For reference of not on any medications that should cause this, I also have a history of autoimmune disease and epilepsy. The ER doctor said not to be concerned about this however, I didn’t quite understand it cause my levels were quite abnormal if anyone has any insight that would be awesome. I’m not on prednisolone or prednisone, either - off of my hydro chloroquine as well.
I’m asking for help during a time when my health has made it incredibly difficult to support myself independently. I am living with lupus, which has affected nearly every part of my life, including my brain and nervous system, kidneys, joints, muscles, and lungs. I am also being evaluated for possible myositis, which may be contributing to significant muscle weakness and pain. On a daily basis, I deal with severe fatigue, weakness, vertigo, episodes of impaired or lost vision, loss of balance and coordination, migraines, fevers, joint and muscle pain, stiffness, skin flares, brain fog, and periods when even basic tasks become overwhelming. I have been through multiple hospitalizations and medical crises, and there are many days when getting to an appointment, preparing food, or handling routine responsibilities takes everything I have.
What makes this situation even more difficult is that I do not have the kind of family safety net many people are fortunate enough to rely on. I come from a quite unstable and mentally disturbing family environment, and establishing financial and physical independence is deeply important to both my safety and my future.
Before my health became this severe, I was in college and working, and it has been heartbreaking to lose the ability to do either right now. Because of how sick I’ve been, consistent work has become nearly impossible. For months, I have struggled to afford rent and have not been able to consistently buy the nutritious food my body needs while managing a serious chronic illness. I started this fundraiser in the hope of creating some stability while I continue seeking answers and treatment. Donations will help me keep my housing stable, afford food, cover essential bills, pay for transportation, medical appointments, and diagnostics, and, if needed, travel to a larger medical center for more specialized care. My goal is to regain as much strength and function as possible so I can eventually return to the work and life that mean so much to me.
How you can help: Any amount truly helps. If you’re not in a position to donate, sharing this fundraiser would mean so much to me and could make a real difference.
Thank you for helping me find some stability, continue fighting for answers, and get back on my feet. ❤️
GoFundMe: https://gofund.me/8b3cc2a54