i am 25 years old. just got my first enema in prep for a sigmoidoscopy after hospitalization. how do yall DO THIS. every 5 oz i was begging the nurse to stop, running to the toilet. that was GOD AWFUL. i was diagnosed w UC in april/may. i never want to do an enema again. i will happily take laxatives and toilet runs any day of the week. thank you.
went to my drs appt. knew something was wrong. had a million and one questions and the first thing the dr says to me is "i am admitting you to the hospital" and sends me up the hill to the hospital where she called the Gastro team and had them take care of me. been here three days. failed infliximab. starting Rinvoq. i can not take pills to save my life. im scared. im vomiting blood. im crapping blood. im on so many steroids in my iv. my bp was 76/52 ish something like that. its better now. i ate a meal. getting a partial colonoscopy tomorrow. im tired of getting bugged by my nurses for meds and vitals. i just want to sleep. i am so tired of being strong and sometimes i really just want to wallow. but if im not strong i will not heal. im so tired. im so tired.
:) howdy all.
i got diagnosed w UC this year. a few months ago. ive been on 3 prednisone tapers since, and i started infliximab infusions. im currently traveling to see family and ive been here for a few weeks, and im leaving in 7 days to make my 5 day drive back home. i ordered a camping toilet just incase of side of the road emergencies. i am out of network for my doctor. she will not help me. i went to the er and they gave me a prednisone taper that helped in the moment but i am still in so much pain. so much so that water hurts, everything hurts. my diet has been simple. bread, butter, crackers, plain chicken, cheeses, chobani yogurt. that is it. and water. does anyone know of an over the counter medicine that can ease the pain until i get back into network with my doctor? i have an appointment 2 days after i get back. my stool isnt bloody anymore (it was only bloody when i was taking mesalamine which i figured i was allergic to because it made my symptoms a million times worse) and im just so exhausted and tired of wiping my rear end. and just exhausted overall. i can not stop sleeping and i just feel overly tired all of the time. i think the stress of not being at home is also wearing me down. but again, is there any over the counter recs anyone can give to me just to kinda ease the pain/symptoms of living with this god forsaken disease?
howdy. i just got into a relationship with someone, and it truly is going so well. hes very supportive, not judgmental, and just overall a good support system. we knew each other in the throws of my illness, when it was really bad and now im diagnosed and on infliximab (he goes with me to my infusions because he was curious as to what i have to go through. truly what a babe) and he doesnt show any signs of going away just because i am sick, but i think that is still a real fear. i do trust him 100%. my past relationship i was cheated on, and it was in the worst part of my flare so i think im carrying over a little trauma and lived experience. im just scared of my sickness driving him away, or him getting disgusted about it or thinking im gross because of it. his dad is a doctor, and he grew up hearing a lot about the medical industry so he is used to topics like this. but i still have such a big fear of it. he reassures me all the time that it doesnt burden him or make him uncomfortable because i have to do what i have to do. where do we draw the boundary on what is "TMI"? he knows i have the potential to crap myself at any given moment, and he knows all about it and asks questions and researches it. I feel like i found a gem. I guess there is just something that seems too good to be true, but i know that he cares deeply and the intimacy and connection is easy to come to.
hiiiiiii
i have been in a chronic illness flare up/getting diagnosed for about a year now. i got my puppy during the holidays not expecting to feel this bad for this long.
i feel like i cant get her the exercise she needs during the day (i have IBD, i really run the risk of crapping my britches at any given point during the day) and im totally tempted to get her a dog walker but i also need the exercise so i tend to just suffer and take her on the walks. shes still a puppy so i am having to train her on walks as well as she still is pretty excitable towards other humans and dogs (she settles after about five mins around other humans and dogs) and i do mental enrichment like ill hide her meals throughout the house and have her hunt for it, or ill do the roller ball where she can paw at it and it will dispense the food to keep her mentally enriched. i will also play with her a ton during the day too, which im sure she enjoys. she also 100% doesnt mind napping all day but shes getting to the age where she doesnt want to nap a ton during the day. shes an APBT/Great Pyrenees mix, so shes super chill but also needs that mental stimulation and sometimes i cant give that to her. any advice?!?!
i was only able to take her on regular 30 min walks twice a day when i was on a hefty dose of prednisone. Im not on it any more and my symptoms have returned full force, and i try to substitute 10-15 mins 3-4 times a day as a substitute but sometimes my body literally just can not handle it, and right now is 100% one of those times. I just wish my remission could come sooner rather than later so i can give her the enrichment she deserves.
i am currently doing a cross country trip. there and back. from PDX to Athens, Georgia. i also just started rectal suppositories. first day was good. only needed one restroom stop. today was a ten hour day. i was so lucky. i only had to go 3 times on the road, and two of the restrooms were FRESHLY CLEANED. FLOOR STILL WET. TOILET SEATS STILL UP. NOT TAINTED. (i have ocd which makes this disease 1,000,000x harder than it needs to be) i get to the hotel. feeling good. walk in the door, felt the urge to go and asked for the restroom to go quickly. then shit my pants. in front of the desk clerk. got to the restroom. both full. of course. mens opens up first. got cleaned up. embarrassed. i want to cry. i told myself when i started driving if i shit myself i shit myself its normal for this disease i should at least halfway expect it plus everyone does it at some point in their life. you know my name not my story vibe. im tired. im so exhausted from not only driving but the emotions that come with crapping your pants and also i am traveling with a pet. this is hard. i wasnt expecting it to be easy, but its HARD and i suppose i am strong enough to handle things like this. i try to be. but some days are just bad butt days and there isnt anything i can do other than show up for my infusions, take what meds im prescribed and go on about my day. toilet stuff happens. its normal especially for someone with this disease. sometimes i wish i could walk around with a big sign that says "I HAVE ULCERS IN MY COLON I AM GOING TO SHIT MY PANTS" so people would not only leave me alone, but give me access to a restroom and swiftly.
HAS ANYONE ELSE WITH UC EVER DONE A CROSS COUNTRY TRAVEL IN A "flare" (i got diagnosed this may this flare has been a year long at this point) HOW DID YOU HANDLE IT WHAT MEDS DID U TAKE WHAT WAS IT LIKE I HAVE A STOOL COLLECTION KIT IN MY CAR WITH TP AND BABY WIPES IF WORSE COMES TO WORSE I WILL JUST USE THE LITTLE COLLECTOR THEY GIVE YOU HAHA ANYWAYS I AM SO TIRED GOODNIGHT U ALL ARE SO AWESOME AND STRONG AND YAY I LOVE BUTT PROBLEMS!!!
i was sick for about 6 months for the first time. i got diagnosed in early may. im on infliximab and came off prednisone a few weeks ago (40mg taper) and now im back on prednisone on a 20mg taper. i dont know what i did wrong to trigger a flare when im getting proper medications. i just feel like im at such a loss because im in a flare again. i just want to be better. i just hate this so much. food is my everything. and i cant even eat my favorite foods anymore. im on the verge of considering getting my colon removed if i keep flaring like this consistently. ill give it a few years though. i hope by then i will get it figured out. i just miss my life.
hi. i got diagnosed with UC in early may, and went through prednisone and started infliximab. i just got my second round last sunday and will be doing my last 6 week dose soon, then i go every 8 weeks.
i was really lucky to only have 1 accident prior to getting diagnosed. but now it feels like i have a near accident or i have one every other day if not every day at this point. i dont know why this is. im so scared that the treatment isnt working. im getting better, not going during the night, i used to go 20 times a day and now i go maybe 5-10 times a day. significantly less. i dont know if it has anything to do with food, i dont eat processed foods anymore. well the highly processed stuff. its hard to find food that isnt processed these days. but when i do buy processed foods its minimal ingredients and always organic. anyways. i guess i just wanted to say my lived experience and see if anyone else deals with frequent accidents.
also just started dating someone and he knows of my diagnosis and his dad is a doctor so hes really understanding of my condition plus his mom has been sick before but dating with UC is. tricky. turn the water on EVERY time i am in the toilet and i apologize so much because i go so frequently. HOW DO YOU NAVIGATE DATING WITH UC.
hellooooo
i have had my dog since she was 9 weeks old! shes a pleasure and learns so quickly. when i got her i was going through a break up and also getting diagnosed with a chronic illness, but now im getting better and i want to train her more commands other than sit, stay, leave it, lay down which she all knows really well. when we go on walks ill have her sit or lay down and drop the leash and walk away, then say release and she comes BARRELING at me for treats and rewards.
she has an issue. she is reactive. and i mean so am i. i get it. its a learning process for both her AND myself. with dogs and humans i can kind of control the situation, we just walk in the opposite direction or i pull her to the side and have her sit and give her treats for staying focused on me. with birds and squirrels she goes nuts. we live in a city in an apartment, and the guy in my building leaves peanut shells, seeds, nuts etc. in the parking lot scattered for the birds and squirrels. i get it. but the second we walk outside she starts going crazy because she immediately sees her triggers and there is not another way to get out of the complex, just one set of stairs. which doesnt give her an awesome start to her day/walk. on the walks themself she will literally pull my arm so hard to the point that i almost fall over because of her sheer strength (it isnt an issue im terrified of ripping my arm out of its socket though). i dont mind the pulling and she only really pulls on the leash if ive been at work and she hasnt had much mental stimulation (i give her puzzle toys on these days as well and its usually an xl walk where she goes at her own pace and we go for 30-45 mins)
i suppose im just curious if anyone has any advice on training reactivity. i tried training classes when i was in a bad flare up and couldnt even attend most of them because i physically was unable to. i am in school full time with a part time job, so the money is a huge concern but i have the time to do it on my own and i have the discipline and drive to help her.
i take my 7 month old puppy on 3 20 min walks daily. there is one persons yard where she goes absolutely APESHIT in. she jumps up on the slope of the yard, sniffs at the mulch at the base of the tree, stares at me (sometimes this step is skipped), sniffs again, then starts running in circles around me, biting the leash trying to play, jumping up at me, laying down then taking off. shes 50 pounds and she is fast as hell i do not doibt for a SECOND she could rip my shoulder out of socket with how fast her reaction is. she never goes back to smell the mulch after she has that reaction. i am just so curious as to what it could be. she acts like she gets a short high from what she smells and i cant get her to listen to commands (shes so good at listening to commands she is a good girl). we have coyotes occasionally and bunnies but i have NEVER heard her bark outside before except for a couple times after she smells in front of this house. could it be a drug could it be pesticides could it be coyote pheromones could it be a dead animal WHAT COULD IT BEEEEEEE. (I also dont discipline her for this behavior because i know shes just alerting me that there is something afoot)
hi.
im transferring to my big girl university next spring. im excited. i am planning to go out of state for this. i do not feel satisfied living here anymore and i want better options for schooling. im starting applications this fall and winter.
im planning on applying to UNC, UGA, NYU, and a few other colleges on the east coast and in the south. does anyone have any experience with transferring and how exactly all of it works? i need more advice but my advisor kind of told me not to apply to schools that "arent easily transferrable" which that is the least of my concerns to have it easily transferrable, i have very high hopes for myself and my future and to be quite frank, i do not like an easy way out and i prefer to be challenged, even if it makes me crazy. im a very stubborn woman.
but again. does anyone have any pointers or any advice for a stubborn woman who wants to transfer out of state to a school that is more prestigious?!?!
i have a 6.5 month old American Pit Bull Terrier/ Great Pyrenees mix. the light of my life, truly. she is so well behaved and listens and understands me like i would have never even imagined.
Im in college full time (im going into my sophomore year, i started college at 24 years old), i have Ulcerative Colitis which leaves me feeling ill on occasion, and i also have a part time job.
i feel like i do NOT do enough for her. mornings typically look like a ten min poo/pee walk (i am bathroom bound for about two hours after i wake up due to my medical condition) and play time after that while i multitask getting ready for the day, breakfast, feeding her and all of the usual morning things. at around 9 i go to work or i start my online school work. around noonish we go on a walk thats 30 mins and is about a mile long and i let her smell absolutely every single thing she wants to smell, come back in and play while i do more homework. shell nap sometimes and then around 3-4 we go on another 30 min walk where i let her sniff. that walk is also about a mile. after that we come in and i start my dinner, shower etc etc. when i go to work (i only work all days mondays and thursdays, the other 5 days of the week she has me at home all day) she is in her kennel until i come home. i work 6 hour shifts and she holds her bladder well and the walks on those days are just one 45 min long one.
i still just feel like shes SO BORED. i know APBT are such a high energy dog, but Great Pyrenees are pretty chill. she never minds just hangin out. i just wish i could do MORE for her. i give her enrichment toys pretty frequently, and she is genuinely such a smart dog and so so so obedient and listens to me when i say something. shes still a puppy. and i have to remember that she is also a rescue. she is not at the pound anymore and she would rather spend 5 days a week with me and a few hours in the kennel a day when i go to appointments and run errands. she isnt locked up 24/7 bored out of her mind. i just am feeling so guilty like i cant do enough for her :-(
HEY!
i got my colonoscopy last week and started prednisone this sunday after they found "chronic colitis" the dr said she thinks its UC but im getting a referral to a specialist to 100% confirm because if its not "YOU HAVE _____." Ill psych myself into thinking i have a completely different diagnosis. i had a mayo score of 2 in my colon and a mayo score of 3 in my rectum :/ i dont know why she couldnt just say "you have ___" because the letter that was sent was so confusing
im feeling fucking fabulous for not sitting on the toilet every hour on the hour for 30 mins at a time. this is a dream (minus the little sleep because of bathroom trips in the night) and i feel so powerful and like i can do anything. the prednisone has me drinking so much water and my sodium intake is crazy. My mouth craves the sodium snacks but honestly im not mad after 7 almost 8 months of basically starving because my body got no nutrients whatsoever. im just thankful that i can actually eat food without having to worry about sitting on the toilet for the foreseeable future. that has been a blessing
does anyone have any recommendations for workout routines that wont tire my body out to no end? I am trying to find some bit of normalcy but i understand this is an autoimmune disease and a chronic illness and that can limit what bodies can or can not do. I dont want to send myself into a flare for overworking my body at all. i used to be so active in the gym but i think my body needs something thats not so intense like lifting heavy weights and doing a hiit cardio routine. i am trying to get back into the routine of 30 min walks with my dog and we would walk 1 mile in that time, twice a day. but my body wants more!
i finally got a diagnosis. after what felt like the longest 7 months of my life. one failed colonoscopy (it was light sedation and i fought it then it took 4 more months to get rescheduled for full anesthesia) and then the next doctor that did it finally got it and found lots of ulcers and cuts. she said i was a 2 on the mayo score? i know its bad but not sure what it means. she ran a ton of blood tests to see if its chrons or UC. i knew it all along. i was in so much pain for so long. i feel so angry and frustrated but also relieved that i have an answer. i am so scared to start my steroids. im doing the biological transfusions? im still so confused about all of this. This sucks. Im sad i have to live with this for the rest of my life. I already knew i would have to but the colonoscopy really sealed the deal. everything feels so fragile. Also why did the doctor tell me the meds are 200,000 dollars. Thats insane. Thats a load of bullshit. Who has that kind of money.
edit: my calprotectin was 1200 for the full 7 months :) how awesome