u/Nearby_Membership772

I’m only 35

I am only 35 years old and experiencing every symptom of Alzheimer’s. I have zero short term memory and have begun to lose my long term as well. I’m terrified and being treated as a mental patient, because I had a baby 3 months ago. This came on extremely suddenly and has only gotten worse. I can’t remember what I did yesterday or this morning, and my sleep is sooo messed up. I know I am young for this disease, but feeling so stuck and so scared. I also thought it started suddenly but I think it was growing for years…lots of forgetfulness and needing to use maps no matter how often I had gone somewhere, forgetting new addresses, etc. now I truly am a vegetable and don’t remember that I have a baby, or that my kid is at school, etc.

edit-I’ve seen many doctors. my MRI was considered clear. seeing a neurologist on Friday but I know since I just had a baby I’m unlikely to be taken seriously. I truly can’t retain any new information at all. I have severe amnesia. What is an hour feels like 6 hours, a day feels like a week, and I can’t remember yesterday.

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u/Nearby_Membership772 — 2 days ago

Transplant waiting time

Is anyone in the northern VA area and how long have you been waiting for a transplant? Are there times it can happen quickly? Daisy chain?

My dad is just starting the process. But he is 71 and O- blood type. His egfr is 19, but we will see on his next labs how it’s trending. Scared of dialysis due to waiting too long for a kidney, if he is even deemed eligible. He is in great health aside from the kidney disease, so hopefully.

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u/Nearby_Membership772 — 3 months ago

MGUS and kidney disease, transplant

anyone happen to have MGUS in addition to CKD? my dads egfr has reached 19, and he is beginning the process of learning about a transplant. not sure if the MGUS situation will be a limiting factor. he feels good, with minimal symptoms at this time from his kidney disease. no other conditions like high bp, diabetes, heart disease.

we don’t know the source of his kidney damage, it was sudden and extensive scarring. he also had prostate cancer a couple of years ago and was treated for that.

this is all new to us and we don’t really know how long he can hang out before transplant/dialysis is needed?

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u/Nearby_Membership772 — 3 months ago