u/Rats4life-

Thank you to everybody who commented on the last post. All the insight was very helpful and made me feel better, during a time when I was unsure if I was overreacting.

My mom reconvened with the AP's, nurses, and 504 coordinators. The call made her cry for three hours. If you saw the last post you might remember that if I needed to throw up (this happens to me on a daily basis) I could go to the bathroom to do it, however I then had to report straight to the nurse every single time.

We were upset and thought this was unfair. Reporting to the nurse for no reason when I am almost an adult and I am able to self manage and assesses my condition was unnecessary and taking time away from class (making me fall behind).

Now they have 'changed their minds.' They are now saying I am not allowed to vomit in the bathroom and I need to walk all the way to the nurse to do it. This is just so upsetting for so many reasons.

1. It's vomit I can't exactly hold it in (if I could do that wouldn't I just not vomit at all) also then it comes out my nose
2. The nurse is very far away.

Their "reasoning" for this is that they did not realize that on my 504 it says I have POTS so throwing up could make me dehydrated.

Finally, on the last post a lot of people suggested that I try online school. While I have looked into this, I just don't think it's fair for me to have to leave one of the best public schools (academically) in the USA because some adults want to treat me like I am not even human. Also, I can't help but think that if this were for any other reason (like a more common condition ie. diabetes, Etc.) then maybe they would actually think about what is best for me.

Thank you for taking the time to read this. I will let you know if anything changes...

I just wanted to add that my *goal* for this post was not to call anybody out or start any beef, I just really want people to understand that we need to keep fighting for change. If I have kids one day, and they were to have GP, I sure as heck would be giving a slideshow presentation to the community or something about how real this condition is!

Hey! So I thought I would share with everyone what happened recently, since tomorrow I will be speaking with the school board.

Backstory:

1. Before school started all teachers were made away multiple times in the form of emails and in person meeting that I may have to run out of the classroom without warning to vomit.

2. All teachers were kind accepting about this except one (foreshadowing)

School starts:

Of all classes I am in a health class. We were taking a tour of the school. (For context I also have POTS) I started feeling lightheaded, so I sat down in a chair while they were talking. Then I got yelled at in front of everyone. The teacher said, "if everyone can't sit down, then you can't."

A couple minutes later I ask to see the nurse because I get an aura that I need to vomit. To my surprise the teacher says no? In my head, I know time is running out before everyone see's me vomit. Eventually, I run away to the nurse.

The nurse then questions me about my GP for over an hour, (this is after I throw up and she insists on inspecting it so she can "get to know me better"?) She hears I am on BC for my PCOS and becomes very upset. She also claims that if I don't eat breakfast, then how is it possible for me to throw up in the morning? I explain a lot of times it is acid or bile...

Anyways the school makes me see the nurse EVERY SINGLE TIME I vomit (see previous post) My mom insisted my health teacher be changed, but the school is refusing... just thought I would share since I have the meeting with the AP tomorrow, and I am starting to feel like the school just thinks of me as a problem kid...

Would anybody be willing to help me build my family tree. I am not in contact with my biological father all I know is his name, (I know my moms side) is this enough? Would anybody be able to help me? I have a feeling that something is being kept from me...

Backstory:

One week in February I started throwing up. (For reference I am a teenager) My mom is a nurse and just assumed I had a stomach bug. My parents are very strict and still made me go to school that week, because they assumed it would pass. (Prior to this I had been diagnosed with POTS and HEDS. ) This continued for months, I would throw up just in the morning or just at night and that would be it. However, then something changed. I started throwing up at ALL TIMES OF THE DAY. I tried to do a gastric emptying study, however I could not keep the food down long enough to complete the study. After trying for a second time, I was able to complete the test. Around the 4 hour mark it was somewhere around 39% (I am not 100% sure may be a little higher). I immediately started Erythromycin. This worked short term but then stopped working as well. Now I currently take Erythromycin with the generic version of motegrity. Right now, I am in the process of trying to decide if I want to start the Botox treatment. I have had such a hard time deciding because there is not a lot of research on it... Anyways the real problem...

The problem:

I started high school this year! I previously had a standard 504 (for testing accommodations, ADHD, ETC.) Once finding out about how I would randomly need to run out of class to vomit, the school had a lot of problems. (for context they use a digital hall pass system called Smart Pass) The main problem is every time I vomit, they force my teacher to write me a pass to the nurse to be evaluated. This is a problem because the campus is very large and walking there and back PLUS waiting on the nurse and getting 'assessed' takes 15+ minutes. I am missing a lot of class time because of this. The school claims they need to 'keep track of my vomiting'. However, I have A LOT of doctors notes. One of them says that I can vomit at school and without any other symptoms they can not send me home. Additionally, they were overly invasive in my medical history and even asked multiple times to see my vomit? They claimed it was a way to get to know me. I told them most mornings, I don't eat breakfast and I have a very small lunch. They tried to question me as if my parents were neglecting me and then proceeded to say, "well if your not eating breakfast then what exactly are you throwing up after?" I told her the standard stuff (ie. bile, acid, water) From what I have read and from the people I have talked to, nausea is a lot more common than vomiting for a lot of people (or at least daily vomiting). I guess this is maybe why she was confused? Another part of me can't help but wonder if it is because of how I look. I am not the 'textbook picture' of gastroparesis and somebody that is vomiting everyday. I have lost 35+ pounds but i am still 155 lbs so I'm not exactly the image some people would think of for 'malnurished'. Also my school does not allow phones but we asked for an exception in case I am in the bathroom and an emergency were to arise. (They said no- go figure)

Not sure if anybody here has any experience with medical 504's but this is becoming very frustrating. I have a disability and a 504 is supposed to HELP me. Instead, it is causing unnecessary time away from class, and exposing me to potentially sick children in the nurses office. Does anybody have any experience with this or have a similar situation?