r/DOR

▲ 3 r/DOR+1 crossposts

Invention idea for Hormone measurement

So, there is a continuous glucose monitor (CGM) to track insulin resistance. Why can we not have something like this to continuously measure progesterone, estradiol, AMH, etc? When my bank account recovers, I thought about trying Oova. But seriously, it would be so awesome to just have one device and it’s a one time purchase, saving money and material resources.

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u/Certain_Internal_350 — 11 hours ago
▲ 5 r/DOR+2 crossposts

Only 2 eggs retrieved after early ovulation — heartbroken and trying to understand what went wrong

AMH: 1.1

I went into this cycle hopeful despite my low AMH, and the follicle count on monitoring actually had me feeling optimistic— I’m still processing it, but I want to turn this into something useful for my next cycle instead of just sitting in the disappointment.

Protocol: Birth control pills from cycle day 4 → stims day 9 (Letrozole 5mg, Gonal-F 300u, Menopur 150u, increased to 225u on day 3). Cetrotide 250mcg added day 4 of stims.

June 26 monitoring: Estradiol 146 pg/mL, lead follicle 20.7mm (others 17.4, 15.1, 13.6, 13.9, 9.0, 6.1, 4.8). I actually raised concern that the estradiol seemed low for that follicle count, but was told it was just the Letrozole.

June 27:
2pm : Gonal-F,
10:15pm: Dual trigger (hCG/Novarel 10,000u + Cetrotide)

June 28 evening: Hit with severe stomach pain — in hindsight, wondering if that was a sign something was already off.

June 29 retrieval: Only 2 eggs. Told I’d ovulated early.

It’s hard not to second-guess every decision along the way, especially since I did flag the estradiol issue and was reassured it was fine. Would really appreciate hearing from anyone who’s been through early ovulation or a similarly rough cycle — what did you or your doctor change afterward? What questions should I be bringing to my RE before the next round?

Thank you for reading this far — this community has been a lifeline through an otherwise isolating process. 🙏

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u/Mindful-Raccoon — 2 days ago
▲ 21 r/DOR

Esperanza

Hola chicas!! Tengo 35 años, amh baja y aborto espontáneo de 7 semanas.

Fuimos a FIV, ya que no me quedaba de manera natural y me sometí a dos estimulaciones.

En la primera punción recuperaron 3 óvulos y me aconsejaron hacer duostim, así que en la segunda punción recuperaron 5 óvulos más.

De los 8 fecundaron 7 y ayer a día 5 me llamaron para decirme que habían congelado 4 blastocitos y que 2 iban un poco más lentos pero seguían evolucionando. Hoy me han llamado a día 6 y los 2 también han llegado a blastocito!!

Nunca imaginé estar en este punto, con 6 blastocitos, así que si estás pasando por algo parecido espero que encuentres algo de esperanza.

Todavía no puedo cantar victoria, pero estoy un paso más cerca de conseguir mi sueño.

Mucho ánimo a todas!

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u/Illustrious-Set2237 — 1 day ago
▲ 5 r/DOR

Cancelled cycle #2

My first cycle was canceled after 7 nights of stims because my follicles grew too fast (21.1mm, 18.3mm, 16.8mm). Now this cycle is being canceled after 7 nights of stims because my follicles are growing too slow (9.2 6.2 and 3.1). I wish they still did an egg retrieval after the first cycle but it was "against policy". Now I am trying to convince them to let me continue stims to see if the follicles will grow but they wont budge. Am I being unreasonable? Is there some sort of policy at FCI where they cancel if numbers aren't perfect?

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u/Mammoth-Percentage-9 — 2 days ago
▲ 10 r/DOR+1 crossposts

Extra meds in North OC

I’ve been fortunate enough to have insurance cover my treatment. Thank goodness for SB729 and dual coverage. I’d like to donate all the extra meds that I picked up to someone who is still having to pay OOP. Pick up only in OC. DM me!

11 unopened boxes of Menopur (exp. 01/27 & 02/27)
10 unopened boxes of Follistim 300 IU (exp. 01/2028)
3 unopened boxes of Cetrotide (exp. 10/2026)

I just don’t have the Follistim pen or extra syringes/needles for the Menopur.

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u/Effective_Ad_6457 — 2 days ago
▲ 15 r/DOR

Devastated by DOR news

Hi everyone, just learned that I have DOR at 34yo. It hit me like a bomb, i was feeling quite well recently and couldn't imagine something is so deeply wrong with me. My current relationship are not doing well, so I'm just shocked, lost and don't know what to do. I even had some suicidal thoughts because it feels like my future is crushed.... don't know why I'm making this post, perhaps just need some community who really gets that.

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u/Longjumping-Device71 — 3 days ago
▲ 4 r/DOR

Same Protocol, Similar Results?

Hi everyone,

I am going into a second stim cycle, using the same exact protocol from the previous cycle since we got "dream" results (one euploid). I am curious how other people's results using the same protocol turned out. Did you stim about the same number of days? Did you have similar results? I know a lot is up to biology/chance, but curious what other's experiences have been. TIA!

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u/Environmental_Word18 — 2 days ago
▲ 3 r/DOR

Very short cycle after supplements introduced

Hi all, very low AMH here (tested most recently at 0.05).

I just started CoQ10, DHEA and Vitamin D only a couple weeks ago at the direction of our new fertility doctor. In the past six months I've had irregular and very long cycles –– 45 days, 36 days, etc –– but to my surprise, this cycle is quite short. Today I just got my period after 21 days.

Could it be due to the supplements? Has this happened to anyone else? Thanks so much.

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u/Fun_Succotash_1984 — 2 days ago
▲ 1 r/DOR

AMH decreased by more than half in <2 months? Please help

Hi I haven't actually been diagnosed with DOR as I have my blood work results back but haven't had a follow up with my doctor yet, I hope it is okay to post here I feel you are probably the most knowledgeable group to ask. Im 34 and my husband and I have been TTC for 19 months now and are just starting to be seen by a fertility clinic.

I am stressing myself out so much. I had CD 2-4 blood work done to investigate infertility about 2 months ago (May 4th) and numbers looked good: AMH 1.47 and FSH 6.7. Then switched fertility clinics (got a referral to one much closer to my home town) and so was asked to have blood work repeated. Did CD 2-4 again on June 29 and AMH is now 0.73 and FSH up to 17.9. All blood work was done in the same lab. I don't understand how the FSH could be less than half what it was less than 2 months ago?

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u/7Juno — 2 days ago
▲ 4 r/DOR

Clinic recommendation

Hi everyone, does anyone have recommendations for clinics abroad (I’m in Canada) or in the USA for dor. If you’re with cny, would you recommend it and which dr? If you went abroad, where did you go?

I’m wondering if there are any clinics that charge per number of eggs? I’ve tried looking for them and it’s rare. Thanks!

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u/Efficient-Carpet-199 — 3 days ago
▲ 2 r/DOR+1 crossposts

Ladies. Please let me know please what helped you the most with DOR and possible endo? My RE won't do lap as I have low AMH which I also feel as it might further lower my reserve. Which protocol and steps helped the most

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u/Recent-Caregiver1565 — 3 days ago
▲ 1 r/DOR

Letrozole

I got put on letrozole on June 23rd ( 3rd day of cycle), took it for 5 days (5mg) and had symptoms ( hot flashes, emotional, tiny headache, with some moodiness). Stopped that pill on Saturday and yesterday I had an ultrasound, found out that I’m not even close to having a follicle mature so I got put on 7.5mg yesterday. Woke up this morning to the symptoms being intense, I know the higher the dosage the more intense the symptoms can be. I wish I could take more time off work but I get the guilt trip, so here I am trying to make it through work and trying to remain cool and collected. Has anybody been put on a higher dosage back to back and if so how did you manage the symptoms? Usually if I can sleep it’s all good but I do wake up and have to throw off my blankets as I am dying and then wake up cold ( that fun never ending cycle of hot flashes). Supposed to go back on the 9th to get an ultrasound to see where I am, and doing timed intercorse. So those who have done this, how many rounds did you have to go through? I do have low AMH .15 and a blocked tube and hubby has varicocele and has been on clomid for that but just finished his round so he gave his sample and has an appointment coming up to go over the results.

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u/OpportunityDry7448 — 3 days ago
▲ 8 r/DOR

Disappointed

I guess I don’t know what I was expecting with my first round of IVF. I primed with estrogen patches/certrotide, and I’m on max dose of menopur 225 iu, and gonal f 225 iu, and then today had my cycle day 4 ultrasound. I have one 5mm follicle.

I’m taking all the vitamins, moving 10k steps daily, red light, and focusing on protein. I don’t know what else I can do, or if there is anything else I can do.

I was hoping that I would at least have more than one follicle. I’m just so disappointed with my body, and feel so defeated already.

I’m also 42, and I’ve had one loss at 15 weeks. Any advice, or tips, or anything that’s worked for you?

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u/Scary_Sport_4129 — 3 days ago
▲ 3 r/DOR+1 crossposts

AMH 1.0, 34F, Moving to IVF After 4 Failed IUIs – Looking for Success Stories and Advice

I’m 34 years old with an AMH of 1.0, and after four failed IUIs, my husband and I are moving on to IVF. I have diminished ovarian reserve (DOR), but other than that, all of my testing has been normal.
My reproductive endocrinologist plans to do:
Cycle 1: Estrogen priming
Cycle 2: Egg retrieval
Cycle 3: Frozen embryo transfer (FET), assuming we have embryos to transfer

This is all very new to me, and honestly, I’m feeling anxious about what to expect.
Right now I’m taking:

Thorne Prenatal
CoQ10 600 mg daily
Vitamin C 1000 mg
Ferrous sulfate 350 mg (for low hemoglobin)
Omega 3 with dha and epa
Acai berry 1200 mg daily

My doctor also suggested DHEA 50 mg but said it’s the least important supplement. I haven’t started it because I’ve read mixed opinions online and that it should be used with caution.

I’m also thinking about doing acupuncture once a week.

Is there anything else I can do to improve egg quality or maximize my chances? I know egg quantity is mostly determined by ovarian reserve, but I’d love to hear from anyone with a similar AMH who had IVF success. Any advice or success stories would mean a lot. ❤️

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u/Crazy_Magician7719 — 2 days ago
▲ 3 r/DOR+2 crossposts

Different AFC results on each baseline scan?

I had a baseline scan in March 3 months after coming off the pill and my AFC was 8. My AMH was .93 ng/ml (USA). Now I’ve had another one (baseline) with a different clinic 3 months later and my baseline AFC is 16. I’m waiting for a new AMH level.
Has anyone had this happen? I know it’s probably unusual to have two baseline scans to compare.
My first scan was cycle day 7 and the last one was cycle day 14.

Was about to do embryo freezing to preserve fertility at 34!

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u/Ibprofun28 — 3 days ago
▲ 8 r/DOR+1 crossposts

Rapamycin

Im starting rapamycin priming for my next ivf cycle. My ivf doctor wouldn’t prescribe it to me so I got it through a longevity dr.

I’m thinking of doing 5 mg once per week for 6-8 weeks before my next retrieval.

Has anyone experience of rapamycin?

I’m trying naturally during the summer, will it stop my ovulation? Any side effects? Do people stop or continue though stims?

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u/Total-Pickle-1346 — 4 days ago
▲ 9 r/DOR

Low fertilization rate

I just got a call from my clinic. I had my third egg retrieval yesterday. They retrieved 11 eggs and only 2 fertilized. I’m so sad , desperate, devastated you name it. I don’t know where to go from here. My clinic only freezes day 5 embryos . They don’t freeze day 3 . And I’ve done 2 failed fresh transfers in the past. The whole process is so expensive and not guaranteed . My doctor is at a conference for 10 days so I can’t even discuss anything with him. I guess I need hugs and maybe reassurance , experiences . Thank you

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u/Extension_Run_8723 — 4 days ago
▲ 4 r/DOR+1 crossposts

Low AMH… 33F losing hope

Hi lovely community. I learned the devastating news on Monday that i have a very low AMH level of 0.46 and im 33 with no partner. Unfortunately the clinic that tested me didn’t explain my results properly and im now descending into depression at the result. I have a coil in which i know can reduce the level, but the nurse just kept saying “it’s very low” and then kept pushing me to come in for a scan at additional cost without explaining what anything meant for my future. They said I wasn’t eligible for IVF or egg freezing. That’s it.

I am so scared and I feel like less of a woman. I’ve been crying on and off for days. I just need some advice/reassurance. Losing hope.

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u/aoibhin4321 — 3 days ago
▲ 1 r/DOR

Do I move forward with low AFC?

I had my baseline yesterday and only had 2 AFC on CD2. Estradiol patch + ganirelix priming threw my body completely off and caused me to get my period very early. This happened to me last cycle too. Should I not be priming?

If I move forward with this cycle, I’m going to be doing MDLF protocol this time after antagonist only produced 3 eggs - 1 matured and didn’t make to blast. Last time my AFC was 6 but it was measured on CD5. I had 1 period in between cycles.

My doctor won’t retrieve unless there are 3 synced follicles. I’m just wondering if anyone has had success producing more follicles with MDLF over baseline or if I should just wait another cycle and try again, maybe without priming?

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u/MovieLocal5594 — 4 days ago