u/Ok_Gate7783

Hi. This is the first time I’ve posted in this thread. I am currently 14 weeks pregnant with my third baby. They were diagnosed a couple of weeks ago with acrania. This is a fatal condition. We are absolutely devastated and heartbroken. I have decided to carry the baby for as long as I’m able to. But the day to day wondering and being fearful of the future is eating me alive. I try not to worry about the what ifs But somedays is washes over me so intensely. I am just really sad that this is happening and I’m just looking for solidarity and comfort in knowing that it will be okay, even though it definitely wont be okay.

Did you all do anything to help support your hormones after your TFMR? The maternal fetal medicine doctor said sometimes your hormones go crazy after the procedure. What was your experience like?

We got the confirmed diagnosis yesterday of acrania at 11 weeks 5 days. I think in the 9 day waiting period between initially finding out and then the second appointment with the MFM doctor, I was hoping and praying that my babies skull would form and that I wouldn’t have to make this decision. But it didn’t. a gut punch.

i am so sad today. Angry, exhausted, numb. How can I bring myself to TFMR? I am so heartbroken.

I am 11 weeks pregnant and I just found out a couple of days ago that my baby has a really rare condition called acrania. Its where the top part of the skull failed to form so the babies brain is exposed. This is 100% fatal. I am a believer in Jesus and am really struggling with what I am supposed to do. Do I carry this baby to full term and deliver it only for it to pass away minutes to hours later? Or do I termiate now to save this sweet baby from suffering? Do I wait until my body maybe miscarries on its own? I am truly at a loss and do not know what to do. Everyone in my life says they support me no matter what we decide.

please be kind. I do not want or need any crazy mean, opinionated comments. This is already hard enough.