u/Past-Trick6710

Has anyone else with POTS experienced sustained high HR at rest?

When my POTS first started, my symptoms were mostly positional. I’d stand up, my heart rate would go up, and then when I sat back down it would usually go back down unless I stood again. Even without taking a beta blocker, my issues were mostly from sitting to standing.

Now I’m confused because lately I sometimes deal with a higher heart rate even while resting, hydrated, indoors, and not overheated. My doctor mentioned that IST can coexist with POTS, so I’ve been curious whether other people with POTS experience something similar.

I take atenolol and my resting heart rate is still often around 89–115 bpm, whereas when my symptoms first started it sometimes rested in the 50s, which felt much more comfortable for me.

I’ve also had episodes where my heart rate suddenly got close to 190 bpm while I had already been sitting for a while, and afterward my heart rate stayed elevated around 90–100 for a long time from the adrenaline feeling afterward.

I’m not asking anyone to diagnose anything or tell me whether something is SVT/IST/etc. I’m mainly wondering if anyone else with POTS has experienced their symptoms changing over time from mostly positional tachycardia to more sustained resting tachycardia or adrenaline surges

Anyone familiar with this type of ablation, I’m not sure if it’s for a fib or IST or can be used for SVT?

I’ve heard that it’s less risky? Again, I’m not a doctor so I have no idea. Just wondering if anyone has had this.

I take 75 mg but I feel like it doesn’t really lower my resting heart rate as much as it used to. I can’t take a lot of other beta blockers because they caused me to have asthma symptoms. Anyone with asthma have really good success with another beta blocker that isn’t the one that I’m currently taking. Please let me know because I’m probably gonna end up messaging my doctor to prescribe me it.

my resting heart rate isn’t necessarily dangerously high. It’s just much higher than it used to be, and I’m assuming my body built up like a tolerance.

I also feel like with the beta blocker. I have like high spikes of tachycardia still as well.

They also don’t want me to take Ivabrone with it and they said I can cause like a heart block. I’m also trying to think of other medications I could add with my beta blocker that will help lower my resting heart rate and make me feel more comfortable.

Anyone w svt what’s your resting hr is it lower or higher do you have other conditions

Is it common to have a higher hr?

I’ve been on atenolol for a long time over a year randomly the 75 dose has made my resting HR higher and a ton of adrenaline it’s terrible.

Has anyone else had this happen?

My dr wants me to switch to ivabronde. Feeling nervous I think the beta blocker only helps me not get to 170bpm

But the last few days idk 4-5 now my resting is 90-120 ish it feels like my face gets super hot I get a rush of extreme flight or fight.

I read this med can cause reflex tachycardia and a high dose makes you worse? I guess it kinda makes sense bc the lower the dose my pots I think was slightly better but I did have more SVT symptoms

I’m looking for some advice. I’m currently off my parents insurance but part of me thinks I need to get a third opinion. Essentially I started having pot symptoms. Two years ago was diagnosed with POTS in 2024 and then shortly around that time I started developing SVT symptoms, where my heart rate would get really high at rest fast forward I’ve had a lot of monitors. They’ve all come back fine. I recently got my monitor results and it showed SPE like a short run and then three beats of atrial tachycardia now the issue is in the part that keeps on looping in my head. Is that the medication stunted it from being longer because when I was on a low-dose of a beta blocker I definitely had a longer run with a higher heart rate. My doctor concluded that EP study would be pointless even though I’m pretty sure I’ve asked multiple times if they could just do EP study without the ablation, which I thought that was an option She also said no to a loop reader because she was like you can just use your Apple Watch so if you were me, would you just get a third opinion would you be wanting a another doctor to review your results like I don’t know what to do because right now I’m on 75 mg of a beta blocker. I also have POTS. I likely have IST because my resting heart rate on my meds is not even low for being on such a high dose they want me to come off of it and take ivabronde. Which I’m hesitant because the doctor even mentioned like if you have SVT it could happen taking this medication right now I’m on atenolol. I had an ultrasound this past October that just said I had mitral valve and tricuspid valve regurgitation and they said that’s normal even at 26. I do know that I have a history of high LPA. I can’t keep living in fear I currently don’t workout or go for walks things I used to love doing.

I’m just at like a complete loss. I don’t know what to do.

If anyone has POTS in IST, I’m hoping this post can reach you and you’re able to give insight, especially if you also have SVT.

I was curious if anyone struggles with health anxiety and like feels actual physical symptoms?

I struggle with a really bad OCD and I was officially diagnosed at 19 and struggled my heart rate and also have POTS but sometimes I wonder if checking my HR every single second and thinking about is causing these high high HR. And was wondering if anyone else had this experience?

So this past August, I started getting a lot of symptoms of SVT and my most recent monitor showed three beats of atrial tachycardia and then I think a short run of SVT on a beta blocker. I continue to have these SVT like symptoms and now I don’t have a monitor my doctor said it’s pointless to do EP study I push for an ep study because there’s a part of me that thinks if I have SVT I’d rather just get an ablation and not have to worry and live in fear all the time of when it’s gonna happen I’m also not working out or having caffeine or going out and that’s really affecting my life a lot.

I was curious like I guess the only way to find out if you have a pathway to get EP study right? Someone has one SVT episode does that automatically mean they have a pathway?

I’m not able to afford a good monitor to record SVT anyone know where to find any good ones that are inexpensive?

I’m curious about anyone’s experience having WPW and taking beta blockers when you took beta blockers were you still having SVT episodes frequently and what your delta wave showing up or does the medication stunt that from happening?

Long post about my monitor results-

I’m wondering if my beta blocker is making me worse bc why did I have less pots symptoms  on 12.5mg every 12 hours but then like more svt like symptoms,  even though on my high dose I still have sustained high hr at rest or a fast hr out of no where does this happen to anyone with pots or hyper pots..? I do have a diagnosis of POTS where when I stand, my heart rate will go up over 30 beats when I take my beta blocker. It’ll just even out when I stand if I don’t take my beta blocker it’s not gonna lower until I sit so the reason I was give a heart monitor

Is because after sitting my heart rate would go higher or would like sustain for a few minutes and just pound really fast and my doctors words were oh that sounds like SVT so like they wanted to give me a monitor to see if we could find any SVT which when I was on the monitor, I was on 50 mg of a beta blocker. 

another thing my average resting hr 78 is likely because of the beta blocker. Before all this my average was around 65 without meds. And I noticed that on a lower dose of my beta blocker I actually had more spikes in the 40s or 50s which to be honest it’s always been pretty normal for me. It’s not normal for me that my heart rate doesn’t go below like 65 ever at least since being on 50 mg of a beta blocker. 

Im also just drained because the whole point of getting a monitor from my electrophysiologist is because March 12 and the 14th he thought I was having SVT episodes because my symptoms were like SVT like I would be driving and randomly my heart rate would shoot up high I mean it would go gradual. It wasn’t like a light switch according to my Apple Watch but I don’t know how accurate that is and then it would go to 173. I would hold my breath. Sometimes it worked sometimes it didn’t and I just had to wait it out and then I got my monitor results and I had NSVT and then I had three beats of atrial tachycardia and they were like yeah there’s no need for ep study or a loop reader and I was like what I’m confused we clearly found a short run of SVT. I was on 50 mg of a beta blocker which if I was likely off the medication, I probably would’ve had a longer run of SVT. I don’t know if having three beats of atrial tachycardia means I don’t have SVT. I’m confused like why it’s being treated as benign. I guess if I didn’t have any symptoms and I wasn’t symptomatic then it makes sense that it’s a normal finding but I’m having symptoms a lot and there were three beats of atrial tachycardia so it’s like doesn’t that mean that I have an electrical issue or SVT I don’t quite understand.?

And just for like backstory, my POTS symptoms started in March 2024 and then my SVT like symptoms in September 2024 but I had smoked weed at a house party so I had just blamed it on that and then for nine months, I didn’t really have any SVT like symptoms.

I had a tilt table test in December 2024 unmedicated and then a stress test a week before both unmedicated for like 24 hours after the till table test is when I got a POTS diagnosis.

I’m at a complete loss right now. If anyone can please offer some advice let me know.

So I was diagnosed with parts two years ago, so really how that affects me is really just like postural changes. My heart rate will go up but once I sit, my heart rate will come down. It doesn’t just like a race out of nowhere.

I’ve posted about some of my symptoms on here so I won’t go into a super amount of detail, but essentially my doctor was concerned about me having a CT my monitor results came in and it said I had NSVT as well as three beats of atrial tachycardia and then a long run of sinus tachycardia, which I wonder if it was labeled a sinus tachycardia because atrial tachycardia, sinus tachycardia can look really similar. This is a point that I’m gonna try to make it to my doctor because she’s telling me that I shouldn’t get an EP study.

And that it’s super invasive and there’s no point but the issue is is just yesterday again like I’ll get out of bed. My heart rate will go up. I’ll sit and then my heart rate will skyrocket and then it’ll sustain for like 2 to 3 minutes and then it comes down gradually because I don’t have like that light Switch appearance of SVT. Another reason my doctors like oh this definitely is an SVT.

I don’t necessarily have anything structurally wrong with my heart. I just have a mitral valve and tricuspid valve regurgitation which I’ve been told by multiple cardiologist that that is a pretty normal finding even though I am 26.

I want to take peoples advice on here because we’re all kind of struggling with similar things. I’ve heard horror stories ep studies, but I’ve also heard a lot of good things my doctor mentioned putting me on a medication that would affect my sinus node. I think it’s called IVABRONE but it also doesn’t do much for SVT. She said there is an ablation that you can get for IST as well, and I forget the specifics of it. I would say if I wasn’t taking my 50 mg of a beta blocker my resting heart rate would be pretty high at rest, but I still have like these episodes where my heart rate just gets really high and then we’ll like come down.

Also, I feel like they’re making me feel like I don’t have SVT when my monitor had three beats of it and probably the only reason why it wasn’t longer than three beats is because of the medication I was. also, how is NSVT not a big deal?