Yesterday, I went to Sziget, but I could only see Paris because I was feeling weak due to some health issues and couldn’t stay that long. Now the FOMO is hitting hard. Fortunately, I already saw Florence in March on the tour.
How do you deal with Florence FOMO? Do you think she’s working on a new album?
Yesterday, I had very bad diarrhea after taking Mestinon. I’ve been taking Mestinon for months now. At first, I did have diarrhea as a side effect, but it was just a slight discomfort. Yesterday, I got diarrhea about 2.5 hours after taking Mestinon. It was very severe, with a lot of abdominal pain and watery stool. I don’t know if it was caused by the Mestinon or if I just ate something bad. Can Mestinon suddenly cause severe diarrhea even if I haven’t experienced it before?
Edit: Does the diarrhea stop when the mestinon loses its effect (4 hours)?
My doctors want to check me for a thymoma and want me to have a CT scan with contrast. I am hesitant because I am extremely weak right now. I am very tired and dizzy, and also malnourished because of my dysphagia. Do you think there is a way to check for a thymoma without a contrast-enhanced CT? Would a non-contrast CT, an MRI, or a chest X-ray be enough? What did you have?
I’m currently being evaluated for MG because of severe dysphagia. My neurologist started me on a Mestinon trial, but even 15 mg causes significant hypersalivation, which actually makes my swallowing much worse. My fatigue improves on mestinon, but that is not my most disturbing symptom.
Hey all,
I’ve had severe difficulty swallowing for 5 years. During the first 4 years, it wasn’t too severe, and doctors brushed it off as anxiety. This year it got worse, so I went to see a neurologist.
They suspected myasthenia gravis because my symptoms are worse at night. My antibody tests came back negative for MuSK and borderline for AChR. Then I was referred for repetitive nerve stimulation (RNS), which also came back borderline, showing a decrement of 9% in my arm and facial muscles.
The EMG specialist said that, based on my symptoms and EMG results, I likely have MG, and I was prescribed 30 mg of Mestinon.
At first, I felt like Mestinon helped with my fatigue and swallowing. But later I noticed that every time I take Mestinon, I get a weird throat tightness and a globus sensation, like I need to burp but can’t.
I’m still waiting to see an MG specialist and to have an SFEMG done. Because of these Mestinon side effects, I’m starting to wonder if I actually have MG.
What are your experiences with Mestinon side effects? Has anyone else experienced this weird throat sensation?
26F, 161 cm, 45 kg, celiac disease, currently experiencing dysphagia without a specific diagnosis.
Hey! I don’t know what is wrong with me. I have had difficulty swallowing for about 4 years. Sometimes it got worse, sometimes it got better. Two months ago it became much worse, and I started undergoing medical evaluations. The process is still ongoing, but so far I have had a normal upper endoscopy, negative myasthenia gravis antibody tests, and a brain MRI that was normal except for a small pineal cyst. I am still scheduled for a barium swallow study and an EMG.
I had my upper endoscopy under anesthesia two weeks ago. Since then, I have felt even worse. My heart rate has been around 120 bpm once or twice every day, especially after eating. I also feel very tired and dizzy.
I am trying hard to eat and drink enough despite my dysphagia, but I still feel awful. I saw a cardiologist, and my heart appears to be healthy. I even went to the ER, where they ran blood tests and everything seemed normal.
I still feel very unwell, and I don’t understand what could be causing these symptoms. Has anyone experienced something similar or have any ideas about what I should discuss with my doctors?
26F, 161 cm, 45 kg, celiac disease, currently experiencing dysphagia without a specific diagnosis.
Hey! I don’t know what is wrong with me. I have had difficulty swallowing for about 4 years. Sometimes it got worse, sometimes it got better. Two months ago it became much worse, and I started undergoing medical evaluations. The process is still ongoing, but so far I have had a normal upper endoscopy, negative myasthenia gravis antibody tests, and a brain MRI that was normal except for a small pineal cyst. I am still scheduled for a barium swallow study and an EMG.
I had my upper endoscopy under anesthesia two weeks ago. Since then, I have felt even worse. My heart rate has been around 120 bpm once or twice every day, especially after eating, and I also feel tired and dizzy.
I am trying hard to eat and drink enough despite my dysphagia, but I still feel awful. I saw a cardiologist, and my heart appears to be healthy. I even went to the ER, where they ran blood tests and everything seemed normal.
I still feel very unwell, and I don’t understand what could be causing these symptoms. Has anyone experienced something similar or have any ideas about what I should discuss with my doctors?
I just had an gastroscopy. Still dizzy and exhausted. When does it get better?
I really need advice because I’m feeling extremely miserable and scared. For about 5 years I’ve had swallowing problems, but recently they became much worse. Right now my biggest issue is with solid food. I can somehow still drink liquids, but when I try to swallow solids, the swallow often just won’t start properly. It feels like the food gets stuck in the back of my throat and my body refuses to complete the swallow. Food got stuck many times before, so I became very aware of and scared of swallowing. I also have a weak voice, a constant mucus feeling in my throat, coughing up mucus balls and extreme fatigue.
The investigation is already ongoing. I’ve seen a neurologist, already had an MRI and I’m going for a gastroscopy soon, but so far I still don’t have any clear results or diagnosis.
Has anyone experienced oropharyngeal dysphagia with throat mucus?
I would really appreciate hearing from anyone who has gone through something similar because I feel very alone and overwhelmed right now.