u/New_Chip_4290

Just wondering because I was bedridden the last year plus from this.

Hi all, I have been on levo for 10 weeks. I am finally functioning, but not close to normal. I have tried to exercise by doing easy 20 min walks, or some bodyweight strength on a yoga mat, but if I do more than that I crash for several days. I am doing a lot better than I was 4 weeks ago, and before that, but I just need some hope. I feel like I am getting better at snails pace. I don’t think I will be able to work for another few months until I can stand for longer periods. I have read online that around 3 to six months is when big changes happen. Is this true? Any experience or advice is appreciated! (Also all my iron, vitamin D, and B12 labs are good. I am not necessarily asking for advice about med management, just about experiences of when stamina improves)

Hi all, I want to start a career in healthcare and become a phlebotomist. What schools are good to go to in the area? Also any advice for getting your first job?

Hi all, I am halfway through week 10 on Synthroid. I recently had my labs done and things were in range T4 1.01, T3 2.7, TSH 0.796. I just found out I am low in vitamin D and have started that, and low in iodine so I just started using iodized salt. My rt3 was also ok. I still feel pretty unwell. Is this normal? When did u start to feel ok after a long period of hypothyroidism? My family is getting impatient with me from being sick for so long. I don’t know what to tell them anymore.

I am going to do a 24 hr urine test to see if I am deficient in Iodine after a spot test came back with undetectable levels. Curious to see what symptoms others have had with a deficiency if that is the case. I currently feel ok, but my only real source of iodine is eggs.

Hi all I currently write this because I feel incredibly sick after exercising. I have a horrible feeling of pressure in my head, and I get it every time I over do it physically. Why does this happen with hashimotos? I additionally feel intense flu like fatigue. I wanted to know if this is common. I have only been on Synthroid for 9 weeks and my values are in range.

I recently did a random spot iodine urine test that found my levels undetectable. I am now going to do a 24 hr urine test. I have been on synthroid for 9 weeks and I am feeling better, and my T4 ,T3, and TSH are in range, but the test is concerning. I feel really afraid to add iodine because every time I have had more iodine in my diet I become hyper.

Is it necessary to eat iodine if synthroid is replacing my thyroid hormones?

What symptoms with someone who is treated on levothyroxine would show they are deficient in iodine? If I am treated with levo would that mask an iodine deficiency? Or would I still feel terrible?

Curious because I feel ok, but have the most horrendous exercise intolerance and wonder if it is related. Most likely though I am just going to needs months to recover from being so hypo.

I was not prepared for how long it would take to feel better after being treated for hashimotos. Not to mention the complications of being untreated for so long. I am now deficient in pretty much everything. I went from my lowest to heaviest weight in a year. I also lost all my muscle. My circulation is completely f’d, where I have blood pooling in my legs and hands all the time, which scares me. I just started to go back to the gym, but the minimal seems so difficult. I wanted to cry in the gym today because I was so frustrated with how little I could do, and how much I have lost from being so sick.

I also just learned I am not getting enough iodine from not eating dairy or iodized salt, because I couldn’t tolerate them with hashis, so now I am worried the timeline to get better is going to take even longer having to supplement.

I feel the most alone I ever have, I became disabled because of this disease, trying to find a diagnoses for 4 years, and I only have myself and my mom (who is not emotionally available) at 23.

It’s so stupid and sad and I just wish I could be in a healthy body. The grief is constant, but equally I am glad I don’t feel like I am dying anymore, but I don’t feel fully alive either. I just feel like I am getting through to tomorrow trying to do everything right.

Anyone reading this who was disabled before diagnosis, or got close to dying, when did you actually start to feel normal on levo?

Anyway, TLDR, being undiagnosed sucks and being treated with levo takes forever. Any experiences of being really hypo then treated with levo are appreciated.

I recently took a random urine spot iodine test and it came back showing the levels were undetectable. I started having some iodized salt and it gave me a lot of energy the last two days, but now I feel like my thyroid is swollen, and my voice is hoarse. My fmd told me to take iodine but I feel really nervous and hesitant with my recent experience. I now am in a flare because I overdid it exercising with so much energy and anxiety from the extra iodine. I guess I don’t know who to trust now, all the advice is super conflicting. I am worried about being deficient but equally worried about supplementing. Also it seems that the test I took is not super accurate and a 24 hr test is usually the best to diagnose a deficiency.

Any advice or experiences would be much appreciated.

What is the most accurate form of iodine testing? I had this test done and it has me concerned. However, I keep reading online that for a spot test to be accurate you would have to do 10 to 100 of them before getting a true result. Should I get a 24hr test done or blood draw? How likely is it to be deficient? I have hashimotos and have been avoiding iodized salt because it causes flares for me. I do eat eggs, but I do not eat dairy. I tried some iodized salt the last two days, which gave me more energy, but I feel like my thyroid is swollen today (with a golf ball like feeling in my throat). Any thoughts or advice would be appreciated. I am afraid both to supplement, and not to supplement if I do have a deficiency. Also I am starting to supplement with 5,000 IU of Vit D + K2 from trace minerals.

https://preview.redd.it/lz5wp99e5yzg1.png?width=1802&format=png&auto=webp&s=fbc6d042e4307553551896cb62307692bff74c97

My doctor just told me she wants me to supplement with iodine and I am really worried it will cause me to go into a flare or affect my levels. I did a random Iodine urine test which came back with undetectable levels so I am really deficient. She wants me to take 3 drops of 250 mcg a day. What the hell do I do?

Anyone here have an iodine deficiency? I just got my urine test back and it says there was no iodine detected which is not good. I also am deficient in vitamin D. How did you treat it?

I have been on levothyroxine for 8 weeks, and feel like maybe 60 percent better. However I have lots of blood pooling in my legs still, and I get it in my hands and feet where they turn red or reddish purple. In the past I was on too much T3 but not enough T4 and that was when it really got bad. I am worried this could be permanent, but I have not been on levo long enough to tell. I am hoping after 12 weeks on levo I will be in a better place. Anyone have a similar experience?

I know that the symptoms overlap, but was wondering what low iodine symptoms seem like when you have hashimotos. I just did an iodine urine test and am waiting for the results.

I am 8 weeks into taking levo (finally!) and my sleep schedule has been super out of whack the last week. I am wondering how anyone else's sleep rhythym changed on levothyroxine? I just redid my labs and they were great, so I know I am on the right track and not getting into the hyper zone. I went from feeling so, so, tired by the end of the day where I had to get in bed by 7/8, to now being able to stay up until 10, but also either waking at 2-3 am or waking up earlier than usual, then needing to go back to sleep. I also often need a snack then am able to sleep some more. Overall needing so much sleep and feeling so tired is great but also feels so strange. I keep getting anxious about it because sleeping less than 8 hours used to send me into an awful flare, but I am starting to feel less bad. If this sleep change is normal, anyone know when it got better for them? Like week 9 or 10?

I am finally starting to feel better after almost 8 weeks on levothyroxine! However, I am having a hard time sleeping because my tongue is so swollen. I have a mouth guard to help keep my airway open, and sleep on my side; but lately I am waking up choking if I roll on my back. I didn't have issues prior to gaining weight from hashis, and developing the swollen tongue. I also have kyphotic posture from being deconditioned overtime while untreated. I'm hoping it will improve once my tongue swelling goes down and I lose more water, and when I can start to exercise and lose some weight. Is it worth seeing an ENT or sleep doctor? If you developed sleep apnea from hashis did it ever get better?

Yesterday I tried to do some exercise, and ended up overdoing it. I am really inflamed today, and feel some pressure in my head, and even had pain on the roof of my mouth. Its not severe, the rest of my body is ok, I just feel like I have the flu. I also am more sensitive to light and noises, etc. Has anyone else experienced this?

Also for context, I am 7 weeks into being on levo and still not fully recovered. I was disabled and unable to get out of bed prior to starting medication. I am thinking that part of this flare is from doing to much too early.