u/RedCloudGamer

Hey everyone. Havent posted in a while. 5 months out from having a small stroke in my left pons, 4mm ischemic. Think im doing well most days, some headaches and fatigue that cause my anxiety to start to flare up. But I come back here and read some of your comments and posts and it tends to help calm me.

Taking my meds as prescribed, cut a massive amount of unhealthy food/drinks from my daily diet. I was 296lbs day of stroke. Down to 254 yesterday morning. Walking some each day, trying to do whatever I can to get myself healthy.

Anyway, I just wanted to check in on all the people that have commented and helped, or even just read some of my posts or other people's here in this sub. Hope youre all seeing improvement and we can all put this stroke business in the rear view one day. Thanks for all your help and kind words everybody.

Had a small stroke diagnosed via mri back in late March. Got lucky. Very little symptoms. Week and a half of broken balance, followed by feeling mostly normal. Occasional moments of balance wobble come and go, maybe once or twice in a day, but not necessarily every day and honestly i havent noticed one in about a week now. I've posted on here a couple times about the anxiety, which can really suck, but i havent had one of those episodes since early last month. Other than that ive been me most of the time. No paralysis, no speech issues. Nothing really.

I have noticed two weird things over the months. They both come and go. And I dont really know what to call either of them. The first one is sometimes I can feel my voice in my brain. Not sure if that really conveys what I mean right, but its all I can think. Like im talking and a word or two seems to vibrate my brain or something. It doesnt happen a lot, but it causes a flash of worry every time you know. I cant seem to trigger it. Talking louder, quite, faster, slower, different head positions... nothing. Totally random as far as I can tell. And never long lasting. A word or two you know.

The second, again something that happens daily, but only for brief episodes, is just a kind of sick feeling in the back of my head. Similar to how your stomach feels when you have an upset stomach. Not painful, just uneasy. Queasy kind of feeling. I think its happened every day since the stroke, maybe a few days with no instances but I dont recall going a whole day without feeling it to be honest. Not sure what it could be.

I know no two strokes are the same, but I was wondering if anyone here has had feelings like the ones im describing, and if so maybe had any luck mitigating them or finding the way to describe them to your doctor effectively.

Thanks for always listening guys, this group has been a real help in this stroke journey I dont remember booking yet still find myself on.

Just like the title says. I got the elfin flip 4k, am wildly impressed with it, but really wanna take it to work for gaming with coworkers on my lunch break. Issue is the plug is too short to set up where I need to. So had anyone found a power bank that works with it yet?

I had a minor stroke in the left pons 4 months ago. For the most part I feel okay a lot of the time. The only symptom I really had was persistent balance loss for ten days when diagnosed, it stopped being consistent shortly after diagnosis, but still comes and goes since then. Brief moments, they freak me out for sure, but they pass and so far im alright. Im on the meds they prescribed, my bp was 124/71 over 3 tests today. Changing my diet a lot and trying to be healthier in general. Still I cant help but wonder what my long term prognosis really is. I read that theres a 81% 5 year survival rate, and that number terrifies me. Has anyone here had a pons stroke, recovered well and lived an extended period. Im only 38, and not really looking to check out on my family any time soon you know.

Diagnosed 4 months ago today, only symptom was 10 straight days of dizziness/disequilibrium. Stopped being constant after that, but still comes and goes since, especially when im extra busy. This week was hectic. Code enforcement inspection on my house had me scrambling to make sure me and the kids didnt end up homeless(spoiler we didnt), but now ive had more balance loss instances. No falls, just unsteadiness. Trying to convince myself not to run to the er. Passing all the basic neuro checks so hopefully im good.

Ever since the stroke the slightest little twinge in my neck, or hint of a headache or something similar gives me a brief mini panic attack where im terrified its another stroke. Earlier today at work I heard a pop and couldnt tell if it was in my head or in my speakers, had me thinking I had an aneurysm or brain hemorrhage. Internet seems pretty confident that either of those things would've resulted in some pretty apparent symptoms tho, thunderclap headache and motor deficits and such, so ive calmed down and convinced myself its nothing. But damn can that anxiety skyrocket quick these days.

This is probably a long read, sorry in advance.

So back in February I started noticing once or twice a day, three times max, I would get these brief moments, literally a second or two, where I felt kind of lightheaded. They'd come at random, go as quickly as they came, and like an idiot I thought nothing of them. They didnt happen everyday, but definitely at least 4 or 5 days a week.

Early March I finally married my high school sweetheart. 25 years together, 5 kids, and we finally tied the knot. Thought everything was going great in life you know. Both have decent jobs with the post office. Debt paid down fairly well. Kids all old enough to be mostly self sufficient. Finally married. Things were going great.

Then I got a cold. Or I thought it was a cold. Turned out I had bronchitis. Went to work, felt like crap, told my boss I was taking a few days off to recuperate. Something had been going around the plant, so they weren't really surprised. While i was out of work i went to urgent care and got diagnosed with the bronchitis. At this point the moements of balance loss came more frequent. Still only a second or two, but multiple times a day, everyday. I figured it was from the bronchitis.

Went back to work Sunday. Cough was terrible. Worse than when I had covid back when that was going around. Had a terrible coughing fit, at least 45 seconds or so, and felt a bad pain in my head for maybe 30 seconds at the end of the cough. From that moment on balance was off. No more 1 or 2 seconds. Just off. Not fall down off, but need to walk slow, hold on to smthings and consciously step to avoid a fall. That ladted ten days.

I was off monday Tuesday, went back to work on Wednesday and I could barely walk. Honestly i cant believe I managed to drive there and home. Boss kicked me out. Said I looked terrible, needed rest and probably a doctor. I went home. Still bronchitis you know, ive had bronchitis, ill be fine. Sent doc a message on mychart, they said go to ent, maybe something wrong with ear. Ent said minor blockage, cleared it and I had an hour or so of balance relief, not perfect, but I could walk without holding the wall and even drove home.

Balance was worse a few hours later. Next day, Friday 3/27, the wife said I should go to ER. Had my sister bring me in. Xray. Pneumonia. Ok. Not too bad. Figured id never had that, that must be why im so messed up. Pnuemonia can be a real bitch right. Docs say it doesnt explain the balance issue. Let's do CT. Do that. Clean. No arterial build up/blockages. Head and neck healthy. Phew.

Neuro guy checks meo. No typical signs. No facial droop. No arms swaying. Talking fine. Tracking movement fine with eyes and finger. Can do all the tests. But balance is still off. Suggests mri. You had a stroke. The way they said it. So matter of fact. Just like a boxers jab. Thrown right at me. I didnt know much about strokes. Assumed the worst. Gonna die. Never leaving this hospital. Won't see my kids again. My wife isnt here with me. Broke down and cried. Wife showed up.

Docs came in, told me I got lucky. Weird thing to say to someone you just told they suffered a stroke right. But theyre right. My stroke was a best case they said. 4mm subacute lacunar infarct, left pons. No motor deficits. No facial droop. No numbness. No typical stroke issues. Just the balance problem that they think will improve with time. That is lucky. Doesn't always feel like it, but it is.

Most days, I feel mostly normal. Some headaches that come and go, the balance issue isnt persistent anymore, hits me here and there with change of direction or head turns. And a hard to describe feeling in my head. Just a general weirdness/fatigue in my brain if that makes sense. Honestly it makes me feel bad for posting in groups like this. Truth is i did get lucky. Many others had much worse stroke symptoms and outcomes than I have.

But the truth is, and im sure you all know this, the people in our lives just dont understand what its like. No matter how severe the stroke, a stroke is terrifying. And the anxiety thats been rearing its head lately is downright crippling. Im a guy. And this wasn't the right thing, but i was raised to believe boys dont cry. So i dont do it. Ive cried maybe a half dozen times in my life, after my crybaby childhood days that is. But this last week, 3-4 months post the stroke, I randomly started having the worst anxiety. Any weird feeling, is this a stroke? Headache comes on, am i dying? I've cried more the last week than I have in 2 decades of adulthood. Even broke down and cried at work. Just had this terrible feeling I was gonna die any minute. Balance got worse again. Messaged neuro. They said go to er.

Did that. Did tests, came back clean. Docs say no fear of second stroke. Helped the anxiety some. But its still there. Been trying to do these breathing exercises when the anxiety hits. Think its helping some. Either that or the anxiety is just coming and going like other stuff. Trying to keep myself calm. Count my blessings.

I come here to this sub and read people's stories. I comment some words of encouragement. I ask questions. Im not really sure the point of this post. Honestly just wanted to say thank you to the people here that have shared, and commented, and helped. You're all appreciated. I hope you know that.

Had a 4mm subacute lacunar infarct in the left pons a few months ago, presented with balance issues. Balance has felt off again the last few days, messaged nuero on mychart and they said to proceed to ER immediately. Really hoping this isnt another stroke.

Edit - Doctors dont seem concerned. Did an xray and cat scan with contrast. Passed a bunch of neuro exams. Getting discharged with a new appointment with my neurologist to discuss my post stroke anxiety I guess. Thanks for all the well wishes

4mm subacute lacunar infarct left pons. About 4 months ago. Presented with just a feeling of balance loss that lasted over a week before i caved and went to the doctor. Docs diagnosed the stroke, put me on meds, made me see a bunch of doctors, all of whom seemed completely unworried about the stroke. Said it was a fluke. My numbers were all within range of shouldn't have strokes you know.

Since then ive had some headaches here and there. And my balance will feel wobbly every now and then, only for a second or two, but I notice it. Is it normal for symptoms to kind of appear and disappear lile that during recovery? I take my daily meds, im eating less and better, walking more. Should I be running to the ER or my pcp when I have these feelings or is this to be exoected?

I had a minor stroke about 4 months ago. 4mm subacute lacunar infarct left pons to be exact. Presented with just a case of being off balance. Like I was on a boat. Coincided with a bout of pneumonia. Went to doctor for the terrible cough and dizziness and heard the words. You had a stroke.

Honestly I thought I was dead. I cried. I just got married and have 5 kids ages 11-22, I havent finished raising them yet. Havent set them up for success, havent prepared them to be without me you know. And they said I had a stroke. So plainly. So matter of fact. They couldnt give a reason either. My numbers were all ok. Not perfect. Cholesterol just above acceptable. Blood pressure a touch high. But no numbers they said should correlate to a stroke.

Didn't have any major symptoms so I got discharged quickly. Been on daily aspirin, low does atrovaststin and amlodipinine since. I get these feelings throughout the day. I cant really explain them. Just a kind of crummy feeling in my head. Something I never felt before the stroke. They come and go. They dont typically last very long. Few seconds to a few minutes at most. They seem to become more frequent as the work week progresses. By my fourth or fifth day of work I need to lay down when I get home and recuperate for a but.

I feel guilty for even complaining. So many others have had it so much worse. An old high school friends wife just had a hemorrhagic stroke right after giving birth and is likely legitimately permanently disabled. Here I am with some headaches, and bad pains from sudden loud noises(4th of July sucked!).

I should be grateful to be alive, and mostly fine. But everyday im panicked. Every weird feeling. Every time my voice seems to vibrate my brain. Every time my wife gets a little too excited showing me something, and her volume reaches a point that literally hurts my brain. Everytime something out of the ordinary happens im instantly terrified. Is it happening again. Will this one paralyze me? Kill me? Tomorrow while the wife is at work im gonna record videos to say goodbye to my kids in case things turn badly for me here. Guess im just wondering if this fear ever subsides, or am I just living with it however much longer I have to live?

Has anyone tried getting this rpgmaker pokemon games to run on Thor? If so could you direct me to a site for set up walkthrough, really wanna try it out if it works.