks, then in this last week I had a little cervical mucus, and now I’m spotting the past two days.

I’ve increased my calories and reduced exercise substantially. Could this be a breakthrough period? Or do you think it’s just spotting from being on HRT?

I’ve been in recovery for around 6-8 weeks now.

Another note: I use the Mira tracker to see what my hormones are and my estrogen before and while on the patch has stayed very very low. I had a slight surge in FSH yesterday, from 1 to 2.7 but now it’s back down to 1. Don’t know if that means anything but if anyone has feedback I’m very open to hearing your interpretation or experience.

Hi!

This Reddit was my entire life in the thick of wedding planning. The good, the bad and the ugly it got me through.

Want to preface this by saying my wedding truly was the ABSOLUTE best day of my entire life and some of our guests even mentioned it was there’s too, so I couldn’t be happier with how things turned out.

But…….. looking back, I wish I had prioritized my health more. I slashed calories, over-exercised and over-stressed myself to DEATH in the thick of planning which I know so many of us do, and in my case it left me without a period 🫠

3 months out from my wedding I told myself I would figure it out after the wedding since that was my primary focus, but now that it’s after the wedding by 2 months and I still have not regained it I’m starting to realize I should’ve prioritized my health and wellbeing over anything else. Dealing with fertility issues post-wedding makes wedding issues seem very very small.

Please take this as a sign to focus on taking care of yourself during the process- as stressful as it can be, nothing is worth sacrificing your health so much it leaves you without a period.

PSA- if anyone has experienced this, I am accepting advice on how to recover it lol

Hi, I’m currently fighting to battles as stated in the title…

I’m undergoing AH recovery (lost my period in March of this year and still don’t have it back).

This may be too niche but did anyone else get told about their DOR in AH recovery? I’m so worried I’m going to move forward with egg freezing and my body will never get my period back because of how much I’m throwing at it hormononally (I also started an estrogen patch 2 weeks ago).

I don’t know what to do. I can’t wait to freeze obviously, but I want to try to get pregnant naturally so delaying my period coming back even more scares the hell out of me.

Fighting two battles here.

In recovery for 6 weeks, no period for 4+ months, but now I just find out i need to move forward with egg freezing because I have DOR at a younger age.

Please help - will moving forward with this be dangerous to ever getting my cycle back? I’m scared my body will go into shock from how much I’m throwing at it.

Has anyone had IVF during HA? Did your period come back after?

Hi…

Recently got the news that my AMH was very low for my age and have been getting recommended IVF / freezing embryos.

I’m terrified as I (as I’m sure most of you) did not envision this for myself, I’m so young and I don’t fully understand what I’m up against.

Has anyone been similiar age/AMH? How many rounds did you need? Success? Are you happy you chose to freeze?

My mind is spinning I need a community and support and anything you have that can help for what to expect 😭

Hi! Has anyone used Mira to test if their cycle is trending in the right direction?

Pls give me things to look out for if so :)

So besides dropping my calories low and carbs/fat, one thing in particular i fixated on right when i started to lost my period was my sugar intake.

My goal was under 25g a day. since starting recovery, i have increased my fats and carbs substantially but have refrained from increasing sugar (i just feel better without it and don’t have a crazy sweet tooth)

Saw someone post in here that they increased sugar and that helped? Any input would be great

And yes i also increased calories substantially

I lost my period around the end of March after months of dieting, high exercise, stress, and getting down to ~120 lbs at 5’5”. Since June, I’ve been actively trying to recover by increasing calories from ~1,200 to 1,600–1,800+, eating more carbs/fats, exercising less, reducing stress, and gaining ~4 lbs.

I’m working with an RE because we want to conceive. My ovaries look normal, but my uterine lining is extremely thin and my hormones have been low (AMH ~0.8, very low LH/PdG).

We first tried 3 weeks of a high-estrogen birth control pill to build my lining, but I had no withdrawal bleed and my lining was still extremely thin.

Now I’m on an estradiol patch for ~8 weeks, followed by progesterone to hopefully cause a bleed.

My biggest fear is that the estradiol patch could actually delay my natural recovery. Since external estrogen can lower FSH/LH through negative feedback, could the patch essentially tell my brain there’s enough estrogen and reduce the signals needed for my ovaries to start functioning again?

My ultimate goal isn’t just a withdrawal bleed — I want to ovulate and get my natural cycle back.

Has anyone with hypothalamic amenorrhea used an estradiol patch + progesterone during recovery? Did your natural cycle return while on it or after stopping it?