u/LizEllyn

I am genuinely confused lol. Growing up Mormon as a child, as a youth, a YSA it was quite literally doctrine to not get a tattoo, not get piercings (and how dare you for even thinking it) but I was curious and went to read the ‘For the Strength of Youth’ and it’s all… gone…

When I got my first ear piercing that wasn’t my lobes, my mom flipped out at me. She was so mad. I was 26. I felt like a terrible daughter and she used the whole ‘it’s against the commandments’ stuff. Thing is, I’d love a tattoo or an eyebrow piercing but there’s no way… absolutely no way she’d ever let me or would forgive me if I did. Worst part? I’m 30 years old. But if it’s not there anymore… has the doctrine changed? Have I missed something?

Just a bit of an NHS neurology rant because I feel like I’m losing my mind a little.

I had a neurology appointment in March for episodes of visual changes, zoning out and jerking movements. The neurologist arranged an EEG plus MRI brain/cervical/thoracic spine and advised me not to drive while investigations were ongoing.

I had the EEG weeks ago and spent ages trying to get results because nobody seemed to know where they were. I called multiple departments, neurophysiology told me to contact neurology, neurology was difficult to get through to, GP was vague, and it felt like complete admin chaos.

I ended up contacting PALS who were lovely and confirmed the report existed and there was just a backlog.

I then realised there was an addendum on my neurology letter in the NHS app that I had completely missed because I never got a notification for it. I only found it after chasing my GP.

I still haven’t had any MRI appointments or a follow-up clinic appointment booked, so I’m now just stuck in that awkward waiting stage feeling confused and anxious.

I know NHS waiting times are long and I do have health anxiety, so I know part of this is probably me overthinking, but I think the lack of communication has been the hardest part.

Just a bit of an NHS neurology rant because I feel like I’m losing my mind a little.

I had a neurology appointment in March for episodes of visual changes, zoning out, and jerking/myoclonic-type movements. Neurologist found very brisk reflexes/clonus, told me not to drive, and ordered an EEG plus MRI brain/cervical/thoracic spine.

I had the EEG weeks ago and during photic stimulation it actually triggered the jerking, so I’ve been really anxious waiting for results. I kept chasing neurology and getting nowhere, called multiple departments, nobody seemed to know who was dealing with it, neurophysiology told me to contact neurology, neurology was impossible to get through to, GP was vague, whole thing felt like admin chaos.

I ended up contacting PALS who were actually lovely and they said the report existed and there was just a backlog typing it up.

Then after chasing my GP again, I realised there was actually an addendum on my neurology letter in the NHS app that I had completely missed because I never got a notification for it. It basically says no evidence of predisposition to epilepsy on EEG, jerks were seen during the EEG but with no EEG changes, and they’ll discuss it at follow-up.

Which is helpful… except I don’t actually have a follow-up booked. Or MRI appointments. So now I’m just sat here wondering what happens next and whether they still plan to investigate or if I’m just being dramatic.

I know I probably sound impatient and I do have health anxiety, so part of me keeps thinking I’m making all of this bigger than it is. But when you’re told not to drive and symptoms are still happening, it’s hard not to spiral a bit.

I think the worst part is not even the symptoms, it’s the uncertainty and feeling like you have to become your own admin department just to find out what’s going on.

Has anyone else had neurology/MRI follow-up take this long? Or had EEG jerks with no EEG changes and still needed further investigation?