I need to request a welfare check for a friend near London. Im in the North West. Im assuming i can still do it. I know the textphone number, but am unaware how to use it. Online it only says reporting crimes. Can I still request a welfare check through it?
Edit: Im hard of hearing and cant hear on the phone. I forgot to add that, sorry!
Im ngl, im really stressing. I know its months away but I like to have things sorted
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Me and my friend are going on august 30th. And im having issues with the APE app. Evetything is telling me to "navigate to the 'my tickets' section to login", but there is no 'my tickets' section. And I feel like ive searched the whole app. I have the tickets in the AXS app. So will they accept the scanning via the AXS app?
I am one of the lucky ones in terms of, i was diagnosed early. But I was diagnosed early, because i progressed scarily fast. Ive received so much hate/argumentative messages and comments from people in the community, and I feel like im close to giving up (not harming myself) on trying to find people who get it. Ive been silent in this sub for a long time, i posted in 2023/2024 and again, had similar comments/backlash. And I dont know what the fuck to do. Just to clarify, I am NOT having a go at anyone. This isnt a call out post. I just need to say all this. Alls i ask, is please dont debate my diagnosis or tell me its wrong. Questions are fine, I just cant handle the doubt/telling me its wrong
I have a double EDS diagnosis. Hypermobile and Classical. I was diagnosed in August 2020, after a 4yr long process. Back in 2023/2024 when I made the post, i had multiple people tell me its impossible to have 2 types of EDS. I also have an 'asymptomatic' chromosonal deletion. But if i didnt have that, I probably wouldnt have EDS at all. Ive spoke to my rheumatologist, pain team, cardiologist, and genetics about the double EDS diagnosis. Because I keep being told its impossible. But they keep telling me that that is what I have. I dont know what to do about that, or with that information. When im being told the opposite by LOTS of people. But I cant explain all this, every single time I talk to someone about it. Because its usually a quick comment or somrthing like rhat, so i just gave up. I have another thing called Cleidocranial dysplasia (a lot of people in my dad's family have it), which causes my bones to be weaker. I was supposed to have a spinal fusion, due to a spinal dislocation. But ive had 2 failed jaw reconstruction, because my bones are too brittle to hold the metal work. So thats out the picture. And ive just been sat for 4 fucking years whilst its paralysing me. But i can still feel every single little piece of the pain. I became an addict at the ripe age of 14 because my pain was unmanaged, and the doctors refused to even try. My pain manager capped my pain meds at 30mg codeine every 6hrs. The pain nurses kept saying "theres nothing more we can do", which i knew full well was bullshit. So i took matters into my own hands and became addicted to pills. My parents and doctors still dont know, because i know they will treat me differently, and refuse any pain management. I never medically drug seeked, because ive been so desperate for actual pain management. And I didnt want to risk hindering that in anyway (im now 8 months sober). In August 2025, when I first got sober, my health plummeted to new lows. And I really believe the pills where masking the symptoms. Im now suspected of having MS, or ME/CFS. What are they doing about it? FUCKING NOTHING. It was identified on my genetic screening in 2020 that I am at risk for MS. Which all 4 of my mums siblings have MS. My mum is the only one who doesnt. They then kind of dropped that, and started focusing on ME/CFS, which from my research and understanding, is what seems most likely. I was referred to the ME/CFS team in Jan this year. But itll be 2+yrs before I even receive an apt letter. Every 3 months I get a letter, saying I need to fill in a form to confirm i still want/need to be on the waiting list. And that they'll get to me as soon as possible. Ibhad to leave college in Novemver 2024, when my epilepsy took a turn for the worse. I ended up in status, having my first tonic-clonic, and have a brain injury. It was no longer safe to be at college. My college did evetything they could for me. My college was alls i fucking had. Literally alls i had left. And im at a point where I feel like i have nothing going for me. My cat is now 15, she has a protein allergy, feline dementia, stage 1 CKD, and early-stage hip arthiritis. The CKD and arthiritis only started in dec. Although shes doing really well for her age, these last 3 months her age has become obvious. We got her when she was 12 initially as a foster placement. She was diagnosed with the protein allergy 3 days after, and to see the change in her personality and behaviour so fast after being medicated and the right food, I couldnt let her go. She is my baby. And after how our previous cat died (intentionally poisoned with anti-freeze by one of our neighbours), i really do not know how im going to cope. My cat is my everything. Me and my friend went out for a picnic on tuesday, at a field near mine. It was 32°C, but shes my best friend, and I hadnt seen her in nearly 4 months. We sat in the shade, in this little corner, and it was lovely. But im now in agony. My eyes feel like theyre burning, my spine is killing me, and my legs feel like every bone is being broken. I wsnt to reach out for support in the community, and I have started to make friends eith people, but then when I try to explain my double EDS diagnosis they cut me off. And I get it, with the number of people faking disorders at the moment, i truly get it. But i cant keep doing this shit anymore. I want friends who can atleast get it. My best friends mum is the closest thing I have (she also has EDS & co. Diagnosed at 42). But ahes doing good. As horrific, rude, and jealousy fuelled this may sound. I want to be her. Its horrific how long the EDS diagnostic process takes. But how do i seem to be so bad so young. I have a total of 4 genetic disorders. Those being the double EDS, Cleidocranial dysplasia, and asymptomatic chromosonal deletion. None of it has ever been explained to me. Not how they work together, not how the deletion has caused/linked to the EDS. Or how all the bone and muscle issues in CCD work with EDS, I do not know. The stuff I know, is about each individual disorder. I cant find a single thing talking about thwir interactions. My geneticist is a love, but to be quite frank, she seems as clueless as I am ehen it comes to how they interact with eachother. I feel like i somewhat understand it in terms of the bone issues in EDS and the bone issues in CCD, but im meaning ALL of it. I need to understand things to cope with them. But I cant, and im not. Im 20 and I have nothing fucking going for me. I wanted to work in emergency medicine, or as a criminal psychologist. I wanted to foster animals as like a side thing, and write a book about my experience of growing up with unmanaged/treatment resistant OCD. I just feel like i dont knoe ehat I'm doing anymore. Not necessarily that my life has no meaning, but that my life is pointless. Its a waste of money, time and space. Ive constantly and repetitively been told "there's nothing more we can do" since i was 16. So what is the point? Where is the value in that, if I am just going to suffer, and progress. Ive already been told ill be lucky to make it to 40. But at this rate, I wouldnt call that lucky. I feel embarrassed for my friends who are seen out with me. I look so fucking weird because of my CCD, and the damage done from the 2 failed jaw reconstructions. Im still waiting for surgery to have the metal work from the 2nd one to be removed. The right side of my face is partially paralysed, the muscles in my jaw and cheek are partially torn, so my face is constantly twitching. Its like a guilty feeling that people 'have' to be around me. But then, i know they chose it. But then at the same time, i dont know why. But also at the samr time, I know I wouldnt judge a person as a friend based on their appearance. Its like a constant battle in my head, and I dont know what the fuck im doing anymore
There are some positives though. Bin day is on Thursdays. And I go out and give them drinks. Theyre so used to it by now, that they will go a bit slower so I have chance to go out. And if im not in, the cans get out ontop of the bins. The ice cream van does the same. The guy knows me, my mum will go out first to let him know im coming. He will make my ice cream (a sherbet knicker bocker glory), and then ill go out and we talk for a few minutes. And he woll pull up as close to our house as possible (we live in a cul-de-sac, so irs kinda hard). Theres always positives. But its difficult to see them when you have to weigh up every single tiny decision and action you make. I have 4 amazing friends. One of them (picnic friend) i met in 2023, and she immediately asked about my health in terms of how she can help. My friend (mum has EDS) weve known eachother since we where 8, and she has seen me through all of it. Long distance friend also has a very rare disorder! They probably understand it the most. And other friend we met when we where 12. Her sister died due to complex health, and although she doesnt get the act of being chronically ill. She understands the grief of being chronically ill. Which has been really reassuring, as she also has an outward perspective on it. As in, she hasnt/isnt in it first hand
Clarification: this isnt supposed to be a sympathy type post. Im not wanting/needing anything from people. I just needed to say this and know its been seen by someone. Even just one person lol. I am not going to harm myself. Ive always struggled with my MH, ive attempted in the past, but havent since about 2024. I think about it alot, in terms of "well of all else fails". But im not in that place right now. Im just fed up and losing my mind. I havent self-harmed in 3 months. After 8yrs straight of it being nearly every day. And I am 8 months completely clean and sober from abusing any and all substances. As I said, i dont need anything from anyone. Alls i ask is please dont debate my diagnosis. If that does happen again, i will delete the post (that isnt supposed to sound like a threat, just a statement lol)
Im so upset. A lot of my MCAS reactions are skin related. My skin goes really puffy, itchy, and peels off. I also sometimes itch so hard I remove layers of skin. Ive reacted to every moisturiser I have bought, or been prescribed. Only one I didnt, for a short while, was Diprobase. But very quickly reacted. I then found one only. That was 6 ingredients! Its basically just oats, and a couple other things to make it a moisturiser (i dont currently have it, so I cant remember, apologies!). But theyre all natural ingredients, not chemical. Its unscented, for babies with highly sensetive/reactive skin, and all the fun stuff. I used it for about 8 months, and it was going great. But 2 nights ago, i did the usual, and put it all over my body. I developed fully body hives, my face and throat swelling, and the skin on my chest and upper thighs started to peel off. I didnt make the connection it was the moisturiser, as I had also tried yellow + red peppers in the day, which i used to be allergic to (i dont appear to be anymore. Yay!). So i assumed it was that. Most days, I just do the moisturiser on my face, chest and upper arms, aka, my most sensetive areas. Its also massively helped in reducing my scar tissue from the reactions. And we keep it in the fridge, as it has helped soothe the reactions too. I went bright red again. And this time, the skin on my face and neck was peeling off. I kind of knew it was the moisturiser at that point. But silly me decided to try a patch on my right cheek and chin. Again, bright red, and my skin is peeling off. Ive had 2 reactions in the past called Steven-Johnson syndrome. Both times, it ended up quite severe, because we assumed it was my standard MCAS skin peeling. It was not. I was in a burns unit for about 6 weeks each time. They where debrideing my skin 4 times in 24hrs. I couldnt move, the skin on the inside of my mouth came off. And inside my eyelids too. It was horrific. And this may sound dramatic, but it has traumatised me. The patient I shared a room with the second time, she was a woman in her 30s. (TW) and her boyfriend had lit her on fire in an attempt to kill her. Police where coming in a lot to talk to her about it, and they tried to be quite lol, but its very difficult in a quiet medical ward. There was an officer on the door 24/7. And she didnt mind people knowing or hearing about it. She helped me a hell of a lot. We played 'mind spy' for hours, because I couldnt open my eyes. We would set a theme, and pick something from that. My parents visited when they could. But my mum is a carer for me and both my grandparents. I was being cared for at hospital, and I myself told her to focus on my grandparents. And although my dad IS in my life, my parents are married, and we all still live together. He is barely an active part on my life. He is a large psrt of the reason as to what led to my CPTSD and EUPD diagnosis. When I opened my eyes for the first time, she was the one holding my hand and sat next to me. When they removed the feeding tube, she was right next to me. When I was being discharged, she came down to the front of the hospital with me, along with her police officer, and a couple nurses, to wave goodbye to me. I have kept in touch with her. Her ex boyfriend got sentenced to 17yrs on multiple charges. I dont know why im mentioning all this, I am sorry. But im in hospital again, and im scared. I really dont think it is SJS. But im admitted on the medical assessment unit right now. Theyre hoping to move me to a long-stay ward. Theyre taking a skin biopsy at some point today, and if it is SJS again, theyre going to transfer me to the burns hospital. The hospital nearest to us, who treats SJS, and treated me both times. Is a 2.5hr drive from home. And thats also what scares me. If somrthing happens, theres no guarantee my parents would make it in time. And I hate it. But they truly where amazing both times. I seriously cannot fault them. They provided a hotel for my mum the first time, when things started getting really rocky and concerning. Theres just so much, and im so fucking scared. I sm do unbelievably sick, and tired, and just fed up of this disorder. I eas officially diagnosed in 2018, but an allergist and immunologist I had been seeing since 2014. Im just do tired of it all. And im hoping the hospital wifi is atleast good enough to let this rant post
I feel like sometimes, I just need to say things where I know people will see it. Even if nobody says anything. I just need to get it out there, and see that people have seen it