u/Primary-Jelly3035

Hello! I’m a young adult who has been struggling with what I’m pretty sure is a mix of MCAS and HEDS, as my symptoms closely align and my mother if diagnosed with those conditions. Whether or not that is exactly what it is on paper, my inability to move, eat, and get restful sleep is constantly compromised. These issues started up in my freshman year, and I ended up dropping out of school and having to get a GED because my pain was too severe. I had such high hopes for myself as an athlete, but when you can’t get nutrients or reliably exercise or move those dreams get dashed pretty fast.

My therapist has told me i realistically need to accept that I’m disabled, and probably always will be to some degree. That I’m not going to be able to do the highly physical jobs that make me feel fulfilled because it’ll end up hurting me and I can’t eat enough to make up the calories. It’s really devastating me because I’m in worse health than my mom with MCAS HEDS and POTS. While I keep trying everyday to get better, it feels like it doesn’t truly improve at all. My pain has been lowered now that I’m on cromolyn sodium, but it’s not even my own prescription, my mother has been giving me hers. My nerve sensitivity is gone, but my joints are still agonizingly inflamed and my stomach is delicate as a daisy even on my low histamine low nickel diet.

I just want this to go away, I want to be able to ride horses and teach kids how to do the same. I would like to be able to attend my college classes in person, to be able to push through the pain. But I don’t think I can. I need to know if anyone else has felt this block, how do I make the feeling of un-fulfillment leave my chest while my body feels like it’s actively failing on me? I can barely stand up long enough to shower without pain medication. Every time I start regaining the function to do what I love it’s only a matter of time before I crash and burn. How do I push through the pain? Is it possible, or is it something I’ll always have to adapt my life to?

Sorry if formatting is off I use mobile. Let me know if my post doesn’t fit since I’m not officially diagnosed, and I will delete it. Officially my disorders are GERD, Hypermobility, Visceral Hyperalgesia, Functional Abdominal Pain Syndrome, Asthma, and IBS. My current doctors think that it’s just a nerve issue, but considering it’s almost never triggered if I don’t eat or breathe in the outside air its at the very least an allergy response. I have a visit with the family physician my mom saw that helped diagnose her in a few months.

Hi, I just wanted some confirmation on some things I was wondering. My mother recently got prescribed cromolyn sodium for suspected MCAS, however, she has been having me take it as I have the same stomach issues and triggers as her, except they are more debilitating than hers because of my visceral hyperalgesia and overreactive nerves.

I have had significantly less issues and have been eating whatever I want since I’ve been taking it, and while I still have regurgitation, there’s no blood or real pain anymore.

Is this a normal reaction with GERD just because it helps to strengthen the gut lining or is this a sign that it might be MCAS causing my reflux issues?

Thanks for reading :)

Hello, I’m looking into career paths as I am starting my associates. Preferably something in the medical field to work with either people or animals. However, I use marijuana.

I have severe pain, the meds I’ve been given typically doesn’t help for very long and usually inebriates me more than the weed. I’d really prefer not to be taking weed, but I will get so delirious with pain that I’ll start running into walls and have pretty bad muscle weakness. (Dropping things, knees giving out, vision going white, etc.)

I wanted to do something generally low energy, such as physical therapy, OMT, or even mortuary work- A job working with people and helping them get over their pain while not having to worry about severely hurting someone.

So to put it bluntly, do I need to give up on my current plan and find something else? If so, are there any alternative paths? The medical field was my first choice as I’ve been forced into a position where I’m able to already understand the medical terminology, but I’m also into things such as art and animals. I would also really hate to do a job that’s just data analysis. Also I’m located in Arizona and have zero plans to leave.

Thank you so much for reading, sorry for the kinda bummer first post here