u/MoodFearless6771

I am interested to know the timeline of events after being referred to a specialty hospital like Mayo for a CSF Leak. How long did most people wait to get into these clinics after being referred by a physician? How long was your stay there for diagnosis? Did you have to book a second stay for the surgery and how long was that and the recovery?

Looking at some future planning. Thanks in advance.

About 5 years ago I heard a story in the news about a rescue team in Colorado that had to carry a Great Pyrenees down a mountain on a stretcher. I immediately assumed the dog hurt himself.

Now that I have acquired my dog...I understand! The issue is that they probably had no problem hiking out...THEN....turned around. Because my dog would definitely walk 10 miles into the woods no problem like an athlete. And then as soon as I turned around, he would lay down. I've learned to walk in a loop so there's no turning around. But he knows. Our walks are always 5-10 minutes the starting side....30-40 minutes looping back. Every blade of grass must be smelled. Every spot laid in. Every moving object we have to STOP and WATCH. Every step is intentionally slow. If I were to turn and walk further out, he'd happily trot in the other direction.

Anyways, I thought about this news story this morning and realized...they were probably just new pyr owners! :) Haha. Thought I'd share.

I am frequently around someone with PTSD. Inappropriate bursts or flashes of extreme explosive anger is a common symptom of PTSD trauma. I have had my dog around this individual before and I'm starting to wonder if that's ethical exposure. What are everyones thoughts on this? The explosions are short lived (approximately 3-30 seconds) and thankfully not frequent (occur maybe once every two weeks-month) but are also not predictable at all and when they do occur can be loud and quite jarring/unsettling. Removing the individual from my life is not an option. Adjusting the dogs exposure is.

I currently have an ESA/at-home service dog that does light tasking in the home. I may have a full access dog in the future. I would love to hear how others living and coping with PTSD or that have PTSD sufferers in their lives manage this particular symptom. What would you do? Is a person snapping something a dog should learn to tolerate or something they should never be exposed to?

Thanks in advance for your thoughts. Please be civil and kind. The person is trying their hardest. I over protect the dog right now. I ponder this and look to you for opinions.

Did anyone single heal from a csf leak that owned a dog and if so, what did you do? Were you bedridden for months? I tried to contact my dogs trainer about boarding and she said we could try it for a couple weeks but she didn’t think he’d do too well longer. Could anyone get up and let a dog outside in a fenced yard? How restrictive was bedrest?

I’m confident I have a cranial leak and have a wealth of mri imaging at this point (done to evaluate for other issues: MS, Autoimmune, Strokes, etc.) who can I send the to for a remote second opinion? Cleveland Clinic? Cedars Sinai? May? Stanford? Which is best and most affordable?

I’m being targeted by these ads and am tempted…I have a large hot boy. Has anyone tried this product? Looking for honest reviews! I’ve been disappointed by other products claiming to cool.

I’ve posted here a few times. I’m in the process of getting diagnosed. One of my symptoms was my eyes and legs were terribly weak in the morning and extreme fatigue. I just got the results back from my sleep study. 84 instances of sleep apnea. It’s mixed…obstructive and central sleep apnea. I am currently in amphetamines during the day.

I of course got the results at 5pm on a Friday and now have to go to bed without talking to a doctor. 🙄 The report was pretty generic and didn’t even address the central sleep apnea. I wonder if it was automated because it said I didn’t even need a CPAP and should try to lose weight first. (I am currently losing without trying. 5’8” F, 136 pounds. This is what I weighed in middle school. Pretty on par with the expert help I’ve been getting, which is basically to call a psychiatrist.

I am glad to have a dog, who has woken me up before when not breathing.

I live in a very dog friendly apartment. There is one couple that has a medium sized, leash reactive dog. They let this dog run around off Leash and it runs up to people and causes blow ups.

Management is aware. I was just rushed by this dog, who jumped all over my dog and we weren’t able to get in my car. I asked the man to leash his dog and he became PSYCHO. Cussing at me, screaming, calling me names, saying I needed to get on the phone and get my brother or dad up there (I’m a 43 year old woman…no sure why he couldn’t just talk to me??) What would you do? I was unsure if I should like call the police or something. I tried to stop by the office, they are off today. I sent an email and got an auto-response.

EDIT – UPDATE: Thanks everyone! I did end up filing a non-emergency complaint online just to have some documentation, the police called me back and said at this point, it would be categorized as an information report, which is fine. They did suggest I reach out to animal control Monday. The apartment is going to address it next week...we'll see how that goes.

I’m interested in the sport and have a water lover/swimmer but he doesn’t like and stays out of pools right now. Loves natural bodies of water he can walk into.

I was going to try it because it looks fun but is it kind of a pain to have a dog that just hauls off and jumps into water outside of the sport? Like in life is it a pain around a pool or dock?

Currently treated as autoimmune patient, undiagnosed as to specific type. Its been a year + of this. Ugly, bad, desperate, painful, exhausting. I was not performing at work, unable to stay awake during the day, struggling to care for my dog. Considering going on disability, looking at a dark future. After sending my "let's wait and see" rheum a message crying that I was going to lose my job, I got an auto-response that he was on a LONG vacation. Like months. Panic set in. However, later that day, I got a message from his back-up. "Are you interested in a prednisone taper?" "YES! Shut this down, anything to function for a day." Was my answer.

WOW. I had no idea medication could help so fast. I'm on day 3, I feel like I'm starting to get my life back. I'm slogging through the mountain of work that piled up. I'm also painfully aware the prescription came with step-down instructions on the bottle and are temporary. Lay it on me, folks. Am I just going to slowly sink back down to the bottom of the fish tank? What should I know? Is it possible this feeling could last? I'm looking at aligning resources (transport, cleaning help, doggy shuttle) for if it happens again. Trying to plan with so many uncertainties.

Looking for some sage advice on how the steroids vs. reality work and what can be expected. How often they can be used. Thanks in advance.

I'm looking for branding/naming/communications examples on how large organizations brand and refer to their CMS or products and tools built on Salesforce. Primarily purpose focused organizations/nonprofits but will take any examples.

It looks like some continue to refer to them as Salesforce, Some completely debrand and give a new identity related to their organization, and some do a hybrid of the two (rename but endorse as powered by Salesforce). I'd like to hear some of the brand strategy and names that are used and anyones experience with similar projects. Thanks!

I'm looking for examples on how large organizations brand and refer to internal Salesforce powered tools. Primarily purpose focused organizations/nonprofits but will take any examples.

It looks like some continue to refer to them as Salesforce, Some completely debrand and give a new identity, and some do a hybrid of the two (endorsing as powered by Salesforce). I'd like to hear some of the strategy and names that are used.

Thanks!

I am in the process of being diagnosed with what they think may be MG thats effecting my eyes. I've heard it's supposed to be better with rest...But are anyone's eyes worst in the morning or with certain supplements? Mine will droop during the day but they are by far the worst first thing when I wake up and if I take certain things (for instance I stopped drinking entirely but tried a relaxing adaptogen seltzer promoted at Sprouts once as an alternate (containing tryptophan and a few other things) and was the eyes were extremely bad. I am wondering if its just that I am tired first thing in the morning? But it seems like everyone else improves after rest. Would love to hear your experience.

Edit: This is the drink that triggered me: https://shop.sprouts.com/store/sprouts/products/24952767-zero-inc-kin-lightwave-single-8-oz

I have had an acceleration of extreme fatigue and eye symptoms as well as weakness the past year. I had trouble swallowing rice last week. I had a positive ANA test and they were thinking maybe autoimmune so I was put on plaquenil and I think that was a mistake. (stopped last week) I don't know if I actually have MG or have MG-like symptoms, the eyes are pretty characteristic. I look high a good portion of the time and one eye likes to just stay closed. I have had a positive result on the ice pack test. My AChR test was normal. I just asked them to test MuSK. I had an EMG of the neuromuscular team for weakness and it was normal. They had to try multiple times on my arm but eventually got a normal result. So they are refusing to see me.

I have found out through DNA testing that I am carrier for 3 types of Congenital MG (RASPN) and another RASPN disorder. I don't know if this could be due to that (I have read that heterozygous crossover can happen) or if I have regular MG and should keep pushing for blood testing. Does anyone have any advice on workup or diagnosis?