is it worth the appeal or not..?
i'm gonna try write this as concise as i can. i was approved for PIP in may 2024, mainly for mental health reasons, and was given the advanced rate for daily living needs, and standard for mobility.
since my original decision, alot has happened. i've had AuDHD diagnosed, and my mobility needs have completely changed due to ongoing unexplained autonomic system issues.
i made pip aware of all this in november 2025, got sent the long old boring form to fill in and sent it off. throughout the form, i made it clear what issues i am having etc.
i FINALLY had my 'reassessment' in february i think. throughout the call, he said to me, this call is about your health updates, not what we already know. he said that multiple times. so when he asked his questions, i made sure to focus on recent changes, rather than the things i was originally approved pip for.
anyway, however long goes on and i got the decision letter. they upped my mobility to advanced - GREAT! but they lowered my daily living back to standard. i was confused, so i read on.
the entire summary is him saying that i spoke well on the phone, i had no issues remembering, can leave the house alone, blah blah all that drivel. heres the thing, i told him the following, multiple times –
• the reason i was speaking so well and remembering, is because i had my entire medical history (illnesses/diagnosis/symptoms/meds) written in front of me. my mum made this and has documented it my whole life
• i can't leave the house unless accompanied. ever. i will never walk out my front door unless there is someone with me
• i rely on family members, or private transportation to get anywhere, and when i do have to go somewhere, 99% of the time it is to the doctors, chemist, or hospital. i cannot use public transport, for both mental and physical reasons
• my mental health is worse than then
i know i am lucky that it got reapproved, and raised in one aspect, but i felt so ignored by him around the mental battles i face. i have very 'point blank' autism – if someone tells me to do something a certain way, that's how i'm doing it. and that's what i did. he told me so many times that they are not interested in my issues i had prior to my health circumstances changing.
i'm unsure whether to appeal, or just be happy. it's difficult because i can't work. and i wish that was me just being lazy... i literally can not work. the money i get i am so grateful for, but i'm 23 y/o and i have stuff to pay for. i live with my parents rent free, only contributing to groceries which i am SO grateful for. but i just feel so unheard by the DWP... any advice would be great..