u/LimeTough9746

I am so hopeless, and in so much pain.

How much mg has worked for you and what time do you usually take it.

Please suggest a good youtube channel for pelvic floor muscles PT. I think I have hypertonic pelvic tension and need to relax my muscles.

I am 24(F) and been struggling with IC since a 17 year old. There have been good and worst days throughout. I used to be quite toned but now I have gained weight which isn’t alot but I do feel like I need to be better. Any suggestions for getting better? I can’t do intense cardio and movement during flare is impossible.

Please guide on the side effects, especially kidney related.

I can’t pee during flares until I pee 2 litres of water and the pee will come out. I am so done with this. I really can not survive this. It’s so bad.

I am moving to UK for my masters. I have been delaying this for a year but now after a scholarship and so much suffering, I have planned to continue my studies. I need to travel there in the end of September. However, major concern is my medicines and I will pack a lot of medicines from my country. I just want to know if someone has been in the same situation as me. Please I need to hear good stories rn!

i do not have frequency and urgency at all (thanking god for it), however, I do have urinary retention alot. I take medicines for that and IC seems to be fine with that. Also, when retention occurs, I drink alot of water and then eventually I pee alot and it gets better and even the burning goes away.
However, If I ever want to take a wee voluntarily without my body asking me to do so, then it’s actually like peeing needles and burns. I am not sure what it is and doctors have been useless. I was prescribed medications that caused urinary retention and I stopped those immediately!

How much did you guys start in the beginning and for someone whose country is the shittiest- is it okay if I begin with my local option? I need real and genuine reviews.

I want to hear people who went into remission or maybe cured themselves. I need hope.

I can’t pee if I don’t drink enough water that means 7 litres and if it is not consumed right after peeing, my urethra is on fire. I can do whatever and however, the moment the water intake is a little less:boom, flare is waiting for me. The doctor tells me to drink less but I can’t because it genuinely burns and impossible to pee.

Just because i drank less water- it will start burning so fucking bad! Why!!!! I am doing everything out there. Every single thing but this just doesn’t want to end. I hate this disease. I hate it so much.

Hi, been a while as my pms symptoms are changing too. My vagina burns before periods, it is quite uncomfortable and the blood coming out is brown liquid. Later, after one day, it becomes quite normal and the burning is gone. Is this normal? This all started after I got my tooth out and this started. I am not sure if it’s normal :/

I have heard different experiences about how orgasms cause a flare-up. It’s quite different in my case, it helps me relax and untie my urine retention. I haven’t had sex but I want to hear everyone’s experiences.

People have frequently reported that their IC has gotten better with antibiotics. Long-use of antibiotics but on the urine culture there is no bacteria. I was prescribed antibiotics for acne and I kept taking it for a long time. I wasn’t aware it is an antibiotic because the prescription would allow me to buy it. It did not help my acne but did wonders for my IC.

Hi, I have been suffering with IC but I think I have been misdiagnosed.

In 2022, I burned for 6 months straight without any relief. Upon cystoscopy, the urethra showed a stricture and biopsy showed chronic cystitis, other than that, the doctors didn’t see any visible signs of IC. I still believe I do not have IC because my symptoms are just related to my drinking water cycle. After I pee I have to drink 1.5 litres of water and pee will come with a good pressure that means I have no pain, nothing. However, it gets worse if my water intake goes from 1.5 to 1 litres. It will burn and I can see low pee pressure. I am currently on Tamsulsoin and it helps. But I feel like it’s a muscle issue rather than bladder lining. I am genuinely concerned and need advice from people. I have been to 30+ doctors in the span of 5 years. Also, I have a history of UTIs which started with an infection every 4 months. I still get UTIs. Either it’s a muscle blockage or parasite colony inside my bladder. I NEED HELP!!!