u/PompousPatty

Putting a lot of pieces together about other allergic reactions I’ve experienced throughout my life and my recent EoE diagnosis. Anyone else not think much of things like constant nasal congestion until they received EoE diagnosis? I feel like I’ve had to put the pieces together more than my doctors have been able to, to find what my actually triggers are. I feel confident that I’m one step closer with my upcoming allergist appointment.

Putting a lot of pieces together about other allergic reactions I’ve experienced throughout my life and my recent EoE diagnosis. Anyone else not think much of things like constant nasal congestion until they received EoE diagnosis? I feel like I’ve had to put the pieces together more than my doctors have been able to, to find what my actually triggers are. I feel confident that I’m one step closer with my upcoming allergist appointment.

When you reach 30 mins after taking medication and it’s time to rinse, do you gargle water? I rinsed like 3 times after taking my very first dose tonight because I am worried about the oral thrush side effects.

I was curious what experiences some of you have had with eohilia. I keep reading about the side effects and they are freaking me out. Anything I should look out for specifically and how long did it take to work for some of you?

I recently stopped taking pantoprazole after going to er last night because it was causing an allergic reaction. However, I think the medicine was helping to reduce inflammation for EoE. It was the least invasive and now my throat is getting tight again. Insurance doesn’t cover eohilia and I’m just so depressed about the management of this disease. I hope this gets easier. I hope I can find my triggers. I’m so scared. Will I ever be able to get out of this spiral that I wake up in every day? I need some hope.

Edit: also have been on 6fed for like a month and I notice no difference. Was really hoping it was going to fix something. That has failed too it seems.

For anyone who has been prescribed ppi for EoE, how do you know it has worked? I was prescribed 40 mg of pantoprazole to take daily for past 2 1/2 months and received diagnosis in that time frame. My GI thought it was gerd at first but turned out to be EoE after scope. I stopped taking my ppi yesterday after talking with GI due to barely experiencing any improvement and also having really irregular bowel movements. Now I think my body is over producing acid and my throat is uncomfortable today. It feels like a globus sensation, and I also feel a little short of breath. This disease is so confusing…

I also know EoE and asthma are closely related, do I have asthma too?!? I’ve never been diagnosed or even thought about this…

Damn this was hard to navigate and I felt so bummed watching my family eat whatever they wanted while I had to have the waiter check with the chefs about every ingredient lol. Still on elim diet and really hoping that my eosinophil count goes down after next scope. How do you guys deal with going out to eat (specifically those with food sensitivities or on elim diet)?

Newly diagnosed, and was just dilated about 1 week and 3 days ago. Not sure if what I’m feeling is residual sensation from the procedure (biopsy and dilation) or if I should be worried. My GI provider told me that it was important to seek ER treatment if I felt there was a food impaction to avoid necrosis of esophagus. Now I’m freaked out by every sensation. I’m on 6 food elimination diet currently which started this past Thursday, and I had corn tortilla with ground turkey meat and lettuce earlier. I’ve felt a sensation since, but can get liquids down. Is this what impaction feels like? Liquid is going down just fine and not coming back up. I did burp up some food earlier. This sucks, I’m scared. Please help. I’m afraid to eat anything.

Wow am I so sad. I’m 28 years old and worried about eating anything. Was just dilated and got biopsy results back that confirmed diagnosis. I have no idea what to do. How do I find my triggers? I feel so hopeless and depressed right now. What if this is environmental and what if I never find my triggers. I’m spiraling.