▲ 3 r/Lyme

LDN 1mg

Has anyone had a positive experience with low-dose naltrexone in relation to fatigue or fibromyalgia like symptoms? I understand this doesn’t treat lime, but I’m wondering if this has had any positive effect on your functional capacity

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▲ 3 r/Lyme

Lyme and mental health

Did anyone end up on an SSRI due to Lyme symptoms and change of quality of life? I’m grateful to be able to do minimal errands and care for myself around the house. On bad days, I do spend most of my time
In bed. I can’t work out anymore which was always my outlet for my health anxiety. I cry on and off pretty much all day everyday, and I don’t really see this ending. My LLMD recommended 5mg Lexapro even before my Lyme diagnosis because of how anxious I was during my apt. How is everyone dealing? Do you still believe you can heal? I am approaching my 1 year mark of being sick and it is disheartening.

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u/Longjumping-Guess264 — 4 days ago
▲ 6 r/lymedisease+1 crossposts

Minocycline/ neuropathy

Did anyone notice an increased burning in feet/lower legs a few weeks into minocycline? I can’t tell if it’s a side effect of the medication or just the Lyme itself.

I am positive for Lyme and IND for Bartonella. My symptoms have been primarily burning tingling sensations, weakness sensations to where I can’t work out and have limited activity, brain fog, fatigue, increased anxiety and cry very easily and all the time but mostly due to fear and stress over symptoms

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u/Longjumping-Guess264 — 5 days ago
▲ 4 r/u_Longjumping-Guess264+2 crossposts

Burning muscles and weakness

I was diagnosed with Lyme disease in April, but I believe my symptoms started last September and became much worse in November.

One of my earliest symptoms was tingling in my legs. Since then, I’ve developed significant weakness and burning in my muscles. If I try to do a squat or lunge, my thighs start burning almost immediately, and my muscles fatigue within seconds. Walking up stairs causes the same burning sensation.

Before this, I walked 15,000 steps a day and lifted weights regularly. Within about a month, I went from being very active to barely being able to squat my own body weight.
Has anyone else experienced this? Does it sound more like Lyme-related neuropathy, small fiber neuropathy, or something else? I don’t see many people describing this specific type of immediate muscle burning, so I’m curious if anyone can relate.

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u/Longjumping-Guess264 — 30 days ago

I have had debilitating muscle and body fatigue for the last five months. My body does not have tolerance for even daily activities let alone working out. Before this, I was extremely active going to the gym four times a week and walking my dog at least 2 miles every day. I’ve been tested for everything under the sun, and the only positive that came back is lime disease.

Does anything come up for anyone that something is being missed and that this rash is something different than lime? I am not responding to antibiotics and have had zero improvement.

u/Longjumping-Guess264 — 4 months ago
▲ 4 r/lymedisease+1 crossposts

My primary symptoms have been on going activity intolerance and ME/CFS like symptoms. I’ve been tested for every autoimmune under the sun and everything is normal. The only positive markers I got were for Lyme.

I am now working with a LLMD to treat Lyme and some coinfections. I completed 30 days of doxycycline with my primary with no improvement.

Has anyone dealt with chronic fatigue and their main symptoms and have you healed? I haven’t been able to live life normally for 6 months.

u/Longjumping-Guess264 — 4 months ago