I’ve started reaching out to friends and family and am often met with “well tell us what you need”. This often makes me shut down because I don’t have the spoons lately to think about HOW others could help. I mainly just want people to reach out or help navigate or educate. So what does the best support look for you?
Hi there! I’m officially outta med options. I’m in Portland metro, OR and am currently at Oregon Clinic GI West. They’re gonna refer me to their surgeon team but it seems they specialize in bariatric and I see no mention of GP procedures. Does anyone have any experience with them or anyone else,
Literally the title. I started a potentially life saving med and want it to work but can’t tell if I’m worse mentally or not
Ugh okay so about a month ago I was formally diagnosed with GP after 3 months of inability to eat much of anything. My doctor put me on erythromycin for 21 days to help with motility. I am currently on day 11? 12? And it stopped worked like 5 or so days ago. I’m waiting for motegrity to get here from mail pharmacy. I can’t stop puking, I am so weak I can’t brush my hair, shower, work, etc. I called my Gi and they said I was on a “comprehensive gastroparesis regimen” and didn’t believe I was that weak but if I was that they were worried about malnutrition so they sent me to the ER I wasn’t malnourished but I did have high ketones but they sent me home after fluids. I don’t see GI until mid June. I’ve lost 30lbs in 2 months and I have PCOS, that’s hard to do. My daily eating/drinking looks like trying to sip a protein shake and water in morning-afternoon. eating saltines if I can, eating very tiny amounts of bland rice and chicken if able to for dinner.
For those with partners without GP how do yall do dinners/meals together without feeling like you’re restricting your partner?