u/Lost_Salamander1204

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I'm looking for a bit of advice and support regarding side effects and starting spirolactone. Please can you let me know your side effects experiences? How bad was it? How quickly did it improve? Was it worth it?

After being gaslighted by doctors for the past 3 years I'm really struggling with health anxiety. I've now been diagnosed with reactive hypoglycaemia, nccah and heds. Being dismissed about my symptoms for so long means that if I feel dizzy, breathless or woozy/faint it often triggers a panic attack.

I tried to start my spirolactone medication for hirsutism and hair loss last week, I took only one tablet and felt awful the next day which was freaking me out big time. I was still recovering from a bad cold that might have been covid so I don't know if that exacerbated it but I didn't take anymore tablets after that. I felt dizzy and faint, and had really bad nausea. I barely ate for three days as my stomach wouldn't stop churning. I was also really sleepy. I spent the next 5 days feeling like my blood sugar kept dropping and have had random bouts of wooziness and nausea.

I feel alright now and I'm not sure if some of these symptoms were covid or just anxiety. I was also really stressed that week as work was mental and im in the last 2 weeks of my masters degree. I'm not on hydrocortisone for the nccah. My endo seems to think I only have cosmetic symptoms.

I really want to get a handle on this because my hair situation is really awful, but I need to mentally get through the side effects without having panic attacks all day.

Thank you!

I'm looking for a bit of advice and support regarding side effects and starting spirolactone.

After being gaslighted by doctors for the past 3 years I'm really struggling with health anxiety. I've now been diagnosed with reactive hypoglycaemia, nccah and heds. Being dismissed about my symptoms for so long means that if I feel dizzy, breathless or woozy/faint it often triggers a panic attack.

I tried to start my spirolactone medication for hirsutism and hair loss last week, I took only one tablet and felt awful the next day which was freaking me out big time. I was still recovering from a bad cold that might have been covid so I don't know if that exacerbated it but I didn't take anymore tablets after that. I felt dizzy and faint, and had really bad nausea. I barely ate for three days as my stomach wouldn't stop churning. I was also really sleepy. I spent the next 5 days feeling like my blood sugar kept dropping and have had random bouts of wooziness and nausea.

I feel alright now and I'm not sure if some of these symptoms were covid or just anxiety. I was also really stressed that week as work was mental and im in the last 2 weeks of my masters degree. I'm not on hydrocortisone for the nccah. My endo seems to think I only have cosmetic symptoms.

I really want to get a handle on this because my hair situation is really awful, but I need to mentally get through the side effects without having panic attacks all day.

Please can you let me know your side effects experiences? How bad was it? How quickly did it improve? Was it worth it?

Thank you!

I've been struggling for a while with what has been assumed to be panic attacks (despite me insisting it's not), whilst also battling hair loss to my scalp and hirsutism everywhere else. I've had it confirmed today that I have nccah and reactive hypoglycaemia. I feel vindicated but also a bit shocked and scared.

I was diagnosed with heds last year but they never did a genetic test. I've seen that nccah is linked with cleds. I'm now questioning my diagnosis but am not sure I meet the criteria for cleds. I didn't feel like my symptoms were severe enough for a rare type.

Does anyone else in the eds community have these conditions? How have you found managing them? Do you have heds or a rare type?