u/Primary-Olive9653

As per the title. Ideas of groups that are active?

My provider is suggesting that I take the prescribed MCAS meds several weeks at a time, and then take a pause, and restart again at some point. Anyone else doing this or have a rationale for why this would be a better approach than staying on drugs that help stabilize mast cells?

Recently diagnosed with HL in one foot, with visible swelling and redness. Any recommendations or experiences to share on heat vs ice? When is one better than the other? The podiatrist actually recommended heat, not ice, but I’m reading online that ice is usually recommended.

I’m confused because some online reading indicates that people with HL have pain when lifting the big toe upwards while weight-bearing, but not at rest. I have immediate strong pain lifting my toe even a little at rest. (Also possible it could be pseudogout with some other stuff I have going on….)

X ray shows a very mild osteoarthritis and a small bone spur. But I’m also 53 so this seems to be expected maybe?

Curious for your experiences and thoughts!

Hi, I had my SIBO of many years under pretty good control, until several different meds I’ve tried for MCAS seem to have caused relapses.

Anyone else had this issue?

I’m looking for a source of methylcellulose fiber such as in Citrucel that does not have dyes or artificial flavors in it. Any ideas?

PS I’m not looking for suggestions for other fibers at this moment - I know there are lots out there!

Thanks for any and all ideas!

Can anyone explain why oral cromolyn sodium also seems to help some with anxiety symptoms, when not much is absorbed beyond the gut? Just trying to understand.

Neurological issues (tinnitus, nausea, pressure hard to describe, anxiety) are far and away my most difficult symptoms. What medications help you with your neurological symptoms?

I’m already on cromolyn sodium, Montelukast and Claritin. Cromolyn helps with the anxiety, but not sure about the rest.

Hoping to find something that is not strongly anti-cholinergic but that may be asking too much?