u/Ok_LR

Kinda short notice but, I just saw this while looking for things to do this weekend and just wanted to share cause it's free and looks really amazing! It's a sort of creative/social sumer camp/retreat with like 400 people going!

They haven't put the location up yet, but they said somewhere in London 10AM - 4PM.

I know the group they do lots of other social/creative sort of stuff which was really good. If anyone's intrested, it's a good way to get away from all the london stuff wihtout actually having to go far or get up to early.

Also if u wanna meetup befor lmk, probably definatley gonna get lost!

https://www.meetup.com/thought-experiments-in-pubs/events/315634888

Hey Everyone! Just sharing incase anyone else wants to meet some more ADHD people in London.

It's this saturday at 3PM - 9PM, there's about 100 people coming so far.

Here's the link: https://www.meetup.com/yay-dhd/events/315941584

Missed the last few due to work so don't know anyone in the group. If anyone's intrested & wanna come with lmk!

Hey Everyone! Just saw this last min and planning on going tommorow! Can't take credit, but its is an awsome idea. About 150 people going so far.

Here's the link: https://www.meetup.com/yay-dhd/events/315369263

If anyone's intrested, wanna come with lmk!

And heads up if u haven't realised Charing Cross and Waterloo East are closed till August 16 😭

REPOST: Sorry everyone I supper dumb and wrote 2023 instead of 2026 in the tittle of the orignal post. If u can upvote this and I'll get rid of the origanal🤦‍♂️😭😭

Hey Everyone!

I'm 24M, looking to put a big group together for Pride - it's only 2 weeks away! 😯

I've been going for about 3 years and it's so much fun when it's a big group of us! I'm usually in the parade with my work, but they're already out of space for the float :(

Everyone is welcome to join, come with your friends or by yourself, it's gonna be an amazing time! I'll create a group chat for those interested as well and we can decide on details, where to meet, etc + I'll update on here once we have meeting location etc. set in stone if u don't wanna join.

Rough outline of a plan is to watch the parade in the morning, then head somewhere to hang out and chill, dance, thinking maybe Soho? Or just find a street party? Depends what everyone wants!

Open to ideas! Lmk, comment or DM whichever's fine

P.S. Don't worry if you've never been before & comming alone, I'll introduce you to everyone, it's like a really happy, alive, energetic atmosphere, you'll love it!

And Happy Pride!!! 🎉🏳️‍🌈

Edit: YES THIS IS FOR 2026, I was hella dumb and wrote 2023 in the title instead.

Hey Everyone!

I'm 24M, looking to put a big group together for Pride - it's only 2 weeks away! 😯

I've been going for about 3 years and it's so much fun when it's a big group of us! I'm usually in the parade with my work, but they're already out of space for the float :(

Everyone is welcome to join, come with your friends or by yourself, it's gonna be an amazing time! I'll create a group chat for those interested as well and we can decide on details, where to meet, etc + I'll update on here once we have meeting location etc. set in stone if u don't wanna join.

Rough outline of a plan is to watch the parade in the morning, then head somewhere to hang out and chill, dance, thinking maybe Soho? Or just find a street party? Depends what everyone wants!

Open to ideas! Lmk, comment or DM whichever's fine

P.S. Don't worry if you've never been before & comming alone, I'll introduce you to everyone, it's like a really happy, alive, energetic atmosphere, you'll love it!

And Happy Pride!!! 🎉🏳️‍🌈

So I (M24) have had chronic backpain since teens, nothing structural on MRI just very tall, weight normal. Been on opioids for chronic lower/mid back pain since 18. Went codeine → DHC → tramadol/tapendatol → buprenorphine patch (done of these did much) → sublingual buprenorphine via nhs pain clinic in london which worked great.

TLDR is: I was stable for years on meds (sublingual bupp) that worked, living my life, happy as. Then NICE guidlines changed and one day my consultant tried to completley take me of meds. Even after complaining and pleading to head of pain clinic they swiched me to something that doesn't even work and now can't function, can't sleep, missing work. My pain clinc consultant even brasenly documents all of this and then goes tough luck there's nothing else we can give you get lot's but like check back in in 6 months sucker.

I don't know what to do, I don't want to be ominous but while this is bearable for now for a while, there's no way I can manage a year or 2 years or the rest of my life like this. Any thoughts?

They honestly are heartless, sadistic, inhuman... I wont complete the rest of that sentance.

So the story goes:

• Was stable and functional on 300 x 200mcg sublingual buprenorphine/month for 3 years, getting on with my life, not bothering anyone.
• The all of a sudden after years my consultant just started tapering me me off sublinguals, much to my protestation/pleading/demeaning myself. Just said try a tens machine or hot water bottle idiot every time, it was psychotic - "I'm in agony, I litterally cant move" - "try moving the hot water bottle further up that will solve it", "You got to give the tense machine and pysio time to work, you cant expect a miracle overnight"
• Obviously I complained. But even the head of the pain clinic just, replaced with buprenorphine patches and told me bad luck, get lost, national guidlines say we cant prescribe opiods for chronic pain anymore this and that.
• Problem is sublinguals tablets work better than patches because they produce intense peaks meaning opioid receptors get a burst then a rest period and can partially reset/desensitise between doses.
• Patches meanwhile deliver a flat constant dose so receptors never get a break, tolerance builds faster, analgesic effect is blunted.
• Currently I'm on buprenorphine patch 20mcg/hr + Dihydrocodine PRN (read every damn day now) + pregabalin + naproxen every day + paracetamol every day. Still in 5/10 pain with all this, can't sleep, can't even get about some days, dread to think how my liver's doing.
• If I understand corerctly its due to NICE NG193 which says for "chronic primary pain" (pain with no clear underlying cause), opioids should NOT be started and should be reviewed.
• I'm only at about ~60mg/day in morphine equivelent dose.
• Tried medical canabis.

Any ideas on what to do/try? How are you all surving. 1 person said,

Thoughts that probably wont work:

1. GP can not start oxy/morphine for break through pain so that is a dead end and stcuk with DHC which I'm a poor metaboliser of anyway.
2. Ask GP to refer to a different NHS pain clinic via right to choose, but since it's national guidance and london formulary they'd just say the same we don't give opiods for chronic pain.
3. Go private painclinic, not sure if they are subject to the same no opiods for chronic pain guidance. Plus, cant afford it anyway.

Anyone got any experience with this, had any success?