Hoping to get some insight
My mum (age 77), was diagnosed with FTD last November. We realised something was wrong when she kept telling us she had won a Tesla, and that she was having a romantic relationship with Elon Musk. She had been sending the Elon scammer money, and no amount of explaining to her would convince her it wasn’t the real Elon Musk.
My dad died in spring 2024, so my mum now lives alone. She seems to be doing ok, but we walk on eggshells around her, because she flies off the handle. She is most certainly in a state of denial about her condition, and misunderstood the neurologists prognosis, as she won’t get symptoms for 5-8 years. She now denies the Elon musk thing happened, claiming they only discovered she had dementia because she was getting headaches, so they did a scan to find out why. She is still driving, even though we don’t think she should and have notified relevant authorities.
My sister and I are both single parents, and we are worried about how to support her as her condition progresses. Neither of us can leave our homes at night cause we’re alone with our kids. To be honest, we were both pretty scared of my mum before she got sick. She was always quite narcissistic and volatile, and it feels even more strained now her behaviour is more erratic. We completed power of attorney forms as soon as she got the diagnosis, but we didn’t send them off yet as my sister isn’t sure she wants that responsibility, and I don’t want to do it on my own.
To make matters worse, we have a brother who lives abroad, and who is her favourite child. He is constantly accusing us of abusing mum, we don’t know what she is saying to him to make him think this, because she denies it and calls him silly when we try to discuss it with her, but his rants towards us, and that he keeps reporting us to the authorities for elder abuse, has only reaffirmed our nerves about becoming her carer and power of attorney.
Neither of us were close to mum, or my brother (he was the golden child, I the scapegoat, my sister the invisible child, textbook narcissistic set up), and it feels like too much to manage whilst we are both caring for our own families. Is she likely to need someone with her 24/7? How quickly do things progress?
Does anyone know what support is available in the UK from the NHS?