Plaquenil: how long before you saw improvement?

At the 6 week mark now. Wondering if it'll be another week, a month... everyone's different, I know. I'm just tired of these swollen joints and trying to hold out hope for relief.

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u/Major-Radio-5082 — 3 days ago

Mid foot swelling

Does anyone else have really bad midfoot swelling? Nothing else is swollen... I mean besides the bases of my toes. Like my ankles are normal. None of my shoes fit because of this. I've been on plaquenil for almost a month now, but I know it takes a few months to see a difference. If you deal with this, how long before the meds kicked in to make it subside? Did the meds make it subside? RA is so uncomfortable. I hate this for us.

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u/Major-Radio-5082 — 21 days ago
▲ 1 r/iih

Starting the diagnostic process

Please tell me how your spinal tap went and what to expect. This just freaks me out.

Weight loss is difficult as I was just diagnosed with RA too, so my whole body is just not cooperating with me lately. Anyone take Ozempic to help with this? It was mentioned though I am not a big fan of that either.

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u/Major-Radio-5082 — 1 month ago

Med interactions?

My new rheum just prescribed plaquenil today + I already take amitriptyline for nerve pain... neither the doctor OR pharmacist mentioned there is a major interaction.

Both are closed right now.

Per google- "Heart Rhythm Complications: Both drugs can cause QT interval prolongation and QRS widening. This can trigger a dangerous, rapid form of ventricular tachycardia called Torsades de pointes, leading to sudden cardiac death."

I don't feel comfortable taking this together? Has anyone taken these together??

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u/Major-Radio-5082 — 1 month ago

Side effects of meds

Can you tell me your experience while taking methotrexate & plaquenil?

Both have some serious side effects that freak me out - specifically the hair loss and retina damage. 😞 I would like to be pregnant in the near future, and I know you have to be off methotrexate before that. But at this point, I also just need this flare to end.

Discussing med options at my appointment coming up so I wanted to hear from people who have actually taken these! As opposed to what they simply suggest you take.

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u/Major-Radio-5082 — 2 months ago

Tips for managing flares

My PCP started me on 20mg prednisone while I wait for my first rheumatology appointment in about four weeks. My labs already came back confirming the suspected RA, but I still need the rheumatologist to officially diagnose and start treatment.

I only have about a week left of the prednisone, so I started tapering down today instead of stopping cold turkey next week. Today, my hands/knuckles got SUPER swollen out of nowhere, which I’m assuming is from lowering the dose and the inflammation coming back.

I know prednisone isn’t something you can stay on long term, especially at higher doses, but wow… this flare is rough already and I still have almost a month before my appointment.

Any tips for managing RA flares while waiting to see rheumatology? Things that helped with hand swelling/pain, stiffness, functioning day-to-day, etc.? I’d really appreciate any advice or hearing what helped others get through that waiting period. Right now it almost feels as if it's burning.

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u/Major-Radio-5082 — 2 months ago
▲ 17 r/rheumatoid+1 crossposts

Inflamed/swollen finger bases

Anybody get swollen finger bases?? It's not really the joint, but the bottom of my fingers. I can't wear my wedding ring now. :/ they all look like this from the sides minus my thumbs.

u/Major-Radio-5082 — 3 months ago

I bought a couple jeans in Jan that still have tags but I need a different size now. Will they let me exchange it for the same pair, diff size? It's barely past the 60 days

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u/Major-Radio-5082 — 4 months ago