It’s been eight years. Sooooo many meds. So little time. Alternative therapies included as well as those expensive ones online that have “” coaches to help you with your food, your mindfulness, etc. etc. thousands of dollars and supplements Botox. I’m sure I’m forgetting many of the things I’ve tried so here I am today considering going back on a preventative and the only thing left in Line is ajovy or emgality. What’s everyone’s experience?
I am not trying to be insensitive here, but I am just blown away that I received a letter after repeated requests for a little bit of help once in a while that the entire situation is not good for her mental health therefore, she is cutting us off and has blocked our phones and everything. I don’t know what we did that was so wrong other than take my mother into our home and give her the best life possible. I am mostly upset for my mom and my son who is her nephew kids are resilient and eventually my mom won’t remember her anyway, but it’s still literally breaking my heart in a way that it hasn’t been broken since I was probably in college and had my first break up. I need a day or two just to process and I’m grateful that I have an aid here today to help me because I’m still lying in bed paralyzed with sadness has anyone else had this happen? I feel like it’s for the best because I’m tired of asking for help and at least now we know where we stand, but it still hurts.
Hi everybody. As I read all of the posts in here, I feel like I have it easy and have no room to really complain so I typically don’t quick background. My mother‘s husband and caregiver passed away last year and we took her in our home my husband and my 10-year-old son and our two labs. We worked out a good plan and it had been going well for about six months. I noticed in the evenings that she was getting agitated and being mean to my son, my husband and any evening help we are able to get (for which we are so blessed and grateful). It was sporadic so I just let her doctor know and her doctor gave me some medication to put her on which I held off because I wanted to see if it did get worse or it was just an isolated incident. Last night it got really bad to the point of she screamed at my son and then she told me if she was his mother. Things would be a lot different around here. Well, she’s not wrong because her son is a giant POS and while I usually have compassion and I never go there last night, just set me off. I went to church this morning and cried through the whole mass. The pill really knocked her out and now she is just in a stupor this morning. I’m really struggling because I cannot have this every night with a 10-year-old boy if it were just my husband and I that’s one thing but this is a whole new level.
Can we talk about Caregiver shaming for a minute? I see a lot of people posting on here about outsiders who are not boots on the grounds, giving their opinions, comments, etc. I’ve gotten to the point where I don’t even get mad at it anymore because I need to protect myself and my family from external judgment we and only we know what we go through every day and external comments need to be taken with a grain of salt to the best of our ability because they just don’t know any better. Saying that and living that are obviously two different things as you all know I believe it’s just natural human nature to want to help in a certain way and people giving their opinion is their way of helping at the end of the day. It’s only me my husband and our child who know how hard it is on all of us and we need to bond together and not turn on each other.