I’m compiling a list of items that will help aid, comfort and tolerate the radiation and the recovery.
I’ve got non-HPV SCC. Left tonsil. No spread anywhere else detected.
Any hints, tips, tricks and items you used to make this more tolerable is very much appreciated.
Stage 2 tonsil cancer, treatment starting soon — what items actually helped your recovery/comfort that you wish you’d known about sooner? Just diagnosed with stage 2 tonsil cancer. PET scan came back clean everywhere else, so feeling relatively fortunate on that front. Getting ready to start treatment and want to stock up ahead of time. For those who’ve been through tonsil/oropharyngeal cancer treatment — what items made a real difference for you? Especially interested in: ∙ Anything that helped with mouth/throat pain or dry mouth ∙ Foods or drinks that were actually tolerable when swallowing got hard ∙ Products that helped with taste changes ∙ Comfort items for the fatigue/rough days ∙ Anything for skin care if you had radiation ∙ Small things nobody warns you about that you wish you’d bought in advance Trying to get ahead of it now while I still feel mostly normal. Appreciate any advice — thanks in advance.
Going to Australia and need to keep the trimix cold. What do you use on long trips. Anyone use an external battery powered one?
Recommendations appreciated.
T1-2 tonsillar cancer, HPV-negative — oncologist recommending definitive radiation (6 wks, 5x/week) over surgery despite clean PET. Anyone been through similar?
Looking to connect with others who’ve walked a similar path before I start treatment. Diagnosis: Primary tumor ~3cm, left tonsillar pillar. HPV-negative (p16-negative). PET/CT findings: Primary tumor showed SUV max of 10.0. Otherwise completely clean — no FDG-avid cervical lymph nodes, no mediastinal/hilar nodes, no chest/abdominal/pelvic uptake, no osseous involvement. Whole-body scan, vertex to toes, clear except the primary site. Initial hope: Given the clean nodal picture, I was hoping to be a candidate for TORS, ideally without neck dissection and without needing anything adjuvant afterward. Oncologist’s recommendation: Definitive radiation therapy, 6 weeks/5 days a week, rather than surgery. He was clear that surgical removal of the primary alone wouldn’t be adequate treatment for my case, even with clean imaging — his reasoning centered on PET’s limits in detecting microscopic/occult disease, and the different risk profile that comes with HPV-negative status compared to HPV-positive oropharyngeal cancers. Current step: Getting fitted for the immobilization mask and going through dental clearance before starting. What I’d love input on: ∙ If you had a similar profile (HPV-negative, early T-stage, node-negative on imaging) — did your team also go straight to definitive RT rather than surgery ± neck dissection? ∙ Was concurrent chemo added to your radiation, or RT alone? ∙ How did the 6 weeks actually go week-by-week — when did side effects (mucositis, fatigue, hoarseness) really kick in for you? ∙ Anything that helped you get through it, or anything you wish you’d known going in? Thanks in advance for sharing — this sub has been a great resource just from reading past posts.
T1-2N0 tonsillar cancer — clean PET scan, hoping for TORS-only. Realistic? Got my PET scan results back. Good news first: ∙ Primary tumor: 3cm, left tonsillar pillar, max SUV 10.0 (metabolically active, as expected for cancer) ∙ No FDG-avid cervical lymph nodes anywhere — no nodal involvement detected in the neck ∙ No abnormal activity in the lungs, no mediastinal or hilar nodes — no chest spread ∙ No abnormal uptake in the abdomen or pelvis ∙ No abnormal bone uptake — no bone spread ∙ No additional FDG-avid lesions anywhere in the body — whole-body scan, vertex to toes, clean everywhere except the primary site Meeting with my oncologist Thursday. Hoping I’m a candidate for TORS (transoral robotic surgery) alone, without needing adjuvant radiation/chemo afterward. Is that realistic if margins come back clean? What determined it for those of you who went TORS-only vs. TORS + adjuvant treatment? Radical tonsillectomy? Would love to hear from anyone who’s been through this.
T1-2N0 tonsillar cancer — clean PET scan, hoping for TORS-only. Realistic? Got my PET scan results back.
Good news first: ∙ Primary tumor: 3cm, left tonsillar pillar, max SUV 10.0 (metabolically active, as expected for cancer) ∙ No FDG-avid cervical lymph nodes anywhere — no nodal involvement detected in the neck ∙ No abnormal activity in the lungs, no mediastinal or hilar nodes — no chest spread ∙ No abnormal uptake in the abdomen or pelvis ∙ No abnormal bone uptake — no bone spread ∙ No additional FDG-avid lesions anywhere in the body — whole-body scan, vertex to toes, clean everywhere except the primary site Meeting with my oncologist Thursday. Hoping I’m a candidate for TORS (transoral robotic surgery) alone, without needing adjuvant radiation/chemo afterward. Is that realistic if margins come back clean? What determined it for those of you who went TORS-only vs. TORS + adjuvant treatment? Would love to hear from anyone who’s been through this.
I’m 64 year-old male in good health, not overweight no other conditions recently had a scan of my tonsil that have been inflamed several times in the past year. They tried antibiotics and it would be really sore to swallow and eventually subside. I started having the feeling that I had something stuck in my throat, a foreign body sensation and the ENT did a CT scan that showed no mass in the tonsil. Then they did a biopsy of it and I’ve been told that I have a squamous cell basaloid cancer in my tonsil, they want to do a PET scan which I did yesterday and they want me to contact an oncologist and I have an appointment next week.
They also have said that my cancer is HPV negative (the only time I’ve ever wanted a sexually transmitted disease)🤣
I’ve never smoked, rarely drink, have had no environmental exposures, no GERD, nothing that I can attach as a root cause other than shitty luck.
First of all. Tell me what I need to know about this, they said that the first line of treatment is radiation probably six weeks five days a week. Maybe a little chemo.
I’m wondering if TORS surgery would be better because from what I read the radiation is excruciating and chick full of other complications, some of which are long lasting and at various degrees debilitating. Any thoughts?
I’m nervous and pissed off in equal measure.
Please share your experiences and wisdom. Thanks in advance!
No swollen lymph nodes and no other symptoms. Any advice on what’s to come is appreciated.
I’ve been trying to find the right dosage to achieve the sweet spot of erection quality and erection duration.
I’m on T105. Pretty consistently onset regardless of dose (I started at 3 and gradually went up to today’s of 9 units).
I can feel it start to work at about 5 minutes in and it’s a pretty solid 8.5 to 9 in hardness at 10 minutes.
15 minutes of foreplay it stayed pretty hard. PIV for about 10 minutes then ejaculation. Could easily last longer but this was a quickie before she left.
Once I came, I could feel it going down pretty quickly. Chubby for another few minutes then just full after.
My quest is to find a formulation or dosage or both that will give me that 10 out of 10 rock hard dick that will last 1.5 hours or more and stay hard after ejaculation if stimulation is present.
Am I chasing the unobtainable? Is there a formulation I should be on to achieve this or should I keep nudging the dose up in small increment to find “the perfect dose”.
Thanks in advance guys!
Home alone tomorrow and can’t wait to get this party started. I have mild to moderate, traditional ED meds work sometimes and don’t work others. I get into that “I hope it will it get hard, it’s hard, don’t let it get soft” loop so psychological ED.
Should I start at 5 units of T105 or lower?