Myriad of symptoms
Hello I have a chronic disease for which I get the fibromyalgia diagnose in my country
I have extensive blood work and nothing remarkable shows up the only one astronomical height was
CALPROTECTIN in serum (lab normal value , below 3000 ) and mine was 24000
Th/to, nxp2, pm scl 100- INCONCLUSIVE from the autoimmune panels
WHOLE genome sequencing -negative
EMG-negative
The usual blood work -negative
Some of my symptoms:
Body wide twitching
Innapropiate laughting
Exaggerated gag reflex
Severe scalp hair falling and fragile (also thinning eyebrows )
My body is becoming thinner; both muscle mass and fatty tissue appear to be wasting away (atrophying), which is especially noticeable in my face.
I feel facial tightness, and the contour of my face has changed.
I experience a sensation of pressure/tightness around my eyes and pain when moving my eyes.
I have almost continuous pain in the tissues of my face.
My face appears unhealthy or sickly, and my facial expression seems more fixed and less expressive than before.
My facial features have become more drawn and my face looks noticeably different I have adipose atrophy on my entire face and I think the muscle too although the emg on my face it s normal .
Muscle pain throughout my body, as if I had run a marathon.
My fingernails are brittle, break easily, and no longer grow long.
I feel inflammation throughout my body, with a general feeling of being unwell that fluctuates in intensity.
I have a sensation of acid in my body, as if I had been poisoned.
My ears pop and become blocked everyday it s happening.
The sensation of inflammation can occur anywhere in my body.
I also feel inflammation in my head, with difficulty concentrating, poor memory, and almost continuous headaches,difficulty finding my words
I have eczema on my scalp, around my ears, and on my trunk (torso).
I am still able to do all my usual activities, but with difficulty. I feel as though my entire body has become weaker and is wasting away.
I get tired very quickly and start sweating almost immediately with exertion.
Small granules or bumps appear all over my scalp, similar to the material that comes out of blackheads.
My teeth have become sensitive to cold foods and cold water.
Sometimes I experience abdominal pain, and at the same time I feel warmth/heat and a throbbing or pulsating sensation in my face.
I have difficulty swallowing, with the sensation that food has trouble passing all the way down the esophagus to the stomach, as if the esophagus has narrowed. Also I experience frecquent regurgitation
All my joints and cartilage make sounds, cracking,poping , even my throat and eyes make some trance sounds at movement
I frequently experience abdominal cramps and pain.
I have intermittent constipation.
I really don’t know what it s going on and what and where to go anymore
The only thing that was extremely out of place was calprotectin and I read that it means that the neutrophil or macrophages are activated in some way and it means inflammation in the body , anyone have any idea ?