u/Long_Consequence611

I had my excision surgery in February and have felt bounds better. Unfortunately found yesterday that one of my best friends who I consider like a sibling to me was just diagnosed with endo. They know surgery is the way to go, but cannot find any surgeons near them. I can’t find them either!

There are no surgeons for endo located in New Mexico on the endo doctor map on the sub. I’m extremely baffled I can’t find anything. Please help if you have recommendations 😭🙏 I want to give them the best chance they have I care for them so much

My ER was 19 days ago. My period has been around over a week now 😭 Is it supposed to be this long? I’m sick of pads.

I’ve had lifelong pelvic floor issues (my doctor attributes to endo I had in my uterosacral ligaments as well as vestibulodynia which is now treated). I’ve had a lot of issues in pelvic floor even prior to my lap even though it improved a lot. Years of normal internal pelvic PT hasn’t really helped. I’m curious if anyone on here has had Endo in the same uterosacral area and has this issue as well and found something helped them. Sex is so uncomfortable, my stomach is always in knots. Inner thigh and clitoral pain makes no sense. Surely I’m not the only one, right? 😭

My history is long and I’m going to try and find a way to say it all as succinctly as possible.

- (2017) Diagnosed with vaginismus at 17 and did PT with dilators for months with no change (couldn’t go past size 1). Thought to have IBS-C, but we all agreed it was a comorbidity.

- (2023) Went to sexual therapy for a year to find if any of this is related to trauma. Doctor clears me and says it is most likely physical.

- (2024-2025) Diagnosed with congenital neuroproliferative vestibulodynia at 24 and had a vestibulectomy. Diagnosed with supposed Pudendal Neuralgia. Got nerve blocks every few months until the last one made me have a major allergic reaction and my throat closed up. Proceeded with a new PT with dilators with less entrance pain, but still inner pain felt in vagina, thighs, and back.

- (early 2026) Diagnosed with endometriosis and had endometriosis excision surgery. Lots of pelvic pain goes away, but still have inner thigh pain on left side that feels like a burning rope pulling. Clitoral stim feels like nothing, but still improved from how nauseating it was to touch before.

- (mid 2026) Diagnosed with endometrioid adenocarcinoma grade 1 which, as of now, has improved and is now atypical hyperplasia. Pelvic pain still persists. Doctors do not know where to send me apart from the usual “go to pelvic PT”.

At this point, I’m at a lot. I’ve had so much internal work done. Touch doesn’t hurt, I don’t fear sex, I just know it will hurt and probably do terrible damage if I try. I can’t feel sexual stimulation clitorally or anywhere near my pelvis. I just want to be able to at least have sex so I can date and find a partner. I’m only 26, but I’m so lonely. I feel so inhuman.

I’m not a hopeless person, as you’ve probably assumed. I know there’s help out there, but I have to believe there’s more help I can get than simply going to PT with internal muscle work. Should I seek myofascial? Dry needling? Biofeedback? I don’t know where to go PLEASE help if you have a similar experience. My current doctors are at a loss.

I had the usual constipation, gas, and cramping post ER. I know that’s expected and it mostly went away. I’m officially a week post op now and I thought I’d be in the clear, but suddenly had an accident and had to dispose of nice underwear. Is this normal? God, I don’t know what to do. It feels like I can’t predict what’s going to happen to me, but it’s not close enough to OHSS to warrant asking my nurse.

I had the usual constipation, gas, and cramping post ER. I know that’s expected and it mostly went away. I’m officially a week post op now and I thought I’d be in the clear, but suddenly had an accident and had to dispose of nice underwear. Is this normal? God, I don’t know what to do. It feels like I can’t predict what’s going to happen to me, but it’s not close enough to OHSS to warrant asking my nurse.

I’m 4 days out of surgery and I wish I wasn’t stressed by this, but I was unable to get my FDA and STI testing done until a day after surgery. My clinic has a seven day limit for receiving it or my eggs will be thrown away. I’m so lost. I was told LabCorp sent them out after I had the blood and urine draw on Tuesday and I need them by next Monday. It’s Thursday now, I haven’t heard ANYTHING. How is this rational of a thing for my clinic to do?

You’re telling me I go through all of this with the stims and the triggers and the surgery and the post ER pain all to be told that if someone test I can’t even TRACK doesn’t arrive, ALL MY EGGS will be discarded. I had 22 received and 19 frozen. I didn’t qualify for grants so I paid over $10k out of pocket for this. I have Uterine Cancer and I’m already beyond chronic stress. How can my clinic just tell me ad nauseam to message MyChart when I’m at the point of tears at the idea of losing all progress??? 😭 I’m deeply paranoid and in pain post op. I don’t know what to do.

Probably a common question, but any tips and tricks for post op? I felt incredible after retrieval, but it’s gone downhill after I went home for a few hours. I wonder if Gas X can help or something. Bloating is SO awful 😭

My estradiol levels were only about 2,400 when I had them checked in the morning, but I feel really dizzy and it won’t go away. Eating doesn’t help, drinks aren’t helping. I have a nurse coming to do my triggers for me tonight and I’m worried it’s going to make it worse for me. I’ve reached out to my nurse, but I don’t know what to do in the meantime. Is this common?

I’m set to get the trigger on Saturday and I want to minimize as much pain as possible 😭 my clinic hasn’t offered any numbing so I just asked, but I am scared of the pain.

I’m a skin and bones person with pelvic floor dysfunction and already have tight pelvic/hip/gluteus muscles due to endometriosis and trauma. I’m worried about how it will feel going intramuscular. Please, if you have any advice, I’m going off the walls.

I don’t know what angers me more—my raging hormones, my exhaustion, having to wake up before the crack of dawn to inject myself, or the pain of flicking plastic until bubbles pop. It’s 8:30 and I’ve barely slept two days and wanted to sleep in today because I finally didn’t have a morning TVU, but the cetrotide got screwed up so I had to try again an hour later. Now no one wants to go back to sleep. GOD I am so tired.