Today after 218 days in the NICU we are graduating!!! We aren’t going home yet, we have to go to the transitional care unit for Trach Boot Camp for Dad and I. BUT WERE GRADUATING THE NICU!!!
Literally have tears while writing this. I’m so proud of my sweet baby girl! Such a strong resilient little baby. 💗💗💗
My baby girl has been in bed her whole life and now since she has her trach we are able to do more and more with her. She held her head up all by herself finally! So excited! She really enjoys looking around at EVERYTHING!
With the common cold she was feeling pretty bad yesterday but today she’s awake more, shes not desatting as much, and she just wants her cuddles from mommy 💗💗💗
Hopefully next week we are back on track to transfer next door so we can start transitioning home.
This morning my baby girl went up on her oxygen needs and they couldn’t figure out why do they did a viral panel and she came back positive for something. Does anyone know what this is or dealt with it before in the NICU?
She had a bad blood gas this morning (CO2 was 105) and she is know equipped with the TCOM and it’s trending down. Her heart rate is elevated also because she is a little sick.
We were so close to being transferred but the nurse said it is a good thing it happened at the NICU because if she was transferred and this happened she would’ve ended up in the PICU at the children’s hospital where she will eventually be transferred.
The unit my baby girl is going to be transferred to is full so now we wait in the NICU until a bed opens up. They told me next week so fingers crossed!
All the ups and downs. The NICU rollercoaster. 🎢
Starting 1 lb 3.9 oz
Now she’s over 10 lbs and she smiles in her sleep shes dreaming and handles her trach changes like a boss.
Today I changed her trach by myself for the first time and I was SO very nervous. She literally fell asleep. Haha. Completely unbothered.
My favorite little strong human in the universe 💗💗💗