Vibrant Gastro now costs $700/month and I am doomed

I know Vibrant Gastro is not for everyone, but with my Ehlers Danlos physiology it's literally the only thing on the planet that forms stool for me and provides the necessary propulsion to move anything along. The $89/month cost was already bad, but worth it for me. Except it turns out that price was a manufacturer program that just ended. Once my 3 month supply runs out, I'm cooked. Because it's "investigational," there's no prior authorizations. I've spent a lot of time on the phone with the distributor, insurances, and seemingly I've reached the end of the line. Like, there's just no way to get this anymore. I have a pre-existing appointment on Monday with my neuro GI. Goodbye Bristol 4s. We're going back to the bad old days of triple dosing miralax and hoping something will occasionally happen.

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u/MurielSwan — 12 days ago

They almost turned me away cuz my heart rate is so low!!!

I had to do the EXTENDED prep protocol due to my intractable constipation, so it was 5 days of malnutrition, including 2 days of starvation. Tuesday I had to drink a bucket of miralax, then last night and this morning I drank the gallon of Satan’s ball sweat.

I finally get there, they get me hooked up to everything, and they‘re like ”uhhhh your heart rate is 34, that’s illegal.“ Everyone starts fussing and whispering and the doctor himself huffs in practically mad at me saying how unsafe this is. I started crying cuz I do not have it in me to go through another prep. I offer to do jumping jacks to get my heart rate up (something I was asked to do before undergoing a different procedure 15 years ago)

Eventually they convinced an anesthesiologist to keep an extra close eye on me. I was out for the endo but awake for the butt scope, which was somehow ok even tho I am very squeamish about butt? My heart rate hit 30, but they didn't find anything immediately freaky in my innards. They took some biopsies and removed a single diminutive polyp. Biopsy results in 2 weeks.

They’re trying to figure out why I can’t absorb iron from food, supplements, or even infusions.

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u/MurielSwan — 2 months ago
▲ 3 r/whoop

Apparently I'm near world record territory for my heart rate?

While my average overnight resting heart rate is 31-34, I was just looking at it throughout last night. At several points it got down to 27. According to wikipedia, the world record is 26.

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u/MurielSwan — 2 months ago