u/No_Lengthiness2600

Alergija na skoro sve

E pa ovako,postala sam alergicna na skoro svu hranu i na neke spoljne okidace.Niko ne zna sta mi je,bila sam kod alergologa,zatim kod imunologa.Napisali su mi alergija nepoznatog porekla a zatim sam uradila testove na alergije,sve negativno.Misle da se tripujem ali sam imala anafilaksu i primila adrenalin a to ne bi bilo moguće istripovati realno.Brinem se da će mi zdravlje propasti jer sam na ekstremno restriktivnoj dijeti već mesecima.

Inace prepisali su mi duplu dozu bilo kog antihistaminika i epi pen i ono boli ih briga za dalje.

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u/No_Lengthiness2600 — 5 days ago
▲ 5 r/MCAS

Kinda lost hope

I found immunologist that heard off mcas and I had so much hope.I live in a country where mcas is not recognized as real at all.I had serious reaction a month ago,ended up in er with anaphylaxis and got adrenalin injection there.No one knows that's wrong with me,so they sent me to do so many tests.Everything came back normal expect that i have MTHFR mutation and low vitamin D and low folic acid.The thing is,immunologist thought that it was either mastocytosis or histamine intolerance and she somehow didn't consider mcas at all.Then she started insisting on low histamine food list and when I explained to her that it kinda doesn't work for me,at least some low histamine stuff that I tried,she kept saying how it's impossible.Since I said that she told me how it's all psychological and how I'm just anxious and dismissed me entirely.She prescribed me some supplements tho but I'm genuinely so disappointed,sad,I feel so lost.I feel like the only hope that I have is gone.Now everyone I know fully thinks that I'm making it all up.I'm very sad.Also she heavily relies on igg and that showed some sensitivities and she demanded that I have to stop eating food from that list.I think I genuinely can't find a doctor in my area that gets this,like at all.I even traveled to be able to get to her.I mean same country but still.I'm sorry this is too long,it's just,I don't have no one to talk to who actually believes me.

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u/No_Lengthiness2600 — 17 days ago
▲ 4 r/MCAS

Can er make it worse if treated wrongly?

So I ended up in er today due to anaphylaxis caused by drink but I wonder is it possible that I got even worse cause they gave me synopen shot injection and pantropazole pill?Since then it got so bad and then they decided to give me adrenaline shot.I still got hives again when I went back home and my stomach feels awful a whole day...

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u/No_Lengthiness2600 — 2 months ago
▲ 2 r/MCAS

I usually don't post but idk I feel so overwhelmed by all this.Since november I started having allergies to food,out of nowhere.It started with nuts and milk and it mimicked intolerance at first.Then I stopped having that food and wa okayish.Then I had very stressful time and I wasn't eating almond at all.When I got better from all that I was so happy to start eating again but I suddenly couldn't.Most food is giving me horrible allergic reaction.Since then I lost even more food and now I only eat like 3 foods . It's been months and I didn't gain any food back and I'm not diagnosed due to no specialists in my town.This is stressing me out so badly cause I genuinely don't know how to live like this.I'm grieving and missing food every single day of my life,I legit cried due not being able to have chocolate and cakes and muffins and well anything.I only eat rice and a little bit of meat and some juice and that's it.I already take desloratadine but it's not enough.I also live with animals and they were my og allergies before I developed all this.I just felt like writing this somewhere where people understand this feeling cause no one irl that I know has this and they don't understand this level of feeling miserable.The grief and sadness over food and healthy body.I miss being able to eat everything and actually enjoy it.

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u/No_Lengthiness2600 — 2 months ago