Health/Contamination OCD with HSV1 focus with psychosomatic symptoms
This is kind of a ramble and I dont know why im writing this, im just really stressed and want to feel less alone i guess? see if anyone else struggles with the same OCD focus?
A couple years ago I got a cold sore. This wasn't my first one, I've gotten them as long as I can remember. But for some reason this last one caused me to develop (or emerge?) OCD. I have a couple other OCD themes, but the biggest and most stressful one is cold sores.
Cold sores are contagious from the first tingle that signifies the virus has reactivated, so it's contagious before you even see it. It seems like most people know their tell, what type of feeling they have (as it can vary between burning, itching, tingling, etc. depending on person) and can identify it early, start treatment, and start taking precautions to not spread it. Cold sores can also spread to other parts of your body if you're not careful with it.
Both of these things terrify me. But I should be able to identify it when it itches or tingles in that spot, right?
Wrong.
Since that last sore, I've had pretty much daily itching, burning, tingling, etc. in my lip, in multiple spots including the cold sore location. Looking into this the last couple of years, it seems like it could be a combination of nerve damage from my last sore, and psychosomatic symptoms from OCD caused by anxiety surrounding cold sores. (I think nerve damage is also a factor because that area has been discolored/look different/been more sensitive since my last sore. It's rare to get lasting scars/nerve damage from cold sores, but it can happen, probably means I didn't do great with treating my last one.)
So instead, I am anxious every single day. I'm constantly terrified that I'm having prodromal (pre-) symptoms and that it's already contagious. This has been happening for years without another sore developing.
This anxiety is so bad that I will spend hours looking in the mirror trying to see any indication of a cold sore forming. If I feel a feeling, I look at my lip. It's become a cycle. I also reassurance seek via my fiance which has caused stress on our relationship because my OC pushes back against the reassurance even when im seeking it (They understand it's the OCD and don't hold it against me, but they get overwhelmed with it sometimes as they are neurodivergent as well). There have been times that I had food getting cold in the other room and instead looked at my lip in the mirror for hours until my food was cold and gross.
The worst part I think is that I can't even try to fight the fear with "it won't happen, that's an illogical fear" because it can, and most likely will happen. I've gotten cold sores throughout my life, and I will eventually get another one, and probably more after that. It's not an illogical "something that can't happen" fear, its a very highly probability that I will get another sore.
And to add to that anxiety, because I get these feelings every day, I'm terrified that I won't know when it is actually a sore, and that I'll ignore it trying to tell myself it's just anxiety feelings/ocd/whatever, and then a sore will develop and itll have already been contagious for a day or so before.
I am working on this in therapy, we're working on delaying reassurance seeking and looking at my lip. I have a timer on my fitbit I'm supposed to set after looking, and not look again until after that timer goes off, or longer if I can manage it. I do struggle with this though and still break the timer semi-often despite trying not to.
I don't know why I'm typing this, I guess I'm just looking for support? To vent? Maybe for others with the same or similar OCD focus?
Advice is welcome. No reassurance please as I'm supposed to be working on that.