u/Past-Trick6710

I’ve been struggling a lot with rumaiting when it comes to these svt sysmtoms and not knowing if I have it.

Years ago I worked out and went bike riding and nothing happened. Last year I drank Diet Coke and sometimes coffee. I also took only 25 mg of atenolol. I’m really upset because i felt a lot more free last year even after my pots dx and I think an svt episode? But for ten months I did those things and had zero issues. I was also going out to drink with friends. I wasn’t having frequent symptoms or these episodes. I used to bike a lot. And go for long walks and last year after I had something happen in Sept 2024 where my HR was 160-170 for 10 mins I was sitting I thought it was my pots but it didn’t happen for ten months so at least last year I wasn’t scared to go walking or get my HR up. It can’t be good that I don’t move much. Because I already have constant palpitations.

Since August 2025 I have had random high HR normally 170 sometimes seconds mins or 45 mins. Since upping to atenolol 100 mg i hit maybe 150 max so far but it’s confusing last year i took such a small dose and was fine. I also deal with my resting Hr hardy going lower than 70. And sleeping is 70-115. Rolling over, stretching (laying) average 24 hours is probably 84 bpm. So can’t be ist?

My recent monitor showed AT two seconds I was on 50 mg of atenolol they said I was fine. And it’s normal but doesn’t this mean I have AT SVT even if it wasn’t sustained? Because in March the other high HR i had was for much longer.

I’m upset what could I do? If anyone can offer some advice or relate at all. How can I balance my life how could I do it last year. I am so depressed because I know it’s not anxiety. I am afraid to simply go for a walk in the mall or even see a movie. Because my symptoms are frequently happening my HR can be 150 even after sitting at home or in the car it doesn’t matter where I am. And when my symptoms aren’t bad I am more anxious because it doesn’t make sense. It’s like I’m dealing with the fact I’m scared to do things.. I want to go out with friends, go for walks, do things and then not have to worry about this anymore. Fyi dr won’t give me an ep study. Which is ridiculous to me. And like I’m not sure how Svt goes dormat? If that’s possible? And if I do have Svt why last year I didn’t have issues.

I am so anxious because I’m tired of how confusing my symptoms are. And I wanna feel like how I used to. And be able to go out and live my life to have coffee to drink sometimes because I used to.

Some days my HR can be not flaring other days it does and I do the same thing. But my main worry is that my episodes are atrial tachycardia because my monitor showed it for two seconds while on a 30 day monitor but it was 2 seconds. Does that mean I likley have it?

I’m dealing with really severe anxiety because I feel like everyone my age right now and I’m in my 20s is going out drinking and that’s something I wanna do and something I did before and now that all this has started for me I’ve been really scared to do it and it’s just really impacted my mental health because I wanna go out and socialize and drink. I mean you can’t blame me. I feel like that’s pretty normal for young people

I’m also very convinced that I have SVT at this point I feel like there’s so much proof that I have atrial tachycardia with my symptoms and because when I had my monitor, it showed two seconds of atrial tachycardia, but they told me because it wasn’t long enough that I don’t actually have SVT because it wasn’t sustained but assuming I have SVT like how am I able to go out and drink and like get past that beer this is something that’s really upsetting. Just because I think in the past I have no issues with it. I also have POTS so that’s another thing add on.

Just for a backstory, I drank last year and it was after I think I had SVT symptoms already and I had pot symptoms already so I don’t know what would make this year different. But it’s so so confusing but my symptoms have been like way worse so it’s hard. I think I’m on a point as well where I feel like too depressed to do things because of this.

My most recent heart monitor I did have two episodes where my heart rate was 140 and they told me that it was sinus tachycardia, but in the back of my head couldn’t have been atrial tachycardia if it looks really similar to sinus tachycardia because that monitor did show some atrial tachycardia

Very very frustrated with doctors.

vent and just very frustrated. Vulnerable post.

over the last few months. I’ve developed severe agoraphobia and then also this feeling of feeling free when my symptoms aren’t bad but then also I’m still anxious when they aren’t bad because of my whole situation.

I feel like with what I’ve been going through. It’s completely ruined my life. I also did get broken up with the other day which honestly I completely understand why I got broken up with and that’s just because this has made me so incapable.

I’m afraid to drive or I’m afraid to take showers. I’m even afraid to sleep constantly obsessing on my symptoms because of how much it’s taken for me and of course I’m afraid to do things because just doing simple and basic things even just sitting on the couch, I’m having symptoms so of course I’m afraid to go out with friends and then when I don’t have symptoms, I’m anxious because it’s just like confusing overall for me. This has taken so much for me. I don’t know how I’m supposed to have a good summer or go out with friends and socially drink and even go to the beach, which is what I also wanted to do this summer, but I feel like that’s not entirely possible because of my symptoms so I’m just very sad. I’m someone that loves going for walks and I love working out but because of my symptoms again it’s been very hard for me to do. I am curious anyone that deals with the symptoms that I have how are you able to drink and just live your life and have fun because I’m sick of this. I’m 26 and a female so I’m someone that already gets dismissed by doctors.

But the last few months, my sleeping heart rate has been 70 to 115 bpm and I take a max dose of a beta blocker and some days I take an extra beta blocker because my symptoms are so bad when I’m laying flat and I stretch my legs. My heart rate goes up 20 to 30 beats when I drink water or when I laugh or even move slightly my heart rate goes up 20 beats. My doctor told me that I don’t have inappropriate sinus tachycardia because my resting heart rate is 90 or 100 on average but it’s just so confusing cause I could be doing laundry or going for a walk and then randomly my heart rate spikes till like 120 or 130 so I am kind of wondering if it is an appropriate sinus tachycardia and my doctor just doesn’t know?

I do have a POTS diagnosis and I am grateful for that, but I just don’t think that the symptoms I’m having are all related to my POTS like for example when I have a POTS flare if it’s really hot out and I haven’t had much water or I go from sitting to stand in my heart rate goes above 30 beats, and then when I sit, it comes back down automatically that I know is my POTS, but sometimes when my heart rate stays high at rest, even after sitting or my standing heart rate is the same as when I’ve been sitting, it just makes me more confused

No doctor has been able to really give me any explanation for my symptoms even if they can’t diagnose me it’s more of like validating what I’m going through and giving me an understanding of what’s going on and also telling me OK you can drink and you can work, but these are the ways to do it and I feel like my doctor hasn’t done that and I just don’t know if anyone else has experienced that cause again it’s taken so fucking much for me and I’m so frustrated because my personality feels like it was ripped away from me and I’m tired of being this nervous shell of myself

On top of it, I’m still dealing from the trauma and PTSD, which is kind of an extreme word from my episodes in March. When my heart rate hit 170 while I was driving for five minutes and my heart was just racing like so fast and I didn’t even feel anxious before like it happened out of nowhere and then when I got my monitor, which was a few few days later I got my medication because I was nervous and then I only had two seconds of SVT on there with three beats of atrial tachycardia and then they told me well. It wasn’t sustained so we can’t say the other episode you had was sustained or not but I’m like I remember that episode in my heart rate was higher for a longer period so I feel like this means I have SVT and they told me no and they didn’t wanna give me an EP study even though I pushed for it. So they won’t diagnose me with SVT.

I also haven’t even really felt anxious today, but it is 4 July and I’m kind of wanting to go out with friends to a bar but then it’s just like again I’m afraid to drink but last year I drank and I didn’t really have any issues and it was after my pot symptom started and after I think I had like weird tachycardia episode so it’s confusing and I was also on a lower dose beta blocker then as well I just feel so so so left out. And it’s like a daily thought I go to bed and I’m anxious because it’s like I wanna wake up and I wanna like not be afraid to do things. I wanna just go and do them myself or go and work but then I’m just like thinking about my symptoms all the time because some days they might be fine and then other days they’re not like I could have three full days of doing the exact same thing where my resting heart rate could be like 73 and then randomly the day after my resting heart rate is like 95 and I’m getting palpitations and like weird symptoms, but I could literally have the same amount of water and then I try not to overdo electrolytes because I don’t have low blood pressure when I stand. And it’s like I was given a great life like I’m thankful for the things I was given, but I’m anxious because I feel like I’m not living that life to fulfillment like I want to and there’s so many things I wanna do but right now I just feel so incapable on top of the fact that I’ve told this to my doctor told them my worries told them how depressed I am because I’m a 20 six-year-old who wants to go live their life and go have a few drinks at the bar or go for a run and they’re not like really telling me I can or can’t do it but then also like not helping me create some sort of action plan and giving me an explanation.

Ep said no ep study so they said go to another office but the office they recommended requires a referral and they literally haven't given me one and it's been like four weeks
I'm just sick of this because I am someone that struggles with OCD so then when my symptoms aren't bad I'm anxious because I'm just like waiting for them to happen and I haven't even really been anxious today at all, and of course, my resting heart rate is on the higher end today and it's just so frustrating because I feel like I can't ever fully relax. I have days where I'm stressed out and my heart rate is actually pretty low so again this whole thing is just so confusing on top of it and knowing my body, ! know that what I'm going through isn't anxiety.
I also got broken up with recently, which sucks, but I completely understand because this entire thing has made me incapable. I'm 26. I wanna work and live my life.
This is the most depressive ever felt. I'm so frustrated and I'm so angry because it's just like when is it gonna end? | wake up in agony every single fucking day...

I’m also just very frustrated because I think I feel like left out in friendships and relationships just because of what I’m going through and I also understand like people who are chronically oh wanna label themselves as that but I just don’t wanna do that personally because I don’t wanna live in like a victim mentality. This is something I’m really struggling with and it’s like I feel like if I do that I’ll never get better and I would probably hyper fixate on that for example like with my OCD I’m like oh imagine how I would be without my symptoms so it would just add to the victim mentality I’ve thought about going on medication, but I don’t know which one’s best for me. I also do go to therapy as well..

So if anyone relates or has advice on how to live your life how to balance your social life how to have good relationships, how to not label yourself as chronically ill because you don’t want to feel like you are and how are you able to go out and have a good time and drink, socially and also explain how last year I was able to do it. I think I’m so afraid that if I do it, I’ll go into like SVT or something. Or some kind of pot flair.

(The tachycardia is probably my biggest struggle, but I also deal with for about two years now my shoulders and chest, especially if I flex my shoulders down it’s like extremely tight and then I’ve dealt with some like chronic Venus and insufficiency so like I have varicose veins apparently but my legs are like purple a lot, especially if I’m like sitting anytime my legs aren’t elevated. They’re always purple and my doctor still haven’t done anything about it and I’ve tried socks and it doesn’t do anything for me)

I’m also feeling frustrated because I don’t really feel confident with my medication regimen
Like I never know if it’s gonna work or not. Overall, I’m just trying to get to the point that I wanna be someone in their 20s that goes out and enjoys their life, but I feel like I can’t do that but then I also at the same time but it also was like my symptoms and I’m dealing with and being scared. I don’t know what to do.. I want to workout I imagine
That/ how I would feel and being able to go out with friends drinking. And how I would be without my symptoms it’s probably the main reason for my depression and just being upset right now.

Very very frustrated with doctors.

vent and just very frustrated. Vulnerable post.

over the last few months. I’ve developed severe agoraphobia and then also this feeling of feeling free when my symptoms aren’t bad but then also I’m still anxious when they aren’t bad because of my whole situation.

I feel like with what I’ve been going through. It’s completely ruined my life. I also did get broken up with the other day which honestly I completely understand why I got broken up with and that’s just because this has made me so incapable.

I’m afraid to drive or I’m afraid to take showers. I’m even afraid to sleep constantly obsessing on my symptoms because of how much it’s taken for me and of course I’m afraid to do things because just doing simple and basic things even just sitting on the couch, I’m having symptoms so of course I’m afraid to go out with friends and then when I don’t have symptoms, I’m anxious because it’s just like confusing overall for me. This has taken so much for me. I don’t know how I’m supposed to have a good summer or go out with friends and socially drink and even go to the beach, which is what I also wanted to do this summer, but I feel like that’s not entirely possible because of my symptoms so I’m just very sad. I’m someone that loves going for walks and I love working out but because of my symptoms again it’s been very hard for me to do. I am curious anyone that deals with the symptoms that I have how are you able to drink and just live your life and have fun because I’m sick of this. I’m 26 and a female so I’m someone that already gets dismissed by doctors.

But the last few months, my sleeping heart rate has been 70 to 115 bpm and I take a max dose of a beta blocker and some days I take an extra beta blocker because my symptoms are so bad when I’m laying flat and I stretch my legs. My heart rate goes up 20 to 30 beats when I drink water or when I laugh or even move slightly my heart rate goes up 20 beats. My doctor told me that I don’t have inappropriate sinus tachycardia because my resting heart rate is 90 or 100 on average but it’s just so confusing cause I could be doing laundry or going for a walk and then randomly my heart rate spikes till like 120 or 130 so I am kind of wondering if it is an appropriate sinus tachycardia and my doctor just doesn’t know?

I do have a POTS diagnosis and I am grateful for that, but I just don’t think that the symptoms I’m having are all related to my POTS like for example when I have a POTS flare if it’s really hot out and I haven’t had much water or I go from sitting to stand in my heart rate goes above 30 beats, and then when I sit, it comes back down automatically that I know is my POTS, but sometimes when my heart rate stays high at rest, even after sitting or my standing heart rate is the same as when I’ve been sitting, it just makes me more confused

No doctor has been able to really give me any explanation for my symptoms even if they can’t diagnose me it’s more of like validating what I’m going through and giving me an understanding of what’s going on and also telling me OK you can drink and you can work, but these are the ways to do it and I feel like my doctor hasn’t done that and I just don’t know if anyone else has experienced that cause again it’s taken so fucking much for me and I’m so frustrated because my personality feels like it was ripped away from me and I’m tired of being this nervous shell of myself

On top of it, I’m still dealing from the trauma and PTSD, which is kind of an extreme word from my episodes in March. When my heart rate hit 170 while I was driving for five minutes and my heart was just racing like so fast and I didn’t even feel anxious before like it happened out of nowhere and then when I got my monitor, which was a few few days later I got my medication because I was nervous and then I only had two seconds of SVT on there with three beats of atrial tachycardia and then they told me well. It wasn’t sustained so we can’t say the other episode you had was sustained or not but I’m like I remember that episode in my heart rate was higher for a longer period so I feel like this means I have SVT and they told me no and they didn’t wanna give me an EP study even though I pushed for it. So they won’t diagnose me with SVT.

I also haven’t even really felt anxious today, but it is 4 July and I’m kind of wanting to go out with friends to a bar but then it’s just like again I’m afraid to drink but last year I drank and I didn’t really have any issues and it was after my pot symptom started and after I think I had like weird tachycardia episode so it’s confusing and I was also on a lower dose beta blocker then as well I just feel so so so left out. And it’s like a daily thought I go to bed and I’m anxious because it’s like I wanna wake up and I wanna like not be afraid to do things. I wanna just go and do them myself or go and work but then I’m just like thinking about my symptoms all the time because some days they might be fine and then other days they’re not like I could have three full days of doing the exact same thing where my resting heart rate could be like 73 and then randomly the day after my resting heart rate is like 95 and I’m getting palpitations and like weird symptoms, but I could literally have the same amount of water and then I try not to overdo electrolytes because I don’t have low blood pressure when I stand. And it’s like I was given a great life like I’m thankful for the things I was given, but I’m anxious because I feel like I’m not living that life to fulfillment like I want to and there’s so many things I wanna do but right now I just feel so incapable on top of the fact that I’ve told this to my doctor told them my worries told them how depressed I am because I’m a 20 six-year-old who wants to go live their life and go have a few drinks at the bar or go for a run and they’re not like really telling me I can or can’t do it but then also like not helping me create some sort of action plan and giving me an explanation.

Ep said no ep study so they said go to another office but the office they recommended requires a referral and they literally haven't given me one and it's been like four weeks
I'm just sick of this because I am someone that struggles with OCD so then when my symptoms aren't bad I'm anxious because I'm just like waiting for them to happen and I haven't even really been anxious today at all, and of course, my resting heart rate is on the higher end today and it's just so frustrating because I feel like I can't ever fully relax. I have days where I'm stressed out and my heart rate is actually pretty low so again this whole thing is just so confusing on top of it and knowing my body, ! know that what I'm going through isn't anxiety.
I also got broken up with recently, which sucks, but I completely understand because this entire thing has made me incapable. I'm 26. I wanna work and live my life.
This is the most depressive ever felt. I'm so frustrated and I'm so angry because it's just like when is it gonna end? | wake up in agony every single fucking day...

I’m also just very frustrated because I think I feel like left out in friendships and relationships just because of what I’m going through and I also understand like people who are chronically oh wanna label themselves as that but I just don’t wanna do that personally because I don’t wanna live in like a victim mentality. This is something I’m really struggling with and it’s like I feel like if I do that I’ll never get better and I would probably hyper fixate on that for example like with my OCD I’m like oh imagine how I would be without my symptoms so it would just add to the victim mentality I’ve thought about going on medication, but I don’t know which one’s best for me. I also do go to therapy as well..

So if anyone relates or has advice on how to live your life how to balance your social life how to have good relationships, how to not label yourself as chronically ill because you don’t want to feel like you are and how are you able to go out and have a good time and drink, socially and also explain how last year I was able to do it. I think I’m so afraid that if I do it, I’ll go into like SVT or something. Or some kind of pot flair.

(The tachycardia is probably my biggest struggle, but I also deal with for about two years now my shoulders and chest, especially if I flex my shoulders down it’s like extremely tight and then I’ve dealt with some like chronic Venus and insufficiency so like I have varicose veins apparently but my legs are like purple a lot, especially if I’m like sitting anytime my legs aren’t elevated. They’re always purple and my doctor still haven’t done anything about it and I’ve tried socks and it doesn’t do anything for me)

I also feel pretty anxious because I never know if my medication regimen is gonna work or not. Overall, I’m just trying to get to the point that I wanna be someone in their 20s that goes out and enjoys their life, but I feel like I can’t do that but then I also at the same time but it also was like my symptoms and I’m dealing with and being scared

vent and just very frustrated. Vulnerable post.

over the last few months. I’ve developed severe agoraphobia and then also this feeling of feeling free when my symptoms aren’t bad but then also I’m still anxious when they aren’t bad because of my whole situation.

I feel like with what I’ve been going through. It’s completely ruined my life. I also did get broken up with the other day which honestly I completely understand why I got broken up with and that’s just because this has made me so incapable.

I’m afraid to drive (had 170 hr driving once) and so other times I’ve been fine that makes me more anxious i have “svt” or I’m afraid to take showers. I’m even afraid to sleep constantly obsessing on my symptoms because of how much it’s taken for me and of course I’m afraid to do things because just doing simple and basic things even just sitting on the couch, I’m having symptoms so of course I’m afraid to go out with friends and then when I don’t have symptoms, I’m anxious because it’s just like confusing overall for me. This has taken so much for me. I don’t know how I’m supposed to have a good summer or go out with friends and socially drink and even go to the beach, which is what I also wanted to do this summer, but I feel like that’s not entirely possible because of my symptoms so I’m just very sad. I’m someone that loves going for walks and I love working out but because of my symptoms again it’s been very hard for me to do. I am curious anyone that deals with the symptoms that I have how are you able to drink and just live your life and have fun because I’m sick of this. I’m 26 and a female so I’m someone that already gets dismissed by doctors.

But the last few months, my sleeping heart rate has been 70 to 115 bpm and I take a max dose of a beta blocker and some days I take an extra beta blocker because my symptoms are so bad when I’m laying flat and I stretch my legs. My heart rate goes up 20 to 30 beats when I drink water or when I laugh or even move slightly my heart rate goes up 20 beats. My doctor told me that I don’t have inappropriate sinus tachycardia because my resting heart rate is 90 or 100 on average but it’s just so confusing cause I could be doing laundry or going for a walk and then randomly my heart rate spikes till like 120 or 130 so I am kind of wondering if it is an appropriate sinus tachycardia and my doctor just doesn’t know?

I do have a POTS diagnosis and I am grateful for that, but I just don’t think that the symptoms I’m having are all related to my POTS like for example when I have a POTS flare if it’s really hot out and I haven’t had much water or I go from sitting to stand in my heart rate goes above 30 beats, and then when I sit, it comes back down automatically that I know is my POTS, but sometimes when my heart rate stays high at rest, even after sitting or my standing heart rate is the same as when I’ve been sitting, it just makes me more confused

No doctor has been able to really give me any explanation for my symptoms even if they can’t diagnose me it’s more of like validating what I’m going through and giving me an understanding of what’s going on and also telling me OK you can drink and you can work, but these are the ways to do it and I feel like my doctor hasn’t done that and I just don’t know if anyone else has experienced that cause again it’s taken so fucking much for me and I’m so frustrated because my personality feels like it was ripped away from me and I’m tired of being this nervous shell of myself

On top of it, I’m still dealing from the trauma and PTSD, which is kind of an extreme word from my episodes in March. When my heart rate hit 170 while I was driving for five minutes and my heart was just racing like so fast and I didn’t even feel anxious before like it happened out of nowhere and then when I got my monitor, which was a few few days later I got my medication because I was nervous and then I only had two seconds of SVT on there with three beats of atrial tachycardia and then they told me well. It wasn’t sustained so we can’t say the other episode you had was sustained or not but I’m like I remember that episode in my heart rate was higher for a longer period so I feel like this means I have SVT and they told me no and they didn’t wanna give me an EP study even though I pushed for it. So they won’t diagnose me with SVT.

I also haven’t even really felt anxious today, but it is 4 July and I’m kind of wanting to go out with friends to a bar but then it’s just like again I’m afraid to drink but last year I drank and I didn’t really have any issues and it was after my pot symptom started and after I think I had like weird tachycardia episode so it’s confusing and I was also on a lower dose beta blocker then as well I just feel so so so left out. And it’s like a daily thought I go to bed and I’m anxious because it’s like I wanna wake up and I wanna like not be afraid to do things. I wanna just go and do them myself or go and work but then I’m just like thinking about my symptoms all the time because some days they might be fine and then other days they’re not like I could have three full days of doing the exact same thing where my resting heart rate could be like 73 and then randomly the day after my resting heart rate is like 95 and I’m getting palpitations and like weird symptoms, but I could literally have the same amount of water and then I try not to overdo electrolytes because I don’t have low blood pressure when I stand. And it’s like I was given a great life like I’m thankful for the things I was given, but I’m anxious because I feel like I’m not living that life to fulfillment like I want to and there’s so many things I wanna do but right now I just feel so incapable on top of the fact that I’ve told this to my doctor told them my worries told them how depressed I am because I’m a 20 six-year-old who wants to go live their life and go have a few drinks at the bar or go for a run and they’re not like really telling me I can or can’t do it but then also like not helping me create some sort of action plan and giving me an explanation.

Ep said no ep study so they said go to another office but the office they recommended requires a referral and they literally haven't given me one and it's been like four weeks
I'm just sick of this because I am someone that struggles with OCD so then when my symptoms aren't bad I'm anxious because I'm just like waiting for them to happen and I haven't even really been anxious today at all, and of course, my resting heart rate is on the higher end today and it's just so frustrating because I feel like I can't ever fully relax. I have days where I'm stressed out and my heart rate is actually pretty low so again this whole thing is just so confusing on top of it and knowing my body, ! know that what I'm going through isn't anxiety.
I also got broken up with recently, which sucks, but I completely understand because this entire thing has made me incapable. I'm 26. I wanna work and live my life.
This is the most depressive ever felt. I'm so frustrated and I'm so angry because it's just like when is it gonna end? | wake up in agony every single fucking day...

I’m also just very frustrated because I think I feel like left out in friendships and relationships just because of what I’m going through and I also understand like people who are chronically oh wanna label themselves as that but I just don’t wanna do that personally because I don’t wanna live in like a victim mentality. This is something I’m really struggling with and it’s like I feel like if I do that I’ll never get better and I would probably hyper fixate on that for example like with my OCD I’m like oh imagine how I would be without my symptoms so it would just add to the victim mentality I’ve thought about going on medication, but I don’t know which one’s best for me. I also do go to therapy as well..

So if anyone relates or has advice on how to live your life how to balance your social life how to have good relationships, how to not label yourself as chronically ill because you don’t want to feel like you are and how are you able to go out and have a good time and drink, socially and also explain how last year I was able to do it. I think I’m so afraid that if I do it, I’ll go into like SVT or something. Or some kind of pot flair.

(The tachycardia is probably my biggest struggle, but I also deal with for about two years now my shoulders and chest, especially if I flex my shoulders down it’s like extremely tight and then I’ve dealt with some like chronic Venus and insufficiency so like I have varicose veins apparently but my legs are like purple a lot, especially if I’m like sitting anytime my legs aren’t elevated. They’re always purple and my doctor still haven’t done anything about it and I’ve tried socks and it doesn’t do anything for me)

I’m also feeling frustrated because I don’t really feel confident with my medication regimen
Like I never know if it’s gonna work or not. Overall, I’m just trying to get to the point that I wanna be someone in their 20s that goes out and enjoys their life, but I feel like I can’t do that but then I also at the same time but it also was like my symptoms and I’m dealing with and being scared. I don’t know what to do.. I want to workout I imagine
That/ how I would feel and being able to go out with friends drinking. And how I would be without my symptoms it’s probably the main reason for my depression and just being upset right now.

I also get nervous. To get my HR up and that upsets me because it’s good for your body. And I am also upset because why would I get my HR up if when I’m sitting im having issues. So walking and working out would be too hard?

Severe tachycardia episodes / possible SVT vs IST vs POTS vs anxiety — I feel like I’m losing my life

(Sorry this post is like all over the place and I’m also really struggling mentally so sorry if some things are confusing)

I’m a 26F and I’m really struggling and I feel like my life has completely fallen apart. Also I’m alone for like the next week so I’m really struggling to be alone. I haven’t driven for months also so that’s been embarrassing and hard. I’ve never felt this insecure in my life because I am like not doing anything but want to so badly. I could easily solve it if I come off the blockers get another heart monitor and catch svt. But it’s easier said then done.

I’m really hoping that people with inappropriate sinus tachycardia can answer like if you’re going down the stairs or doing laundry and your heart rate is 150 for example does that mean you have it even if you’re resting heart rate isn’t 90 or 100 cause that’s what I’m wondering if I’m also dealing with as well and it’s just so odd to me because my doctor literally mentioned an ablation for inappropriate sinus tachycardia, but I literally don’t have a diagnosis and that’s also pretty risky because sometimes you need a pacemaker.

I remember like a few years ago when I would be home alone and I would clean and I would get stuff done and then I would like lay on my bed after and like relax like that felt so freeing now like I do not have the ability to do that and that is really hard like if I go in like lay down on my bed or like, try to relax like my brain is just like oh you’re taking this max dose of a beta blocker like this is your situation like you need to come off the meds but you’re too afraid and then you’re having XYZ symptoms like so I feel like I’m never gonna catch the SVT but then it’s like I don’t know why I’m having these symptoms and I’m still taking this amount of the speed blocker so it’s just so confusing. Also on my like patient portal it says a diagnosis of PSVT and then like VT which I don’t remember having and I don’t know why none of the doctor said anything to me so it just feels like I’m physically and mentally pacing because my situation is so confusing and no one is really helping me

And the issue is is when I’m not having symptoms like I just feel like I’m super vigilant. I know that you guys can’t diagnose me with SVT but I feel like if I wore it to sue it maybe I could prepare better. It’s just also hard to understand why my heart rate goes up when I’m laying, and I stretch and drink cold water. I just feel so incapable and handicap and that’s why I think I’m super irritable because I really wanna go out with friends and drink and dance and ask someone with OCD. I’m just ruminate how I did that in the past with ZERO symptoms that im having now. So ofc in my head oh this means svt. It sucks because I wanna be alone in my house but I’m scared I’m ruminating on symptoms if I am fine and just obsessing on the situation every two seconds and then thinking about how in the past, I wasn’t having symptoms. I also have like palpitations a lot and it’s just draining. And I really wanna work out so that’s why I’m upset. I’m not functional and that’s why I am upset because if I sleep if I drive if I’m alone and have symptoms or not. I’m in shock in the past I wasn’t. And now being alone I have heart symptoms but it’s not because I’m alone why I am upset. And that’s the thing that I just popped into my head as an intrusive. Thought what’s going on with my body imagine how I’d be without my symptoms when I’m having them or when I’m not having them cause I’m upset and just irritable about the whole situation like yes, I can physically work and yes, I can physically go for a walk and go to a bar and drink if I want, but it’s more of the fact that I don’t do anything to necessarily trigger this. I’m taking a Max dose and I’m still having weird symptoms so it’s like I’m not able to do those things if that makes sense and so I’m getting anxiety and I’m getting very very irritable. I would say the symptoms that impact me every second or maybe more like drinking cold water and stretching in my heart rate goes up and then standing my heart rate will go up 20 to 30 beats even with my medication, but once I said, like my heart rate does come down.

Is it normal to have this many palpitations while you’re not doing anything at home?

When I am around people it’s hard because I just think about what’s wrong with me and how I never know when this is gonna end. I feel so stuck. I’ve also had episodes with people and without so I’m nervous alone and with people. Maybe worse alone but.

On top of it the beta blocker makes me feel crappy it just lowers my HR.

I wonder if I had AT on my monitor but it wasn’t flagged because the rate was slow and it looked like sinus tachycardia. But there were two times on my monitor when my HR went up high randomly just not to 170 plus. I think it I knew what was going on my anxiety wouldn’t be as bad.

This is one of the most undescribable feelings ever it’s like, thinking about the past gives me such bad anxiety this pain feeling knowing I wasn’t going through this. And what I am going through now it’s sorta like rumination, but specific. Like five years ago was alone on the fourth was excited to drink with friends now thinking about it now gives me pain and anxiety I just want this to end feeling.

It doesn’t make sense how SVT goes dormat how last year I took a low dose and like drank and even had coffee sometimes and didn’t experience anything after Sept 2024 when I had smoked weed. Which I never really did. Just slightly in the past. And it never happened then.

I don’t think you can expect someone to not be super anxious and upset to do things when they go through this.

Again I feel so unfunctional I’m not doing what I want cleaning when I’m alone going for drives it’s terrible. This is ruining my life. It’s almost like to as well I don’t wanna do anything or wear clothes that make me feel good because of the depression of what is going on. I sort of like feel this year where it’s like oh I don’t wanna go to sleep or do things because I have these symptoms as well and it’s just like the depression is so severe because if I go to do anything, it’s like I’m not doing the things I want. I’m not going out. I’m not going for walks and then I think how I did those things like years ago and didn’t struggle, even though I had the same amount of anxiety and OCD then I get more anxious.

And I’m sorry if I forgot to include this, but when I did my tilt table test in December 2024 and my stress test a week later I had to get off my medication and when I did it, I didn’t have any SVT now in September of that year 2024 I had a heart of like 165 to 175 for like 10 or so minutes so it’s just like I don’t know if that is common for a certain type of SVT to do that like even for 10 months after that or up until August 2025 I didn’t have issues so it’s just very confusing

And that’s what I mean to like if I’m alone, I’m not having symptoms right now. It’s just like very triggering and upsetting for my OCD like it just loops in your head and then I’m like what if there’s something wrong and what if there’s not something wrong.

Can someone tell me if someone with pots tapers off a med there resting HR can randomly shoot to 170?

Since around August 2025, my whole life has been turned around. I live in fight-or-flight 24/7. I’m afraid to drive, I’ve had to stop working, and I barely leave the house. It’s also affecting my relationship and every part of my daily life. I don’t feel like myself anymore. It’s ripped everything out of me. My relationship is crushed and possibly ending because of this. I’m not working (no income). I don’t go out, I’m literally afraid to sleep. And this isn’t me of course I’m ruminating on the past I would go out in similar situations and this stuff never ever happened. I mean sure if I was panicking but it’s the loop of (something is wrong)

I’ve been diagnosed with anxiety and OCD, but I don’t really want to lean on that too much with doctors because I’m scared everything will just get blamed on that and something physical will be missed.

My main issue is my heart rate and how unpredictable it is. I’m currently taking about 100mg of atenolol daily. I still get these random episodes where my heart feels like it suddenly flips into fight-or-flight. Small things like rolling over, stretching, laughing, or even just sitting can raise my heart rate by 30+ beats. Sometimes I can be sitting and it will suddenly jump up into the 140s, and I don’t understand why.

I’ve had episodes where my heart rate has gone up into the 160–170s while sitting or driving, and it feels very sudden and intense. It feels like a pounding, loud heartbeat that I can’t ignore. I also get left-sided chest pain over my heart during these episodes.

What makes this so confusing and scary for me is how unpredictable it is. It’s not like my heart rate is just 90–100 all day. Some days my resting heart rate is 70s–80s, other days it’s higher, and then randomly it spikes very high out of nowhere. That unpredictability is part of why I keep thinking about SVT or IST, because it doesn’t feel consistent like I was told POTS should be. Like someone with pots can taper off without having a crazy high fearing that I had that’s why I am really worried. And ist is an average of 90/100 for 24 hours so idk how they are saying it’s that.

With cardiology/ep dr, I’ve had monitors done. One showed three beats of atrial tachycardia while I was on a lower dose beta blocker. They did not capture sustained SVT or anything long enough to definitively diagnose SVT. My EP has mentioned repeating monitoring and possibly switching medications like ivabradine, but they haven’t recommended an EP study or loop recorder yet.

What really scares me is that I have had episodes that felt like true sudden rhythm changes, especially around March 12 and 14. On March 12, while I was driving, my heart rate suddenly jumped into the 160–170 range and stayed there for about 4–5 minutes between 166–173, then slowly came down. I had to try to calm myself and it eventually resolved. It felt extremely intense and different from normal anxiety. That’s one of the main things that makes me question SVT.

I also had what was labeled as non sustained SVT on a monitor, but I was on a beta blocker at the time, which makes everything more confusing for me.

Now I’m stuck constantly wondering if this is SVT, IST, POTS, or anxiety. I can’t tell anymore. I feel like I’m losing my sense of safety in my own body. I also check my Apple Watch a lot, which I know probably feeds into the anxiety loop, but it feels hard to stop.

I used to be completely normal last year. I was working, going out, drinking coffee, walking a lot, and living my life. I could feel nervous sometimes but I still went out and felt fine coming home. Now I don’t have that feeling of freedom at all. Being scared to go to bed is the worst feeling because there’s no peace. I’m just waiting for something to happen. Because I’m preparing myself. But then I’m depressed because I think about how in the past I wasn’t having issues. Like this symptoms like this.

The unpredictability is really what’s breaking me mentally. It’s not just “high heart rate all the time,” it’s random spikes at rest and inconsistency day to day, which is why I keep going back to SVT or IST in my head.

I’m not trying to self-diagnose, I just feel scared, stuck, and like I’ve lost my life to this. If anyone has experienced something similar or has insight into SVT vs IST vs POTS and how they can overlap with anxiety, I would really appreciate it.

Back story:

Pots symptoms started in March 2024

Then Sept 2024 I smoked weed and had svt symptoms

Then for 10 months was fine even did a tilt and stress off meds and nothing happened.

And now some days I can do the same thing and have issues or not have them. That’s very upsetting and triggering for me because it shows me it isn’t anxiety and something is wrong. If one day I was anxious and hit 115 bpm but once I relaxed it came down. But one time felt the same or was calm and it was much higher and not coming down when I sit. So definitely not pots and didn’t feel like anxiety. I could go blue in the face because I know when it’s my pots it’s 30 bpm when I stand and I’ve gone without my beta blocker and it would go higher but it was only when I stood.

I’ve had ocd since I was 19 but it’s just gotten worse and my mental health is so bad. I’ve never had it so bad I haven’t been able to shower to go out it’s the depression but also the anxiety of the symptoms and just not enjoying anything. At 26 you wanna travel and go out and bar hop. I literally am scared to move. The depression also impacted my eating habits I don’t really get hungry. If you have ocd as well and deal with this please help me out if you can. The ruminating is the worst thing.

I don’t know what to do. Because it’s impacting every part of my life. I wanna not panic when I’m alone. And to be able to go out to dance and be young. There is a part in my heart that is like what if this is all in my head.

To make matters worse when I get overwhelmed and stressed I like to go out or go see a friend but I’m nervous to drive because of all the heart stuff. And I’ve had situations where I was going through a lot and was still able to do that. And so then it just makes me feel worse and more anxious about what’s going on with my situation. Like getting out of the house to go for a drive is freeing but a lot of the times I feel too anxious to even be in my house. Because of all this.

I just like literally don’t know what to do in this situation because it’s impacted my relationship because we don’t do anything like we don’t go out. I don’t have money like I’m afraid to go for walks and that’s what’s hard because last year and years prior like I just think about how like I was doing things and not having issues like when I’m not having symptoms I’m really anxious cause I’m like thinking about them and like how painful it would be to have them but then just like how my relationship could be if I wasn’t dealing with this like how can I do all these things? I wanna do now if I’m having these symptoms like I don’t even have caffeine or a drink and I still have symptoms.

Like how do you get out of this. And to not be scared but also feel like shit on top of so much trauma.

And I do see a therapist and I know I’m not all trying to make this about Mental Health but it’s just giving me such bad anxiety and I think about the past and I haven’t been able to stop just because like I never know how this is gonna end or when it’s gonna end and I wanna be able to like do things and not have like that’s my main thing like even just watching a video of like people on a roller coaster that’s something that I love but then of course I get the intrusive thought of like being on it now and having issues with my heart and then thinking about the past, I wasn’t and then just like anxiety like why is it like this? I’ve also lost a ton of muscle because I hardly walk and that’s really impacted me too, so it’s just embarrassing. And it’s hard to because I am home alone all week and a few years ago. I was home alone on the fourth all week and I was able to go out and have a good time at friends house and go out drinking and wasn’t having symptoms and now I’m here irritable and like really upset that I wanna do those things and I’m really anxious to like go to a party or have people over and have something as simple as coffee or a beer without having severe anxiety, and then I ruminate on the past, I was doing that and now I’m like home alone having these symptoms and not even doing anything to trigger it. It genuinely seems like the only option I have is to come off the beta locker and get on a heart monitor again, but I’m just in such denial about all this and it’s like I’m so upset. I don’t even know how I’m gonna go to the beach this summer I hardly really have much muscle because I’ve lost a lot. Walking is already hard and it’s like more proof that there’s something wrong when I’m taking a Max dose and not having symptoms. I just feel so like frozen irritable and trapped because I just want this to like and I wanna like think of driving and going to bed and not being scared like I wanna be able to like be alone without having to have someone here cause I don’t mind being alone that’s what makes me so upset. It’s just like when am I gonna have symptoms and then even when I take my beta blocker it’s like I just wait for it to like not work but it’s scary when you take something and then it’s like any second. It could just stop working or if like I used to do something all the time and now I can’t do it at all because of this, it clearly makes me really depressed.

And I guess I’m only giving this backstory of my mental health so people can understand how much this is impacting my mental health and how much I feel like I’m being dismissed and like I mentioned to like this is another specific thing with my OCD but if I’m on the phone with someone and they’re talking to me and I’m not having symptoms I’m like obsessing on the fact that I’m not and then thinking about the times I have had them and then just like ruminating. My OCD feels visual. It’s like very painful for me. If I’m seeing a POV of someone on a roller coaster I’m imagining myself on that right now and in the past or if I see a memory on my phone from like my photos from five years ago, going for a walk or at a bar or a party, I’m getting anxious because I’m thinking about now. I’m like at home alone like I was then and now I’m having these issues.

I really really hate that I'm struggling to be alone. It makes me anxious. I used to take 25 mg of.a baby. blocker and I was fine for literally 20 hours for quite a while actually and my doctor can't give me an explanation on why it doesn't really work. I hate thinking about how.!. would be without these symptoms like that's really hard for me as well so and then just like when they're not bad I'm anxious too because I'm irritable that ].can't always be like this and then I'm thinking of like the things I wanna do. I don't think • I would ruminate this bad if I was not going through these symptoms for these episodes that I'm having. Especially cause I can be fine for a little bit and then it strikes out of nowhere and then I'm in a worse place mentally. I’m just like in shock too because the symptoms are so up and down and so I know I’m just like using this to vent, but I’m just feeling like super trapped because I’m scared to do anything I used to just hop on a bike by myself for like hours, and it’s just the fact that I’m literally scared to do anything even clean like that’s not normal and I’ve brought this example up but my family is staying somewhere else for a week and they do it occasionally every other few summers. And basically a few summers ago I was going through something completely unrelated to anything having to do with this and I had to be like alone for the week and now I’m alone for the week and I think about how excited I am for it, but then it becomes painful because I’m thinking about how I’m going through all this and how I would be if I wasn’t and that’s why when my symptoms aren’t bad I’m really upset.

And it’s kind of like I’m imagining scenarios in my head of my friends now or my partner coming over and hanging out and maybe not spending the night and then we go out to a bar or go to a workout class and I don’t have symptoms, but I might be a little bit anxious. And it’s very visual for me how this impacts me like I think about a situation that could be going on now that’s stressful and then I think about how other people would be me if I wasn’t going through this or how I would be in this situation if I wasn’t going through the symptoms and then I get really anxious on top of how the Fourth of July is coming up and I wanna go out and I think about how I went out and did that and was home alone so then I’m getting anxious about everything now. And if I’m having a bit of conflict with my partner it’s harder now because I think about how it would be in the past and I get really upset on top of everything else and almost embarrassed because it’s like I feel really insecure about this

I also thought that beta blockers worked for 24 hours so I’m confused but like I said, yeah I’m feeling like slight incapable things just because like it’s hard to do certain things because of my symptoms like for example like if I wanted to go to the mall or something and walk around like that’s where it becomes like really upsetting because in the past, I used to do it but now I’m having a symptoms and it’s much harder and it’s hard cause I cannot stop thinking about. Imagine how I’d be if I wasn’t having these symptoms like obviously it’s summertime. The fourth is coming up like I wanna go out with friends and potentially drink but then it’s like if I do that will I go and ask so does that mean I have to get another monitor on like I’m just so stressed out

I’m upset that I lost a lot of muscle and that I’m going through this mentally and thinking about how I be without my symptoms going through hard times is really hard cause I knew that I could get through it but then it just gives me more anxiety that there’s something wrong with my heart.

If you read this far, I really appreciate it

How does everyone go for long walks? I’m supposed to go on a beach trip this summer and then to an event in a few weeks with a lot of walking. How do you prep for that especially over the summer when you have an episode or a flare? What do you do?

Does everyone just avoid doing things I feel like being inactive has made me worse. I don’t really know how to get back into it.

Anyone with POTS when you sit should your heart rate come down almost immediately or is it possible for it to stay elevated. For example? A patient with pot stands in their heart rate is 150 and they sit and it doesn’t come gradually back down to 80 but they’re resting was before they stood it kind of sits around 140 to 130 for like 15 minutes or even 20 minutes is this normal for POTS?

And anyone that has POTS or SVT or IST that struggles with anxiety how do you take your anxiety out of the equation or know that it’s not your anxiety? That’s really causing all this.

I feel like when my heart rate was 170 for five minutes and I tried to calm myself down. I only got to 130 to 140 and then it ended spiking back up. I feel like there’s no way in any world that anxiety could even cause an elevated heart rate for 30+ minutes let alone, POTS. The beta blocker that I’m on is not extended release so I think that’s why my resting heart rate will be normal for like 4 to 5 hours in the day 78 to 88 and then after six hours I’m back to being like 95 to 115. Waking up, I can hit 130 in bed for 80 mg of a beta blocker it’s crazy to me (atenolol) like it doesn’t help the possible “ adrenaline”. I prefer these groups over the Facebook ones. Thanks for your advice. People that also struggle with their mental health when it comes to their heart I appreciate your understanding as well.

Questions outside the general post-

1 People with ocd does it worsen your symptoms and how? What meds do you take for ocd or anxiety? What helped and didn’t? Do you have common thoughts of “how would I be without this” or obsessed and ruminate on your past before your symptoms started trying to figure out answers constantly.

2 Pots patients as well as SVT/IST. Did your symptoms ever go dormant (meaning gone) for a while despite the common triggers for all the conditions why do you think this was at your healthcare professionals ever give you an answer on why?

I am so so drained and need help. So my pots started March of 2024 It really just was standing my heat would race and i would take my beta blocker as needed or every 24 hours

I’ve read stories of ppl w svt saying there beta blocker doesn’t work im on edge about having svt and not knowing if i have it

All i know is if you have pots you wouldnt just get a super fast hr not taking a beta blocker or you wouldnt just go into svt

A few years back when i struggled mentally i felt like now i felt mentally now but without the heart stuff it causes more of a loop. And it’s a cycle of when I’m anxious. I’m panicked because when I’m calm episodes happen it’s when I’m relaxed and out of nowhere.

Of something is wrong w my heart.

On top of the fact i love being alone but im scared to be alone and upset that im not alone.

Anytime im over 100 i assume im gonna go into svt always

And then when i went to the movies and the other night when sitting i flared to 140 and putting my legs up only brought me to 117. Ive heard mcas can cause some of this stuff which i thought about Pepcid and allergra but im scared. And idk if it’ll work it doesn’t make sense. Sorry this is so much that I’m saying I just don’t know what to do because I know it’s not anxiety, but it’s making my anxiety worse and doctors aren’t taking me serious and I do have symptoms constantly like how I describe.

If my monitor showed NSVT then if I was off the medication, I feel like it would’ve been longer and my doctor just doesn’t know that doesn’t provide me with like any reassurance. I also had three beats of atrial tachycardia, which is a more gradual SVT. My doctor said that only acts like a light switch, but I knew that’s not true.

If SVT happens anytime you’re over 100 then I might be in it a lot but it’s just hard to say cause there’s IST but my heart rate isn’t 100 for 24 hours I would say like what’s common for me is I’m sitting and then I start to feel at race so I get anxious and then standing we’ll make it go higher like 130 or 140 and then I sit or lay down and it doesn’t drop at 117 that happens to me frequently

It’s also tough because I don’t really know what my triggers are like for example with POTS you’re supposed to have sodium like that’s supposed to help you but then some people with SVT can’t have too much and again they don’t wanna give me EP study and they don’t wanna give me a loop reader so I feel very conflicted. I will ask about the Miss that people have for SVT and two of my doctor thinks of that if I wanna try getting off my beta blockers, I just don’t know what to do cause I have had multiple times where I just had a random fast heart rate out of nowhere like it feels like you get hit by a truck. It doesn’t feel gradual even if my Apple Watch makes it look like it is and like I said when I’ve had my Apple Watch app opened it looked gradual when I was looking at it in real time where it was like 120-140-170. Also, caffeine can help some people with POTS so the fact that I reacted to it makes me wonder even more. I just feel like I’m going crazy because I can’t tell when something is anxiety or if it’s SVT or even if I have SVT.

Also, I know SVT can go dormant, but it doesn’t make sense. How for 10 months I was doing what classical would trigger SVT and I didn’t experience anything at all even though I had caffeinated drinks and alcohol and that was after I had smoked weed in September 2024 when my heart rate was really high, so it makes no sense to me.

Just to give some examples exactly a year ago I would go out with friends walk around in downtown area then go out and get some fast food later and I would have caffeinated drinks and then come home play board games play just dance and now I just simply sit at home all the time and I’m having these episodes

It’s just extremely extremely hard to not ruminate on them so please if anyone can give me any kind of clarity. It would definitely help.

I just constantly think about it

Can someone also explain Aflutter vs svt? Or if it’s the same thing is atrial tachycardia, SVT or a flutter.

I appreciate everyone’s feedback and patience. I’m sorry for the long post. I thought this one would be shorter than my other one. I tried to make it similar but more of what I’m wanting a discussion about. I’m

This might be a long post so I’m very sorry in advance. I’m struggling very badly just for backstory. I have extremely severe OCD and health anxiety since I was a kid. I’m now 26 and I’m consumed by this. I literally feel like I’m dying and I’m shaking as I make this post. I do think about leaving this group because I think reading about everyone else’s SVT is really triggering especially because I’m being gaslit by doctors and then people who still have SVT on beta blockers and say that it’s not really helping them is also hard for me as well so

I also don’t know if I truly have SVT and I think that’s the thing that causes me to obsessed constantly when my heart rate is normal so like let’s say my resting heart rate is 85 at rest I’m constantly just waiting for the next episode to happen it’s like I have PTSD and trauma. It’s terrible but I just don’t think that anxiety would have caused a lot of the episodes I’ve had which then causes the loop of more severe anxiety and OCD and I know that this is an SVT group, but I’m sure people struggle with their mental health here.

So I was diagnosed with POTS a year and a half ago and my POTS symptoms started in March 2024. It really just started out with postural tachycardia so it would be gradual. I would stand and my heart rate would go up and then once I sat or I started walking it would settle like it would go back out to being like 90 for example when it would be 140 standing.

And it’s hard because in this present moment, I feel like I can’t function without my beta blocker, like I’m constantly obsessing on how I can’t live without it and then in the past, when I would just be doing anything I never had these issues that I’m about to explain.

So in September 2024, I was starting to feel better about my pot symptoms and know how to manage it and it really wasn’t that bad for me. I actually felt like being on the 25 mg beta blocker helped my symptoms more than being on the higher dose, which is where I’m at right now with my POTS I was at a party and I decided to smoke weed and for about 15 to 20 minutes. My heart rate was between 165 to 175. It was the scariest thing because I thought it was a panic attack . I found out about what SVT was but I was like there’s no way I have that because I just have POTS

That whole episode I think lasted about two hours, but it stayed that high for about 20 minutes which I never experienced that while sitting before or with any amount of anxiety

When that happened I never experienced something like that again and I never smoked again and then for about 10 months after that I was having caffeine sometimes soda and I would drink with friends and I had no issues at all. I would be anxious. I didn’t have any issues with my Heart Rate nothing

Then August 2025 I’m driving and out of nowhere my heart rate gets really high but sometimes they would last not long like maybe five minutes sometimes it could’ve been one hour so I went to a general cardiologist. He gave me a monitor essentially that one came back fine

My EP who also specializes in POTS wanted to try a new medication so he told me OK we’re gonna taper off the beta blocker. I was like that’s fine. I wasn’t having super severe anxiety at this time because I was really confident that nothing was wrong so for two months, I was taking 12.5 mg of a beta blocker every 12 hours and my POTS actually was much better and then there was one day where I wanted to have a caffeinated drink so I had one and one hour later I drove home and my heart rate was 173 max for about five minutes and I was able to bring it down with my breath. It was really scary because it was so random and out of nowhere but I had my Apple Watch on so I went to the heart app and I had the heart app opened and when I looked at the number, it was like 97 to 127 to 140 to 173 and so when I explain that to my doctor, she was like well that sounds more gradual , but I’m just curious if anyone can share their experience if they’ve had their Apple Watch on and it looked like that, and it was confirmed SVT because I don’t know

When that happened they gave me a heart monitor really fast. I had it for 27 days. I’ll just make this fast. I did have it felt like a few episodes but the thing was is I was on 50 mg versus being on 12 mg but it’s just odd because like I said that whole summer before I was on the same dose I was on when I had that episode in the car and I had nothing happen even with the same amount of “SVT triggers and I think that’s why I guess I’m trying to put a label on it cause I’m like is this anxiety? Is it not like I’m going crazy

So anyway, I get my monitor results back and there was a three second SVT and then three beats of atrial tachycardia. They tell me it’s normal and there’s no need for EP study because my symptoms were just a severe on the monitor, but I told them no, like I definitely have worse symptoms off the monitor like my heart rate was higher for longer meet with my doctor in two weeks. I’m probably gonna try to push for EP study obviously I don’t want that. Nobody wants to go through that really know what else to do and the medication she wants to put me on is for IST and POTS, which I think could help it but she literally said that if I have SPT it’s gonna make it worse and it’s not gonna prevent it because this medication only affects the sinus note and it’s technically prescribed for heart failure, but people with POTS have been taking it

So I’m just like at a loss and on top of all this I deal with constant anxiety or constant in my chest. I don’t work. I don’t drive like I’m so consume by this. I literally feel like I’m dying every single day. It is the worst thing I’ve ever gone through and I’ve never felt this low in my entire life. I feel like so trapped and I’ve struggled with my mental health for a very long time so it’s hard that my OCD is just like why is this happening in the intrusive thoughts feel like PTSD almost

Oh yeah, they don’t wanna give me an AP study because they feel like there’s no need because the SVT was so short, but I’m like I feel like they’re not looking at the big picture of like I’ve had multiple episodes that seem like SVT but then maybe they’re viewing me more as a POTS patient or inappropriate sinus tachycardia

And I don’t really know if these were SVT but like just like last night I could be chilling on the couch and then I feel my heart race and then I stand and it goes to 140 so that’s probably POTS and then I lay down and put my legs up and my heart rate is just stuck at like 117 or 120 and I never know if it’s gonna last five minutes or an hour just the other night I went to the movies and going into the movies. My heart rate was 140 I sat down and it was 120 and it wasn’t really going down so I had to leave and that’s just like really impacted me

Because then for the most part, I would say the majority like I’m sitting in my resting heart rate I would say is 85 to 95 and then standing it might go to 115 but then the second that I sit, I’m back at like 85 bpm so when I have what I just described above , it’s like why is that happening so I have episodes where it goes up to like 130 or 140 and then I sit and then it stays between like 115 and 125 all of it’s giving me so much drama and then my doctor told me OK you can’t have IST because your heart rate not over 100 for 24 hours, but then people tell me you can’t have IST even if you’re having episodes

I’m sure if anyone that has OCD can probably relate to how hard it is to have medical issues with OCD but the constant rumination of the past of being like I didn’t go through these things. Why am I going through them now? Just makes everything way more amplified and you can probably understand why someone would have a agoraphobia. I just don’t know what to do . It would help to hear people’s opinion or advice. I’m sure I need to see another doctor on top of the fact that I deal with chest pain, which I think could be a micro vessel thing associated with my heart which requires way more testing than just an ultrasound

If anyone can give me reassurance too, if they don’t think it’s SVT or if they think it is, that would be helpful. I’m probably gonna try to not look at as many post because it is very difficult to see and can make my anxiety very bad just because of what I’m going through. I just don’t know how to make all the stuff. I don’t know how you guys do it. I literally have a fear of everything like I spend most of my time in bed and I love walking and I love going out but now it’s the scariest thing of my life and like all I can say in my head is why is this happening? I’m so scared and anxious all the time just waiting for my heart to race.

But yeah, just to give everyone an understanding right now. I’m taking 80 mg of my beta blocker and sometimes I might even like overtake my beta blocker meaning technically I’m prescribed 75 but I take the 80 because of my symptoms I think like the last “svt” like episode I had was a few weeks ago and my heart rate was 150 when I was sitting and it sustained for like 4 to 5 minutes on the same dose of on now and then I also deal with these kind of like adrenaline dumps where my heart races to like 130 or 140 and then once I relax it comes down to me, that’s how I know it’s my anxiety

And then like I explained what happened when I went to the movies and then yesterday those are symptoms that I get frequently probably weekly

Idk if my meds are making my pots worse or svt? Idk if i have just pots and svt

Because SVT is above 100 and that happens to me alot so? I’m constantly rumainting on how I would be if I wasn’t having symptoms. Everyone who talks about how beta blockers don’t help there SVT fuels my Anxiery more. And I’m so anxious about mine happening

someone had commented about svt being flared vs cardiac issues with autonomic flares I was hoping someone could explain that the person could have meant. But I’m not able to find the comments.

Does anyone else deal with the anxiety of working out or going for walks like for example I avoid anything to do to get my heart rate up because I’m scared of things like SVT etc. because I’ve had a heart rate of almost 200 while sitting ever since then, I’ve become scared to do anything to get my heart rate up. This is caused me to have anxiety as well because not working out and getting your heart rate up is not great for your heart because you need exercise. I’m kind of at a loss of what to do. I don’t know if they have some cardiac rehab stuff for people to deal with this.

Does anyone else get left sided chest pain over there heart

And sometimes arm pain or shoulder pain?

I get these but they just are on and off over weeks i had a ccta in 2024 but I’ve recently heard of something called Microvascular Angina that can come and go over weeks and months it’s not an immediate heart attack.

Anyone here deal with a heart rate that goes up 20 to 30 beats just from simply stretching or removing your arm. I was diagnosed with POTS over a year ago, but have this new symptom where I stretch in my heart rate goes up.

I also get a random fast heart rate at rest, which I do think could be SVT my monitor which I was medicated for show two seconds of it so now they don’t wanna treat me, but I’m assuming if I was off the medication it would’ve been longer and now I’m not being treated for it.

I’m not sure if this is a common pot symptom I’ve had POTS for about two years and this is a new symptom I’ve had in the last month but literally if I just move my arm or stretch my legs my heart rate will go up 20 to 30 beats for sometimes 15 seconds this happens in my sleep. This happens when my legs are elevated just by stretching.

I was just curious if anyone else experienced this in the POTS community? This isn’t something I dealt with when I first got diagnosed whatsoever. On top of my resting HR being higher as well with my beta blocker.

Has anyone else with POTS experienced sustained high HR at rest?

When my POTS first started, my symptoms were mostly positional. I’d stand up, my heart rate would go up, and then when I sat back down it would usually go back down unless I stood again. Even without taking a beta blocker, my issues were mostly from sitting to standing.

Now I’m confused because lately I sometimes deal with a higher heart rate even while resting, hydrated, indoors, and not overheated. My doctor mentioned that IST can coexist with POTS, so I’ve been curious whether other people with POTS experience something similar.

I take atenolol and my resting heart rate is still often around 89–115 bpm, whereas when my symptoms first started it sometimes rested in the 50s, which felt much more comfortable for me.

I’ve also had episodes where my heart rate suddenly got close to 190 bpm while I had already been sitting for a while, and afterward my heart rate stayed elevated around 90–100 for a long time from the adrenaline feeling afterward.

I’m not asking anyone to diagnose anything or tell me whether something is SVT/IST/etc. I’m mainly wondering if anyone else with POTS has experienced their symptoms changing over time from mostly positional tachycardia to more sustained resting tachycardia or adrenaline surges

Anyone familiar with this type of ablation, I’m not sure if it’s for a fib or IST or can be used for SVT?

I’ve heard that it’s less risky? Again, I’m not a doctor so I have no idea. Just wondering if anyone has had this.

I take 75 mg but I feel like it doesn’t really lower my resting heart rate as much as it used to. I can’t take a lot of other beta blockers because they caused me to have asthma symptoms. Anyone with asthma have really good success with another beta blocker that isn’t the one that I’m currently taking. Please let me know because I’m probably gonna end up messaging my doctor to prescribe me it.

my resting heart rate isn’t necessarily dangerously high. It’s just much higher than it used to be, and I’m assuming my body built up like a tolerance.

I also feel like with the beta blocker. I have like high spikes of tachycardia still as well.

They also don’t want me to take Ivabrone with it and they said I can cause like a heart block. I’m also trying to think of other medications I could add with my beta blocker that will help lower my resting heart rate and make me feel more comfortable.

Anyone w svt what’s your resting hr is it lower or higher do you have other conditions

Is it common to have a higher hr?