u/Krogermuffins1999

She obviously goes crazy, so I’m thinking she stays there forever, between nothing to go home to, and they prob won’t let her ever leave

And did they help?

7 months of daily hell. Round of rifamaxin, augmentin, and then metronidazole.
The third seems to help the most. Symptoms reduced but not gone.
I’ve seen 3 doctors.
The first one just wants me to take atranil and has no idea what to do with me. I’m done with her. Won’t retest to see how much methane persists.

Second one was convinced it’s IBS and doesn’t want to retest or even test my motility. Seeing her again on June 16 but not hopeful she can help.

Third doc walks in and says basically rifamaxin and neomycin is the only way, then proceeds to also say it’s prob IBS and confused me even more by just jumping all over the place, giving me Voquenza acid blocker and suggesting acupuncture. Also won’t retest and tells me breath tests aren’t even accurate.

I’ve had it.

Yesterday I truly thought I may have finally beaten this and felt normal for the first time in 7 months.

But I’m still low FODMAP and didn’t eat all day.

Ate dinner at 5 pm and it’s 226 the next day and I’m still sick .

First doc says stay low FODMAP and take atranil,

No other advice of follow up.

Can anyone tell me if atranil can help or if I should take S boulardi? Can you do both?

I don’t know what to do anymore.

When she gets into her childhood home and goes in, sees her moms plants and touches the soil, feeling they have been watered. Had a little smile..
was it just because that meant her mom was still there? Trying to figure that one out. Maybe it means nothing.
This death scene has been destroying me for days

Saw something about it along with black seed oil but I’m always afraid to take anything to make things worse

It’s been 220 straight days of feeling almost constantly sick. Not a single day has gone by without sickness, stomach distress, pain and all the rest of it.
It has stolen my joy, my zest for life, my passion for things I’ve always loved. It’s stolen my social life, date nights, the joy of food, eating at a new exciting place.
It has stolen my comfort and coziness, it’s stolen my calm.
It’s dysregulated my already frazzled nervous system, left me in full time fight or flight, constant discomfort and scanning for symptoms, monitoring them, trying to brace through them, trying to find cures, scanning the internet when doctors leave me in the cold.

It’s replaced all moments of comfort with anxiety, panic attacks, exhaustion, fear and dread.
It’s stolen my excitement for my seasonal business because I don’t even know how I’m going to work long hours at festivals.

It’s stolen my faith in doctors. It stole my entire winter and now looks to be ready to steal my entire summer.
It’s made my panic disorder and agoraphobia return with a vengeance.

220 days of feeling like I have a constant stomach virus.

I don’t know how I’m going to continue to live this way if the next thing I try doesn’t work.

Please tell me anything you know about this protocol.
3 rounds of meds aren’t doing it.
It’s $759 for the two week and I’m about desperate enough to try this. However I’m scared.

If it tastes vile I’ll never be able to even attempt it.

Even if it tastes great I’m unsure I can do two weeks of liquid.

I’m barely eating now , so I’m willing to try this, but is there anything I should know?
Side effects, taste, struggles.. all of it.

And most importantly.. did it work?!

Methane dominant

The doctor I was working with seemed at a loss at what to do after two rounds of meds. She gave me a third round.

So far it was rifamaxin, augmentin and flagyl.

All three seemed to possibly help the hydrogen but are not getting the methane.

I’ve been VERY sick for 7 months. I’m not just like people in here with a bloating photo or some minor shit.. I’ve been debilitated by this. Sick 24/7 in my stomach.: for every single minute of the last 7 months.

After my doctor seemed at a loss, had no compassion for me as I was hysterical crying in desperation in her office and told me to try acupuncture , I got a second opinion.

She was nicer and listened to me .. however she didn’t think this could all be from SIBO.

She told me to go off the meds and I should stop eating low FODMAP. Umm if I’m this sick on FODMAP what would I be like off

She said it’s possibly IBS and mentioned meds for that . I don’t think it sounds like I have IBS .. but okay.

Got an enterography MRI yesterday and everything is normal. Everything was normal on cat scan and every other test except SIBO.

So now I have two doctors and a positive methane dominant SIBO test and two doctors that don’t know what to do with it.

All tests are normal except the SIBO breath test and they want to say acupuncture and IBS

I am at wits and.

My life has been destroyed by this, along with my mental health.

Has anyone found any low FODMAP soup? My stomach is sick and I want soup so badly

I’ve been in here a bit, and everything else I’ve learned or seen about this seems not the same as me, and I need to know if anyone else is living.
my reality.

Since January there has maybe been 60 minutes of my existence where my stomach did not feel distressed or in turmoil.

I see so many in here complaint that SIBO caused bloating . Okay mine does too but that’s the least of my issues. I wish that was my biggest problem .

I feel like no one , even my doctor is not understanding that I feel consistently sick at ALL TIMES. My only peace is sleep.

Everyone stares at me and doesn’t know what to say.

My doctor, I’m getting a second opinion next week.. because the other day I was in her office hysterically crying saying help me.. I feel sick at ALL TIMES. And she has NO suggestions, no words of comfort, no suggestion for things to settle my stomach while being treated. Nothing!!and no plan of this third med is only a partial response .

It’s not just after I eat , and have a BM.. yes those times are when it’s the worst.. but the second I open my eyes till the time i close them , I am experiencing stomach distress, gurgling, gas, rumbling, nausea, turmoil.

I don’t look sick. I try my best to ignore it and continue my life. So people dismiss it as it must not be true. Or it’s not that bad.

Some days I don’t get out of bed. Some days i just cry

6 months of relentless stomach sickness and no one can help.

Here’s what I’ve done so far

Rifamaxin
Augmentin
Started flagyl yesterday.

Getting an enteropgtaohy MRI next week.

Methane dominant.

Had partial responses from meds. Felt much better on them, more moments of peace But it’s far from gone.

Low FODMAP strictly since Jan

MiraLAX daily for motility.

But seriously is anyone else sick ALLTHE TIME? I feel very alone because I don’t see anyone else saying this .

I feel like I am screaming into the void and if said I was in 10/10 pain constantly, I’d get help.

Saying I’m 10/0 sick at all times has been met with zero response or even empathy from anyone. And because I’m not bedridden daily, like they think I’m exaggerating.

I’ve seriously gotten more help from chat gpt than my doctor.

Even my primary seemed stumped.

Season one, Nate was a complete sociopath. And Jacob played the part so well, I really hated the character .. and something about him gives me the creeps, badly.

Even when I see Jacob as himself, I have trouble separating him from Nate. Which I guess is the sign of a good actor .. but he has such dark energy to me .

It reminds me a lot of American Psycho.

Anyway, the Nate that pretended to be Tyler and then I seriously thought he was going to drown Jules that night at the park, the Nate that held the gun to Maddie, choked Maddie, beat the fuck out of the guy Maddie fucks in the pool and pretended it was rape.

So many things about Nate were too dark for me to see , oh look at how they have made Nate a sweet guy in love now.

A guy who would give in to Cassie about everything, dance that cringe rehearsed dance, tell her he’s going to carry her inside to “make love”.

Everything about Nate still screams dark energy psycho to me, and I can’t stomach him.

Anyone else?