Has anyone had success at a specialized PsA clinic after failing many treatments?
I’ve had psoriatic arthritis for 12 years and have tried Humira, Cosentyx, Tremfya, Otezla, methotrexate, Rinvoq, Xeljanz, Simponi, Stelara, and Remicade with cyclosporine. Some helped temporarily to a decent level (max 70-80% normality), but I’ve never reached remission, and several stopped working or caused side effects.
My biggest issues now are widespread enthesitis and axial symptoms. I’m wondering whether a dedicated PsA clinic might offer a more comprehensive assessment or spot something that a regular rheumatology practice has missed.
Has anyone been treated at a specialized clinic such as the UHN Psoriatic Arthritis Clinic at Toronto Western Hospital, or a similar academic PsA center?
I’d especially like to hear from people who:
- Had already failed many biologics or other medications
- Struggled mainly with enthesitis or axial symptoms
- Received a different diagnosis, treatment strategy, imaging, or combination therapy
- Finally improved after being considered a difficult or treatment-resistant case
Did the specialty clinic do anything meaningfully different? Was it worth the referral and wait? If you attended the UHN clinic specifically, what was your experience like?