u/OverthinkUndersleep

I don't know where to go from here

Following on from my last post- https://www.reddit.com/r/Fibromyalgia/s/u0TUozHXiV -

I went to my GP after my limping and pain increased. Was sent to hospital as they wanted to rule out blood clot. The hospital staff literally rolled their eyes when fibromyalgia was mentioned, they refused to do a scan but did the D-Dimer blood test and ruled out clotting issues that way. I was terribly upset and asked them what on earth do I do, I can barely walk. They flippantly just shrugged and said to take paracetamol and get back to my GP.

I am drained. I'm in pain. I'm staying on the sofa at my mum's house as I can't face the pain of getting up the stairs to my flat, or trying to get in and out of the bath.

I just don't know what to do. My autistic son has just had surgery so needs me right now, I also have a 10 Yr old with suspected ADHD. I am a lone parent, and I can't afford to not function like this.

reddit.com
u/OverthinkUndersleep — 21 hours ago

How to ask GP for help?

Hello. Looking for some pointers on how to speak to my GP. I'm in the UK and only diagnosed with Fibromyalgia in the last 6 months. My mum is urging me to go back to my GP as I'm not getting any relief from Naproxen, and I am struggling beyond anything I ever have.

Things I'm struggling with right now inclue:

- Pain in legs and feet getting worse. I have had Plantar fasciitis in my left foot for almost 3 years now. I wear special insoles. I do the stretches. I wear the right shoes. It just won't go away. Over the past week, I seem to have developed a cramp-like pain in my right calf. Again, it just won't go away. I'm now limping and walking is very painful.

- Loss of strength in arms. I'm struggling to cook or carry things. I live in a flat and now the rubbish is piling up because I can't carry the bags down the stairs. I'm struggling to wash my hair or tie it up as I can't keep my arms up for long enough.

- extreme tiredness and fatigue

- anxiety

- seb derm flare up. My skin hurts so much.

Also headaches, sleep disturbance due to pain, chest pain, using the toilet much more frequently.

I feel that my GP is going to just think I'm a drama queen. I feel like I'm drowning and don't know how to ask for help.

reddit.com
u/OverthinkUndersleep — 5 days ago

Where to start.. I've been in pain for as long as I can remember now, with things ramping up the last couple of years.

A brief history:

Traumatic childhood. Wonderful family but the outside world has been extremely hurtful and I've experienced many things nobody should.

Traumatic adulthood. Frequent illness, blindsided by a relationship with a narcissist that ended very, very badly. This was kept hush from everyone else in my life because I couldn't talk about it.

Single parent of 2 neurodivergent children whom it has been hell to get support for.

Abusive ex. Thankfully not in our orbit anymore so I do not co-parent with him but the damage is done.

Adenomyosis & achalasia.

In pain all the damn time. Hips, knees, legs, feet. Plantar fasciitis for 2 years straight now. On naproxen for pain.

I've just suffered a devastating loss in my family.

Nobody to lean on.

I was formally diagnosed with Fibromyalgia in January. Letter to confirm diagnosis sounds so watered-down compared to what I'm actually feeling and how overwhelmed I am by the pain. I'm on a waitlist to see a pain psychologist.

I don't even really know why I'm writing this. I feel so lost and helpless when I have no choice but to be the strong one.

reddit.com
u/OverthinkUndersleep — 14 days ago