My (23NB) bisalp surgery and recovery experience with hEDS(among other things)
I successfully had my surgery on June 18, but I posted here before looking for advice/others experiences so I thought I might give an update.
My day of surgery went fairly smoothly aside from arguing with my nurse that I needed Versed NOT Xanax for my anxiety before hand. And rendering several medical personnel speechless by showing them I can easily move my trachea out of place. The anesthesiologist DID take me seriously when I said I'd be a difficult case due to being a natural redhead, a chronic cannabis user, and had a genetic mutation (hEDS) which affects how I metabolize medication.
The recovery was full of minor complications.
In order;
I developed an allergic reaction at every spot the drape was taped to me, (which my GYN has never seen before)
I had sores on my throat from the intubation,
I lost my voice due to the sore throat,
Only being able to take Ketrolac and Tylenol (I stop breathing with opioids) and my stomach not being able to handle the multiple days in a row Ketrolac. I stopped meds on day 3 thankfully my pain was minimal so there's wasn't that big of a need for them, though chronic pain has messed up my pain scale and pain tolerance, I doubt I'd have noticed any pain over my usual flare from the weather changes.
And I'm still fighting my belly button incision that doesn't want to stay closed after the glue came off.(Currently steri-stripped shut)
Having said all that I'd do it again. I feel so free now, my GYN even took a photo of my lack of tubes to ease my paranoia. My comments are open for answering questions about my experience.