u/PoppyLuluu

▲ 14 r/POTS

Blood depleted from head feeling - does anything help?

Every day especially as the day wears on I end up with a feeling that not enough blood is getting to my head, very headachey and brain foggy. Have you found anything to help with this symptom? I feel like sometimes exercise/movement helps but on others it can worsen it depending on my energy battery that day!

reddit.com
u/PoppyLuluu — 7 days ago

Chronic illness and family not respecting boundaries

Hi all, in recent years I realised my family (parents and sister) are highly enmeshed and codependent. I've been in a parentified role and the one who helps them with emotions they don't take responsibility for eg emotional meltdowns, scapegoating, huge emotional issues amongst them that they don't ever discuss being shared with me etc. This was basically my childhood.

I have multiple chronic conditions one of which is very bad at the moment. I've set boundaries around phone calls as they worsen my symptoms too much but my sister continually ignores the boundary, phoning every week which I don't answer. Then triangulating me with other family members eg 'you should call your sister she is very sad and upset'. Today I've had a one page email detailing how she understands my health but that they are all very upset that I'm not phoning her. I've explained many times I need to focus on my health rehab so I can get better.

In all of this my health needs seem to not matter at all despite them appearing highly anxious about 'fixing' my health (lots of unsolicited advice etc). All I need is some rest but the one thing they could help me with is not permitted by the system. Anyone experienced this or got any advice?

reddit.com
u/PoppyLuluu — 8 days ago
▲ 9 r/POTS

Experiences of wedge pillows or elevating bed

Hi everyone, I wonder what your experiences are of using a wedge pillow or elevating your bed? Did it help you retain a better blood volume over night and any specific products you'd recommend? I feel like a wedge pillow would be the easiest option for me

reddit.com
u/PoppyLuluu — 14 days ago